# Brainstorm how to make major news sites or publishers mention ataxia

**URL:** https://forum.livingwithataxia.org/t/brainstorm-how-to-make-major-news-sites-or-publishers-mention-ataxia/847
**Category:** General
**Created:** [September 27, 2011, 4:04am UTC](https://forum.livingwithataxia.org/t/brainstorm-how-to-make-major-news-sites-or-publishers-mention-ataxia/847 "2011-09-27T04:04:23Z")
**Posts on this page:** 6
**Page:** 1

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### Author: ![Sentient\_SF](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/sentient_sf/32/626_2.png) [@Sentient\_SF](https://forum.livingwithataxia.org/u/Sentient_SF)
#### Post date: [September 27, 2011, 4:04am UTC](https://forum.livingwithataxia.org/t/brainstorm-how-to-make-major-news-sites-or-publishers-mention-ataxia/847/1 "2011-09-27T04:04:23Z")

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I would like to brainstorm how to raise awareness by having major news organizations mention ataxia. I was disappointed that there was no mention anywhere else about International Ataxia day.

Next year, I'd definitely like to change this.

Let's have a discussion about how to go about it.

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### Author: ![Sentient\_SF](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/sentient_sf/32/626_2.png) [@Sentient\_SF](https://forum.livingwithataxia.org/u/Sentient_SF)
#### Post date: [December 25, 2011, 6:09am UTC](https://forum.livingwithataxia.org/t/brainstorm-how-to-make-major-news-sites-or-publishers-mention-ataxia/847/2 "2011-12-25T06:09:36Z")

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I am amazed that there is no motivation to improve awareness about our condition. This is sad and depressing.

How can we then think non-Ataxians don't understand our situation and expect them to help?

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### Author: ![Sentient\_SF](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/sentient_sf/32/626_2.png) [@Sentient\_SF](https://forum.livingwithataxia.org/u/Sentient_SF)
#### Post date: [December 26, 2011, 4:32am UTC](https://forum.livingwithataxia.org/t/brainstorm-how-to-make-major-news-sites-or-publishers-mention-ataxia/847/3 "2011-12-26T04:32:51Z")

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I totally understand what you're saying and going by that train of thought, why even have an Ataxia Awareness Day.

But if we have one, let's make sure we can make the most of it.

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### Author: ![Sentient\_SF](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/sentient_sf/32/626_2.png) [@Sentient\_SF](https://forum.livingwithataxia.org/u/Sentient_SF)
#### Post date: [December 26, 2011, 9:49pm UTC](https://forum.livingwithataxia.org/t/brainstorm-how-to-make-major-news-sites-or-publishers-mention-ataxia/847/4 "2011-12-26T21:49:50Z")

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I totally know your heart is in the right place, and I understand what you mean.

I know I can count on your support, Michael.

I just don't see any motivation for this from others in the online groups.

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### Author: ![joehamed](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/joehamed/32/602_2.png) [@joehamed](https://forum.livingwithataxia.org/u/joehamed)
#### Post date: [December 29, 2011, 4:40pm UTC](https://forum.livingwithataxia.org/t/brainstorm-how-to-make-major-news-sites-or-publishers-mention-ataxia/847/5 "2011-12-29T16:40:47Z")

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The condition is not very well known and needs more awareness

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### Author: ![joehamed](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/joehamed/32/602_2.png) [@joehamed](https://forum.livingwithataxia.org/u/joehamed)
#### Post date: [December 29, 2011, 4:46pm UTC](https://forum.livingwithataxia.org/t/brainstorm-how-to-make-major-news-sites-or-publishers-mention-ataxia/847/6 "2011-12-29T16:46:52Z")

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The ignorance of the mass should be a hindersnce
