# Welcome **URL:** https://forum.livingwithataxia.org/c/welcome/15.md [Latest](https://forum.livingwithataxia.org/latest.md) · [Categories](https://forum.livingwithataxia.org/categories.md) · [Tags](https://forum.livingwithataxia.org/tags.md) --- ## [Welcome To Living With Ataxia Support Network](https://forum.livingwithataxia.org/t/welcome-to-living-with-ataxia-support-network/5208)
**Author:** [@ModSupport](https://forum.livingwithataxia.org/u/ModSupport)\ **Replies:** 1\ **Last updated:** [October 10, 2016, 1:20pm UTC](https://forum.livingwithataxia.org/t/welcome-to-living-with-ataxia-support-network/5208 "2016-10-10T13:20:10Z")
Were you a member of our old Ataxia Support Network site? Simply LOG IN with your old user name and click on "Forgot password". We will send you a link to claim your old profile. First time visitor? Please go to our Ma… --- ## [About the Welcome category](https://forum.livingwithataxia.org/t/about-the-welocme-category/5058)
**Author:** [@ModSupport](https://forum.livingwithataxia.org/u/ModSupport)\ **Replies:** 0
The word "ataxia", comes from the Greek word, " a taxis" meaning "without order or incoordination". The word ataxia means without coordination. People with ataxia have problems with coordination because parts of the nerv… --- ## [Arizona Dry Climate](https://forum.livingwithataxia.org/t/arizona-dry-climate/9053)
**Author:** [@Sfields1](https://forum.livingwithataxia.org/u/Sfields1)\ **Replies:** 6\ **Last updated:** [March 16, 2026, 5:29am UTC](https://forum.livingwithataxia.org/t/arizona-dry-climate/9053 "2026-03-16T05:29:43Z")
Hello I have Ataxia Telangiactasia and I currently live in Southeast Michigan I was wondering if anyone found that living in a dry climate such as Arizona helped ease symptoms? --- ## [I'm Manja with non genetic CA, cause undetermined](https://forum.livingwithataxia.org/t/im-manja-with-non-genetic-ca-cause-undetermined/5691)
**Author:** [@manjad](https://forum.livingwithataxia.org/u/manjad)\ **Replies:** 22\ **Last updated:** [May 6, 2025, 4:07pm UTC](https://forum.livingwithataxia.org/t/im-manja-with-non-genetic-ca-cause-undetermined/5691 "2025-05-06T16:07:27Z")
Hallo! I am Manja a 66 year old woman from The Netherlands. I think it was over 15 years ago I began to have problems with riding a bike. I also had this Donald Duck way of walking. I fell once a month. I was referred to… --- ## [New from Belgium](https://forum.livingwithataxia.org/t/new-from-belgium/8973)
**Author:** [@Yakamoz84](https://forum.livingwithataxia.org/u/Yakamoz84)\ **Replies:** 3\ **Last updated:** [July 11, 2023, 1:35pm UTC](https://forum.livingwithataxia.org/t/new-from-belgium/8973 "2023-07-11T13:35:41Z")
Hi All, I am 38 years old and from Belgium. I was recently diagnosed with cerebbelair Ataxia but I have no idea on the type. I am scared about quality of life and life expectancy. I cannot drive because of this and hav… --- ## [Hi I'm new](https://forum.livingwithataxia.org/t/hi-im-new/8744)
**Author:** [@Issy](https://forum.livingwithataxia.org/u/Issy)\ **Replies:** 12\ **Last updated:** [February 11, 2023, 9:19am UTC](https://forum.livingwithataxia.org/t/hi-im-new/8744 "2023-02-11T09:19:52Z")
Hi , I have had epilepsy , severe attacks since I was 18. I’m now 77! The attacks , luckily only occur once every year or two as the drugs work well. About 4 years ago I started to have balance issues which have gradual… --- ## [Hi I’m new here!](https://forum.livingwithataxia.org/t/hi-i-m-new-here/8864)
**Author:** [@Lindyluwho23](https://forum.livingwithataxia.org/u/Lindyluwho23)\ **Replies:** 19\ **Last updated:** [February 6, 2023, 11:57pm UTC](https://forum.livingwithataxia.org/t/hi-i-m-new-here/8864 "2023-02-06T23:57:08Z")
We have hereditary ataxia in our family great grandfather, grandma and mother. My 2 older sisters were diagnosed and now I am showing symptoms I have a neurologist appointment but haven’t been diagnosed yet so wish me lu… --- ## [Alcohol Induced?](https://forum.livingwithataxia.org/t/alcohol-induced/8711)
