# Amantadine

**URL:** <https://forum.livingwithataxia.org/t/amantadine/2630>\
**Category:** General\
**Created:** [February 13, 2015, 5:21pm UTC](https://forum.livingwithataxia.org/t/amantadine/2630 "2015-02-13T17:21:16Z")\
**Posts on this page:** 16\
**Page:** 1

<div class="post-metadata">

**Author:** ![ENA](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/ena/32/1542_2.png) [@ENA](https://forum.livingwithataxia.org/u/ENA)\
**Post date:** [February 13, 2015, 5:21pm UTC](https://forum.livingwithataxia.org/t/amantadine/2630/1 "2015-02-13T17:21:16Z")

</div>

Hi there,

Yesterday, my doctor prescribed a daily dose of 50mg for 2 weeks to be increased to 100mg for another 2 weeks.

I was wondering if anyone in the group had any experience with this drug.

I am Azlena or Ena for short from Malaysia. My ataxia was diagnosed 3 years ago.Thank you & kind regards.

---

<div class="post-metadata">

**Author:** ![rose1](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/rose1/32/736_2.png) [@rose1](https://forum.livingwithataxia.org/u/rose1)\
**Post date:** [February 15, 2015, 1:02am UTC](https://forum.livingwithataxia.org/t/amantadine/2630/2 "2015-02-15T01:02:06Z")

</div>

Dear Ena, What is Amantadine suppose to do for ataxia? ;o)

---

<div class="post-metadata">

**Author:** ![Jonas\_C](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/jonas_c/32/109_2.png) [@Jonas\_C](https://forum.livingwithataxia.org/u/Jonas_C)\
**Post date:** [February 15, 2015, 1:03am UTC](https://forum.livingwithataxia.org/t/amantadine/2630/3 "2015-02-15T01:03:40Z")

</div>

Amantaine is a Parkinsons drug used to control tremors, but has a few other uses. It is a go to for most neurologists that don't do ataxia. It did nothing for me.

---

<div class="post-metadata">

**Author:** ![Poppy](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/poppy/32/949_2.png) [@Poppy](https://forum.livingwithataxia.org/u/Poppy)\
**Post date:** [February 15, 2015, 1:18am UTC](https://forum.livingwithataxia.org/t/amantadine/2630/4 "2015-02-15T01:18:13Z")

</div>

One of the uses for Amantadine is for fatigue. When I was on it for this I found it very effective. I stopped it as my fatigue had improved to the point that a sleep in the day helped just as much and I was very aware that the effectiveness of Amantadine can wear off over time.

For a few days when I started it I did notice that my balance was much worse than usual, but this soon improved again. Incidentally, I did also notice that my tremors were better.

---

<div class="post-metadata">

**Author:** ![Cicina](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/cicina/32/969_2.png) [@Cicina](https://forum.livingwithataxia.org/u/Cicina)\
**Post date:** [February 15, 2015, 1:41am UTC](https://forum.livingwithataxia.org/t/amantadine/2630/5 "2015-02-15T01:41:11Z")

</div>

[http://www.ncbi.nlm.nih.gov/pubmed/24868404](http://www.ncbi.nlm.nih.gov/pubmed/24868404)

It is uses in the treatment of Friedrich Ataxia also with some success in slowing progression… Maybe it could help SCA and other kinds of Ataxia. It is apparently a safe medicine.  
With a rare disease, it is always hit or miss… Trials and errors…

---

<div class="post-metadata">

**Author:** ![wilbur](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/wilbur/32/1541_2.png) [@wilbur](https://forum.livingwithataxia.org/u/wilbur)\
**Post date:** [February 15, 2015, 2:31am UTC](https://forum.livingwithataxia.org/t/amantadine/2630/6 "2015-02-15T02:31:52Z")

</div>

It is sure worth a try. I am starting on it on Monday. And it is also a go to drug for very accomplished Neurologist s who only treat ataxia.These uses are what is called off label. Not original purpose for the drug. Actually it was used as a flu drug originally

---

<div class="post-metadata">

**Author:** ![Misti\_McV](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/misti_mcv/32/1589_2.png) [@Misti\_McV](https://forum.livingwithataxia.org/u/Misti_McV)\
**Post date:** [February 15, 2015, 5:13am UTC](https://forum.livingwithataxia.org/t/amantadine/2630/7 "2015-02-15T05:13:43Z")

</div>

My husband has been on amantadine for over a year. I notice a huge difference in him if he doesn’t take it. It really seems to help him with his spasms. Good luck on it.

---

<div class="post-metadata">

**Author:** ![ENA](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/ena/32/1542_2.png) [@ENA](https://forum.livingwithataxia.org/u/ENA)\
**Post date:** [February 15, 2015, 7:31am UTC](https://forum.livingwithataxia.org/t/amantadine/2630/8 "2015-02-15T07:31:14Z")

</div>

rose said:

> Dear Ena, What is Amantadine suppose to do for ataxia? ;o)
> 
> Dear Rose,it's supposed to act as a blocker to reduce the uncontrollable shaking of my head; it's slight but obvious at times.

