Hymek7000 said: I was first diagnosed at Bournemouth hospital in 2006 but it took 8 years to see a neuro physio, but at least I am getting somewhere now so we must all wait to be served I guess!! Good luck.
Patsy said:
Ataxia UK has contributed to research for 50 years now and the number of identified types of ataxia has increased from 60 to 90. It is not surprising that we all have different symptoms and diagnosis is so complex.
I am trying CBT for my anxiety. There is long waiting list [in UK] for face to face therapy on NHS so I have opted to try online therapy with telephone support.
I have only been doing it for about a month but the main thing that I have learnt is that adrenaline plays a big part in the sickness I have felt,
I am 73 next week and still walking with the help of a rollator. I take my health very seriously .. exercise most days and eat a healthy diet. Not gaining weight is the biggest and worrying problem [apart from controlling adrenaline].
Stay positive, stay safe and dont forget to smile. x
Neta, MSA is Multiple Symptom Atrophy. There's two types, one being MSA-C (Multple symptom Atrophy-Cerebellar) and MSA-P (Multi[ple symptom Atrophy-Parkinsonism). You can Google it for more details...,;o)
I never thought I had a medical problem until my father was going to retire and they found a problem with his balance. They checked further and found he had ataxia. When he was telling me about it the symptoms sounded familiar so I went and got checked out and found that I had it. Now I can think back to high school (I'm 49 now) and always remember being a klutz. It was probably the ataxia.
A little humor...I was a klutz now since I went to the doctor, I'm a medically certified klutz.
II had all sorts of disgnoses. My atàxia started with few spels of depression. I confess the symptoms were confusing for medicals but one lady doctor insisted had MS. I had hundreds of investigations, but took me six years to be diagnosed. After6 years I was diagnosed by polish neurologist. Was comfirmed by the Wemens Institute in Liverpool cos Doctor have sent blood.
M.S.A. is Multple System Atrophy (Google it, I`m not being rude, it`s just that it`ll be better and probably quicker than me trying to explain it)
neta said:
What is MSA?
bloodaxe said:
I too have MSA. I was recently diagnosed (September) It came on literally overnight about three years ago, that I noticed a problem with my balance. I worked out for myself what the problem was, before seeing an inneffectual neurologist, and insisting on seeing an Ataxia specialist. Unfortunately they had a waiting list, so I wasn`t seen and properly diagnosed `till Setember last year with Ataxia, then more accurately this year. 10 yrs seems a little excessive, just shows how little Drs know about the subject!
Debora Warner said:
I have MSA and went to 12 different doctors before my diagnosis. It took over 10 years!
It took me 59 years to get a diagnosis. For many years I thought I would eventually be diagnosed for MSA. Now my ataxia specialist diagnosed PAF.
bloodaxe said:
M.S.A. is Multple System Atrophy (Google it, I`m not being rude, it`s just that it`ll be better and probably quicker than me trying to explain it)
neta said:
What is MSA?
bloodaxe said:
I too have MSA. I was recently diagnosed (September) It came on literally overnight about three years ago, that I noticed a problem with my balance. I worked out for myself what the problem was, before seeing an inneffectual neurologist, and insisting on seeing an Ataxia specialist. Unfortunately they had a waiting list, so I wasn`t seen and properly diagnosed `till Setember last year with Ataxia, then more accurately this year. 10 yrs seems a little excessive, just shows how little Drs know about the subject!
Debora Warner said:
I have MSA and went to 12 different doctors before my diagnosis. It took over 10 years!