# Constipation

**URL:** <https://forum.livingwithataxia.org/t/constipation/7516>\
**Category:** General\
**Created:** [July 12, 2019, 3:04pm UTC](https://forum.livingwithataxia.org/t/constipation/7516 "2019-07-12T15:04:53Z")\
**Posts on this page:** 16\
**Page:** 1

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**Author:** ![RR1234](https://avatars.discourse-cdn.com/v4/letter/r/f19dbf/32.png) [@RR1234](https://forum.livingwithataxia.org/u/RR1234)\
**Post date:** [July 12, 2019, 3:04pm UTC](https://forum.livingwithataxia.org/t/constipation/7516/1 "2019-07-12T15:04:53Z")

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hello everyone ,i know this topic has been discussed before here ,however i would like to talk about what could be the reason for constipation if ataxia effects muscles you consciously control like arms and legs and not muscles like the heart or lungs .  
Also,is there any life threatening danger from constipation ,or is it just something that is an inconvenience for the rest of a person’s life ?

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**Author:** ![Shoaib](https://avatars.discourse-cdn.com/v4/letter/s/c5a1d2/32.png) [@Shoaib](https://forum.livingwithataxia.org/u/Shoaib)\
**Post date:** [July 12, 2019, 4:05pm UTC](https://forum.livingwithataxia.org/t/constipation/7516/2 "2019-07-12T16:05:54Z")

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I don’t think that constipation is detrimental for ataxia. It is known to effect hemorrhoids and sometimes prostate in men. I have had good results with fiber gummies. Everyone has to find what works for them.

 ![image](https://canada1.discourse-cdn.com/flex027/uploads/ben_ataxia/original/2X/b/b4244e9e1d9565b79065c871ee5fc64452026e03.jpeg)

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**Author:** ![RR1234](https://avatars.discourse-cdn.com/v4/letter/r/f19dbf/32.png) [@RR1234](https://forum.livingwithataxia.org/u/RR1234)\
**Post date:** [July 12, 2019, 6:22pm UTC](https://forum.livingwithataxia.org/t/constipation/7516/3 "2019-07-12T18:22:31Z")

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thanks shoaib,are there any negative side effect from it ?

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**Author:** ![Shoaib](https://avatars.discourse-cdn.com/v4/letter/s/c5a1d2/32.png) [@Shoaib](https://forum.livingwithataxia.org/u/Shoaib)\
**Post date:** [July 13, 2019, 12:14pm UTC](https://forum.livingwithataxia.org/t/constipation/7516/4 "2019-07-13T12:14:50Z")

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Only if you take too many at a time. They are fibers and not absorbed from the intestines. They are sugar free and gluten free also.

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**Author:** ![Chas521](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/chas521/32/5683_2.png) [@Chas521](https://forum.livingwithataxia.org/u/Chas521)\
**Post date:** [July 13, 2019, 1:19pm UTC](https://forum.livingwithataxia.org/t/constipation/7516/5 "2019-07-13T13:19:55Z")

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What is the recommended daily dosage? Is each chewable 5g?

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**Author:** ![Shoaib](https://avatars.discourse-cdn.com/v4/letter/s/c5a1d2/32.png) [@Shoaib](https://forum.livingwithataxia.org/u/Shoaib)\
**Post date:** [July 13, 2019, 1:29pm UTC](https://forum.livingwithataxia.org/t/constipation/7516/6 "2019-07-13T13:29:54Z")

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\*two fiber gummies a day works for me. My wife has to take three a day \*

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**Author:** ![Chas521](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/chas521/32/5683_2.png) [@Chas521](https://forum.livingwithataxia.org/u/Chas521)\
**Post date:** [July 13, 2019, 5:55pm UTC](https://forum.livingwithataxia.org/t/constipation/7516/7 "2019-07-13T17:55:03Z")

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Just picked up a bottle. If it doesn’t work I’ll hunt you down LOL. I’ve read comments that some folks have a problem with the pieces sticking together because of the heat/humidity. I put the bottle in the refrigerator to combat that.

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**Author:** ![Shoaib](https://avatars.discourse-cdn.com/v4/letter/s/c5a1d2/32.png) [@Shoaib](https://forum.livingwithataxia.org/u/Shoaib)\
**Post date:** [July 13, 2019, 6:17pm UTC](https://forum.livingwithataxia.org/t/constipation/7516/8 "2019-07-13T18:17:26Z")

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Sticking together doesn’t lose their potency. But I think, keeping the bottle in the refrigerator does not harm it either. Depending on the degree of constipation, 2-4 gummies a day should give enough fiber in your diet. I usually get them from BJ’s wholesale store. They usually have a coupon for it.