**Author:** [@jericroth](https://forum.livingwithataxia.org/u/jericroth)\ **Replies:** 3\ **Last updated:** [June 3, 2022, 1:40am UTC](https://forum.livingwithataxia.org/t/alcohol-induced/8711 "2022-06-03T01:40:45Z")
Can you have alcohol induced ataxia ten years after your last drink? My electro muscle tests were normal. --- ## [Hi, I'm Sherry](https://forum.livingwithataxia.org/t/hi-im-sherry/8682)
**Author:** [@Chas521](https://forum.livingwithataxia.org/u/Chas521)\ **Replies:** 2\ **Last updated:** [April 28, 2022, 10:06am UTC](https://forum.livingwithataxia.org/t/hi-im-sherry/8682 "2022-04-28T10:06:04Z")
This is the first time sherry has posted — let’s welcome them to our community! sherry 2d Hi, my name is Sherry and I am primary caregiver for my 43 year old daughter and her 14 and 6 1/2 year old sons along with my… --- ## [Hi, I'm Steve](https://forum.livingwithataxia.org/t/hi-im-steve/8619)
**Author:** [@theSteveFactor](https://forum.livingwithataxia.org/u/theSteveFactor)\ **Replies:** 6\ **Last updated:** [March 19, 2022, 1:40am UTC](https://forum.livingwithataxia.org/t/hi-im-steve/8619 "2022-03-19T01:40:02Z")
Steve from Colorado here. I’m a father of a boy and a girl. I’m a geologist who has worked primarily in the computer industry. I have SCA II. I used to be quite active… Within the last few years, I have become subst… --- ## [Nystagmus](https://forum.livingwithataxia.org/t/nystagmus/5673)
**Author:** [@Cassiopeia](https://forum.livingwithataxia.org/u/Cassiopeia)\ **Replies:** 8\ **Last updated:** [February 16, 2022, 8:48pm UTC](https://forum.livingwithataxia.org/t/nystagmus/5673 "2022-02-16T20:48:16Z")
Does anyone have any tips to help combat nystagmus - constant uncontrolled movement of the eyes (up and down or side to side) which first led me to be diagnosed with SCA6. I have a few tricks - like blinking fast and eve… --- ## [Introduction - Mark](https://forum.livingwithataxia.org/t/introduction-mark/8549)
**Author:** [@anon54518290](https://forum.livingwithataxia.org/u/anon54518290)\ **Replies:** 3\ **Last updated:** [January 18, 2022, 11:02am UTC](https://forum.livingwithataxia.org/t/introduction-mark/8549 "2022-01-18T11:02:50Z")
Hi. My name is Mark. I have ARCA1 or SCAR8. I’m in Toronto. I help raise awareness through a non-profit called Hope For Ataxia (www.hopeforataxia.org) I also host a podcast at Season 2, Episode 2 - Bill Gasiamis - YouT… --- ## [Community Guidelines](https://forum.livingwithataxia.org/t/community-guidelines/8502)
**Author:** [@ModSupport](https://forum.livingwithataxia.org/u/ModSupport)\ **Replies:** 0\ **Last updated:** [November 10, 2021, 10:52pm UTC](https://forum.livingwithataxia.org/t/community-guidelines/8502 "2021-11-10T22:52:05Z")
This is a Civilized Place for Public Discussion Please treat this discussion forum with the same respect you would a public park. We, too, are a shared community resource — a place to share skills, knowledge and interest… --- ## [Privacy Policy](https://forum.livingwithataxia.org/t/privacy-policy/6)
**Author:** [@system](https://forum.livingwithataxia.org/u/system)\ **Replies:** 0\ **Last updated:** [May 30, 2016, 4:09pm UTC](https://forum.livingwithataxia.org/t/privacy-policy/6 "2016-05-30T16:09:00Z")
What information do we collect? We collect information from you when you register on our site and gather data when you participate in the forum by reading, writing, and evaluating the content shared here. You do not have… --- ## [Terms of Service](https://forum.livingwithataxia.org/t/terms-of-service/4)