---

<div class="post-metadata">

**Author:** ![ENA](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/ena/32/1542_2.png) [@ENA](https://forum.livingwithataxia.org/u/ENA)\
**Post date:** [February 15, 2015, 7:33am UTC](https://forum.livingwithataxia.org/t/amantadine/2630/9 "2015-02-15T07:33:10Z")

</div>

rose said:

> Dear Ena, What is Amantadine suppose to do for ataxia? ;o)

---

<div class="post-metadata">

**Author:** ![ENA](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/ena/32/1542_2.png) [@ENA](https://forum.livingwithataxia.org/u/ENA)\
**Post date:** [February 15, 2015, 7:37am UTC](https://forum.livingwithataxia.org/t/amantadine/2630/10 "2015-02-15T07:37:58Z")

</div>

Jonas Cepkauskas said:

> Amantaine is a Parkinsons drug used to control tremors, but has a few other uses. It is a go to for most neurologists that don't do ataxia. It did nothing for me.
> 
> Dear Jonas, thank you for your reply. Sorry to hear that it didn't help you. Giving it a try ... nothing to lose.

---

<div class="post-metadata">

**Author:** ![ENA](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/ena/32/1542_2.png) [@ENA](https://forum.livingwithataxia.org/u/ENA)\
**Post date:** [February 15, 2015, 7:41am UTC](https://forum.livingwithataxia.org/t/amantadine/2630/11 "2015-02-15T07:41:57Z")

</div>

Misti McVicker said:

> My husband has been on amantadine for over a year. I notice a huge difference in him if he doesn't take it. It really seems to help him with his spasms. Good luck on it.
> 
> Dear Misti, thank you for the ray of hope. I pray it will work for me too. Take care.

---

<div class="post-metadata">

**Author:** ![ENA](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/ena/32/1542_2.png) [@ENA](https://forum.livingwithataxia.org/u/ENA)\
**Post date:** [February 15, 2015, 7:50am UTC](https://forum.livingwithataxia.org/t/amantadine/2630/12 "2015-02-15T07:50:15Z")

</div>

Poppy said:

> One of the uses for Amantadine is for fatigue. When I was on it for this I found it very effective. I stopped it as my fatigue had improved to the point that a sleep in the day helped just as much and I was very aware that the effectiveness of Amantadine can wear off over time.
> 
> For a few days when I started it I did notice that my balance was much worse than usual, but this soon improved again. Incidentally, I did also notice that my tremors were better.
> 
> Dear Poppy, thank you. I am noticing the same thing ... my balance and tremor are worse than usual, hopefully they will soon improve again. Something to look forward to.

---

<div class="post-metadata">

**Author:** ![ENA](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/ena/32/1542_2.png) [@ENA](https://forum.livingwithataxia.org/u/ENA)\
**Post date:** [February 15, 2015, 7:58am UTC](https://forum.livingwithataxia.org/t/amantadine/2630/13 "2015-02-15T07:58:32Z")

</div>

Cicina said:

> [http://www.ncbi.nlm.nih.gov/pubmed/24868404](http://www.ncbi.nlm.nih.gov/pubmed/24868404)  
>    
> It is uses in the treatment of Friedrich Ataxia also with some success in slowing progression... Maybe it could help SCA and other kinds of Ataxia. It is apparently a safe medicine.  
> With a rare disease, it is always hit or miss... Trials and errors....
> 
> Dear Cicina, thank you for your encouraging yet pragmatic words. The link too was helpful.

---

<div class="post-metadata">

**Author:** ![ENA](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/ena/32/1542_2.png) [@ENA](https://forum.livingwithataxia.org/u/ENA)\
**Post date:** [February 15, 2015, 8:04am UTC](https://forum.livingwithataxia.org/t/amantadine/2630/14 "2015-02-15T08:04:51Z")

</div>

wilbur said:

> It is sure worth a try. I am starting on it on Monday. And it is also a go to drug for very accomplished Neurologist s who only treat ataxia.These uses are what is called off label. Not original purpose for the drug. Actually it was used as a flu drug originally.
> 
> Dear Wilbur, Hearing some encouraging feedback from our community. Yes, worth a try and happy to hear that you are starting on Monday. Good luck.

---

<div class="post-metadata">

**Author:** ![Marie\_T1](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/marie_t1/32/355_2.png) [@Marie\_T1](https://forum.livingwithataxia.org/u/Marie_T1)\
**Post date:** [February 16, 2015, 8:37pm UTC](https://forum.livingwithataxia.org/t/amantadine/2630/15 "2015-02-16T20:37:53Z")

</div>

Starting it on Wed to control tremors..

---

<div class="post-metadata">

**Author:** ![ENA](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/ena/32/1542_2.png) [@ENA](https://forum.livingwithataxia.org/u/ENA)\
**Post date:** [February 17, 2015, 2:32am UTC](https://forum.livingwithataxia.org/t/amantadine/2630/16 "2015-02-17T02:32:52Z")

</div>

Marie Turner said:

> Starting it on Wed to control tremors..
> 
> Dear Marie, thanks and good luck. Perhaps you can let us know how it turns out for you?