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**Author:** ![Chas521](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/chas521/32/5683_2.png) [@Chas521](https://forum.livingwithataxia.org/u/Chas521)\
**Post date:** [July 13, 2019, 7:53pm UTC](https://forum.livingwithataxia.org/t/constipation/7516/9 "2019-07-13T19:53:04Z")

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Sticking together has nothing to do potency just a pain. I also belong to BJ’s so I’ll check it out if it works for me. Thanks.

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**Author:** ![Zoe](https://avatars.discourse-cdn.com/v4/letter/z/a4c791/32.png) [@Zoe](https://forum.livingwithataxia.org/u/Zoe)\
**Post date:** [July 17, 2019, 4:42pm UTC](https://forum.livingwithataxia.org/t/constipation/7516/10 "2019-07-17T16:42:28Z")

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I saw this remedy some years ago on a Multiple System Atrophy group site. It’s a natural way that keeps my husband moving regularly. Mix 1 can mandarin oranges (I use the no sugar added) and add prunes. Heat This usually makes 3 cups. I give him one cup per morning. When I pour the cup, I add 1 TBS organic coconut oil. Hope this helps.

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**Author:** ![athlete](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/athlete/32/1832_2.png) [@athlete](https://forum.livingwithataxia.org/u/athlete)\
**Post date:** [July 17, 2019, 6:05pm UTC](https://forum.livingwithataxia.org/t/constipation/7516/11 "2019-07-17T18:05:57Z")

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I would be inclined to try a high fiber diet instead of a supplement; unrefined grains, vegetables, fruit etc. Exercise is also known to be helpful when dealing with constipation.

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**Author:** ![JenC](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/jenc/32/5685_2.png) [@JenC](https://forum.livingwithataxia.org/u/JenC)\
**Post date:** [July 17, 2019, 9:44pm UTC](https://forum.livingwithataxia.org/t/constipation/7516/12 "2019-07-17T21:44:38Z")

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If you have bad constipation like I do, fiber and exercise don’t help because I have a bad disease. If you can find a laxative senna tea at Walmart, it’s cheap and it helps. It works too well sometimes. The name has the word ‘Medicinals’ in it.

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**Author:** ![Chas521](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/chas521/32/5683_2.png) [@Chas521](https://forum.livingwithataxia.org/u/Chas521)\
**Post date:** [July 17, 2019, 11:50pm UTC](https://forum.livingwithataxia.org/t/constipation/7516/13 "2019-07-17T23:50:48Z")

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Probably the most important thing is to drink a lot of water.

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**Author:** ![Beryl\_Park](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/beryl_park/32/5716_2.png) [@Beryl\_Park](https://forum.livingwithataxia.org/u/Beryl_Park)\
**Post date:** [July 18, 2019, 4:38pm UTC](https://forum.livingwithataxia.org/t/constipation/7516/14 "2019-07-18T16:38:49Z")

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> **[Parkinson's Constipation – 6 Easy Tweaks to Keep Things Moving](https://www.invigoratept.com/blog/parkinsons-constipation-tips-to-keep-things-moving)**
>
> What causes constipation in Parkinson’s disease? Does dopamine affect constipation in Parkinson’s? Casey Farlow (aka. “The Brain Dietitian”) answers these questions and shares 6 natural ways to combat Parkinson’s constipation and get things moving...

🙂I realise this relates to Parkinson’s, but it can’t hurt to check it out.

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**Author:** ![longbow06](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/longbow06/32/5503_2.png) [@longbow06](https://forum.livingwithataxia.org/u/longbow06)\
**Post date:** [July 20, 2019, 2:48pm UTC](https://forum.livingwithataxia.org/t/constipation/7516/15 "2019-07-20T14:48:20Z")

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My wife has SCA3 with constipation. People needs to understand that ataxia affect the nerve system in the body if the nerve is out of order so will your muscles will be to. If you can find something to clam the nerve system then you will clam the muscles. With all that said we have not find anything OTC med that will work or prescription wise that will help except for Mestinon Syrup but it is a very strong med and it works within 30 min of taking it. What I have thought about doing is getting some Lubiprostone 24mg pills it is use on people that has IBS with constipation and see if that don’t work for her.

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**Author:** ![Yeperdo](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/yeperdo/32/3492_2.png) [@Yeperdo](https://forum.livingwithataxia.org/u/Yeperdo)\
**Post date:** [July 24, 2019, 6:32pm UTC](https://forum.livingwithataxia.org/t/constipation/7516/16 "2019-07-24T18:32:28Z")

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I struggle with constipation as well. I have SCA3, what works for me is a very strict diet. I have been doing the Dr Terry Walz protocol diet. It was difficult to change my eating habit at first. I know have been doing it for a year and a half. I drink a lot of smoothies because of swallowing issues. I also use miralax and Metamucil I tried Linzes but it was to strong for me. I could not make it to the toilet in time. My biggest struggle is pelvic floor pain. I can not sit for very long and other muscles just don’t work right down there.