**Author:** [@system](https://forum.livingwithataxia.org/u/system)\ **Replies:** 0\ **Last updated:** [May 30, 2016, 4:08pm UTC](https://forum.livingwithataxia.org/t/terms-of-service/4 "2016-05-30T16:08:59Z")
The following terms and conditions govern all use of the Ben’s Friends website and all content, services and products available at or through the website, including, but not limited to, Ben’s Friends Forum Software, Ben’… --- ## [How is Ben’s Friends Different from Social Media and Other Support Sites?](https://forum.livingwithataxia.org/t/how-is-ben-s-friends-different-from-social-media-and-other-support-sites/8501)
**Author:** [@ModSupport](https://forum.livingwithataxia.org/u/ModSupport)\ **Replies:** 0\ **Last updated:** [November 10, 2021, 10:51pm UTC](https://forum.livingwithataxia.org/t/how-is-ben-s-friends-different-from-social-media-and-other-support-sites/8501 "2021-11-10T22:51:09Z")
Many people wonder how a Ben’s Friends community is different from social media and other support sites. The Ben’s Friends community for this rare disease is interested in only one thing: you. You as a person, and in yo… --- ## [Hi I'm christine](https://forum.livingwithataxia.org/t/hi-im-christine/8419)
**Author:** [@Christine49](https://forum.livingwithataxia.org/u/Christine49)\ **Replies:** 12\ **Last updated:** [July 30, 2021, 5:04pm UTC](https://forum.livingwithataxia.org/t/hi-im-christine/8419 "2021-07-30T17:04:49Z")
I was diagnosed with mitochondrial disease last year, diagnosed with sca17 April this year. I’m 72 years old, have 2 daughters, both with mito, but only my eldest with sca17. I’m feeling a bit lost, don’t know what to ex… --- ## [Welcoming our newest members (from the last 2 months)](https://forum.livingwithataxia.org/t/welcoming-our-newest-members-from-the-last-2-months/8329)
**Author:** [@ModSupport](https://forum.livingwithataxia.org/u/ModSupport)\ **Replies:** 1\ **Last updated:** [March 31, 2021, 9:39am UTC](https://forum.livingwithataxia.org/t/welcoming-our-newest-members-from-the-last-2-months/8329 "2021-03-31T09:39:32Z")
Welcome to our community @Magdalina , @seafret ,@Mojo, @Sfields1, @tdk, @Loulou , @Marie, @singeram , @katebey , @Hopeforataxia818 , @Cali\_dreaming , and @Screnshaw !!! I hope you all are finding answers to your questio… --- ## [Jmday1222](https://forum.livingwithataxia.org/t/jmday1222/8075)
**Author:** [@Beryl\_Park](https://forum.livingwithataxia.org/u/Beryl_Park)\ **Replies:** 7\ **Last updated:** [November 19, 2020, 8:33am UTC](https://forum.livingwithataxia.org/t/jmday1222/8075 "2020-11-19T08:33:19Z")
IM new to this… slow and unfamiliar with site.Im in flordia USA and looking to talk with others ith ataxia --- ## [Welcome](https://forum.livingwithataxia.org/t/welcome/8037)
**Author:** [@Chas521](https://forum.livingwithataxia.org/u/Chas521)\ **Replies:** 3\ **Last updated:** [July 30, 2020, 3:47pm UTC](https://forum.livingwithataxia.org/t/welcome/8037 "2020-07-30T15:47:07Z")
Welcome to the site Brandon. Have you seen a doctor? From what you describe, it sounds like a neurological condition has appeared. The symptoms are very much like Ataxia. I would like to suggest that you make an intr… --- ## [Hey guys!](https://forum.livingwithataxia.org/t/hey-guys/7943)
**Author:** [@xtremegamer](https://forum.livingwithataxia.org/u/xtremegamer)\ **Replies:** 10\ **Last updated:** [June 19, 2020, 1:32pm UTC](https://forum.livingwithataxia.org/t/hey-guys/7943 "2020-06-19T13:32:53Z")
Hi, I am a PhD student living and studying in Glasgow, Scotland, UK. I am originally from Bradford, England. I discovered the forum and found it interesting so joined for some tips/suggestions on managing ataxia. My diag… --- ## [A long hiatus](https://forum.livingwithataxia.org/t/a-long-hiatus/7822)
**Author:** [@Gizmo512](https://forum.livingwithataxia.org/u/Gizmo512)\ **Replies:** 4\ **Last updated:** [February 7, 2020, 4:58pm UTC](https://forum.livingwithataxia.org/t/a-long-hiatus/7822 "2020-02-07T16:58:57Z")
Hello…I’m not a new member I joined in 2016; but I’ve neither visited nor posted in about a year. So I thought it would be good for me to give a brief re-cap and update. I’ve been trying to update my profile but when I… --- ## [Hi im ollie from uk](https://forum.livingwithataxia.org/t/hi-im-ollie-from-uk/7773)
**Author:** [@ollie79](https://forum.livingwithataxia.org/u/ollie79)\ **Replies:** 5\ **Last updated:** [January 2, 2020, 1:20pm UTC](https://forum.livingwithataxia.org/t/hi-im-ollie-from-uk/7773 "2020-01-02T13:20:48Z")
Hi, my name is ollie. I’m 40 from Swindon in the uk. I have SCA 11. I currently work as an assistant practitioner for the NHS. would love o hear from others, especially in the uk. ollie --- ## [Hi I’m patsy](https://forum.livingwithataxia.org/t/hi-i-m-patsy/7687)
**Author:** [@Marizona](https://forum.livingwithataxia.org/u/Marizona)\ **Replies:** 4\ **Last updated:** [October 5, 2019, 3:53pm UTC](https://forum.livingwithataxia.org/t/hi-i-m-patsy/7687 "2019-10-05T15:53:26Z")
Diagnosed with late onset cerebellar ataxia at 71 --- ## [I'm Tiffany from Canada](https://forum.livingwithataxia.org/t/im-tiffany-from-canada/7628)
**Author:** [@Tiffany](https://forum.livingwithataxia.org/u/Tiffany)\ **Replies:** 7\ **Last updated:** [August 27, 2019, 2:23pm UTC](https://forum.livingwithataxia.org/t/im-tiffany-from-canada/7628 "2019-08-27T14:23:53Z")
Hi all I am 37 married from Canada I was disgnosed at the age of nine with something called handy dandy walker which I’m sure is crap. At 16 I was finally diagnosed with Cerebellar Ataxia, they did all kinds of testin… --- ## [What to do](https://forum.livingwithataxia.org/t/what-to-do/7619)
**Author:** [@majdr](https://forum.livingwithataxia.org/u/majdr)\ **Replies:** 20\ **Last updated:** [August 24, 2019, 3:58pm UTC](https://forum.livingwithataxia.org/t/what-to-do/7619 "2019-08-24T15:58:35Z")
How do I begin, I have some form of SCA that doctors have been unable to diagnose so I just live in solitude with my walker. To top it all off I played the stock market and lost most of my savings and retirement my wife … --- ## [I am new on this site](https://forum.livingwithataxia.org/t/i-am-new-on-this-site/7433)
**Author:** [@Lilios](https://forum.livingwithataxia.org/u/Lilios)\ **Replies:** 24\ **Last updated:** [July 25, 2019, 10:22pm UTC](https://forum.livingwithataxia.org/t/i-am-new-on-this-site/7433 "2019-07-25T22:22:20Z")
My username is Lilios and I live in the uk. I have been diagnosed with sca6 as I was adopted it was found out through a blood test. What I find difficult to accept is the change in my speech. --- ## [Hi, I’m Karen in CA with sudden onset ataxia](https://forum.livingwithataxia.org/t/hi-i-m-karen-in-ca-with-sudden-onset-ataxia/7448)
**Author:** [@jkbuchholz](https://forum.livingwithataxia.org/u/jkbuchholz)\ **Replies:** 2\ **Last updated:** [May 20, 2019, 9:03am UTC](https://forum.livingwithataxia.org/t/hi-i-m-karen-in-ca-with-sudden-onset-ataxia/7448 "2019-05-20T09:03:24Z")
Hey everyone. I’m Karen, a 48 year old mother of 3 (ages 14, 16 and 17), wife of 21 years, special education high school teacher, devout Christian, lover of Keto diet and had been in my best health though 2018. Was phys… --- ## [Creating a New Account](https://forum.livingwithataxia.org/t/creating-a-new-account/7447)
**Author:** [@Bens\_Friends](https://forum.livingwithataxia.org/u/Bens_Friends)\ **Replies:** 0\ **Last updated:** [May 17, 2019, 3:01pm UTC](https://forum.livingwithataxia.org/t/creating-a-new-account/7447 "2019-05-17T15:01:12Z")
--- ## [Im wonkybut wonderful](https://forum.livingwithataxia.org/t/im-wonkybut-wonderful/7336)
**Author:** [@Wonkybutwonderful](https://forum.livingwithataxia.org/u/Wonkybutwonderful)\ **Replies:** 3\ **Last updated:** [March 19, 2019, 3:40pm UTC](https://forum.livingwithataxia.org/t/im-wonkybut-wonderful/7336 "2019-03-19T15:40:58Z")
Im carrie i was born without ataxia i was a model for a hair salon and as i grew older my ataxia got progressivly worse i have ataxia with isolated vitamin e i was abandoned by my family because of my ataxia my husbands … [Next page](https://forum.livingwithataxia.org/c/welcome/15.md?page=1)