# De interés **URL:** \ **Category:** General\ **Created:** [September 23, 2020, 6:24pm UTC](https://forum.livingwithataxia.org/t/de-interes/8116 "2020-09-23T18:24:28Z")\ **Posts on this page:** 13\ **Page:** 1
**Author:** ![Julia](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/julia/32/5701_2.png) [@Julia](https://forum.livingwithataxia.org/u/Julia)\ **Post date:** [September 23, 2020, 6:24pm UTC](https://forum.livingwithataxia.org/t/de-interes/8116/1 "2020-09-23T18:24:29Z")
Hola. Soy Julia, encantada. Vivo en España, en Madrid. No tengo Ataxia, pero sí soy cuidadora, tengo un familiar cercano con Ataxia. He encontrado éstos enlaces, creo que podrían ser de utilidad. Aqui hablan de la L-acetilcarnitina ( LAC ) Copio/pego: La L-acetilcarnitina (LAC), una sustancia colinomimética, es fuente potencial de grupos acetilos para la síntesis de acetilcolina. También se ha sugerido que en el cerebelo, la LAC podría alterar las propiedades de membrana a nivel mitocondrial .El estudio sugiere que la administración crónica de LAC podría retrasar el curso clínico evolutivo de las ataxias hereditarias. De esta manera, LAC podría representar una herramienta farmacológica útil para controlar los trastornos funcionales de los pacientes con ataxia. Fuente: > **[Estudio con acetilcarnitina en ataxia](http://www.ataxia-y-ataxicos.es/HA/MED/YNAC49.htm)** También, información adicional que he encontrado. > **[Hemeroteca de Hispano-Ataxia (portada)](http://www.ataxia-y-ataxicos.es/HA/HEMER-PP.htm)** Lo siento, pero no sé escribir en inglés. Thank you 🙂 🙂 ---
**Author:** ![Chas521](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/chas521/32/5683_2.png) [@Chas521](https://forum.livingwithataxia.org/u/Chas521)\ **Post date:** [September 23, 2020, 7:19pm UTC](https://forum.livingwithataxia.org/t/de-interes/8116/2 "2020-09-23T19:19:07Z")
First of all, welcome Julia. For your information all posts must be in English because most of us do not speak Spanish in this case. I would strongly suggest that you use an online translator from Spanish to English. This way we can give you the support that you require ---
**Author:** ![Julia](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/julia/32/5701_2.png) [@Julia](https://forum.livingwithataxia.org/u/Julia)\ **Post date:** [September 24, 2020, 7:29am UTC](https://forum.livingwithataxia.org/t/de-interes/8116/3 "2020-09-24T07:29:17Z")
Hi. I am Julia, delighted. I live in Spain, in Madrid. I do not have ataxia, but I am a caregiver, I have a close relative with Ataxia. I have found links, I think they might be useful. Here they talk about L-acetylcarnitine (LAC) I copy / paste: L-acetylcarnitine (LAC), a cholinomimetic substance, is a potential source of acetyl groups for the synthesis of acetylcholine. It has also been suggested that in the cerebellum, LAC could alter membrane properties at the mitochondrial level. The study suggests that chronic administration of LAC could delay the clinical course of hereditary ataxias. In this way, LAC could represent a useful pharmacological tool to control functional disorders in patients with ataxia. Thanks ---
**Author:** ![Beryl\_Park](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/beryl_park/32/5716_2.png) [@Beryl\_Park](https://forum.livingwithataxia.org/u/Beryl_Park)\ **Post date:** [September 24, 2020, 8:11am UTC](https://forum.livingwithataxia.org/t/de-interes/8116/4 "2020-09-24T08:11:54Z")
Hi Julia, welcome 🙂 Thank you for your information. I’ve seen posts from others recommending this, but have never tried it myself. Carnitine is on the list of recommended medications for ataxia, by [www.ataxia.org](http://www.ataxia.org)…for fatigue. N-acetylcysteine for both tremor, and speech and swallowing. Copied from [www.europmc.org](http://www.europmc.org) Thus, inside the cell, **acetyl** - **carnitine** and **carnitine** are essentially interchangeable. The major **difference between acetyl** - **carnitine** and **carnitine** is that **acetyl** - **carnitine** is more easily absorbed from the gut, and more readily crosses the blood-brain barrier. Foods containing Carnitine Animal products like meat, fish, poultry, and milk are the best sources. In general, the redder the meat, the higher its carnitine content. Dairy products contain carnitine primarily in the whey fraction [1,3,5].10 Oct 2017 [ods.od.nih.gov](http://ods.od.nih.gov) › factsheets › Carnitine There have been several studies specific to Friedreichs Ataxia. In the body, acetyl-L-carnitine is made from L-carnitine that the body produces naturally. L-carnitine is an amino acid. Amino acids are usually used as building blocks for proteins, but L-carnitine is not. Instead, L-carnitine and acetyl-L-carnitine are used to help the body turn fat into energy. People take acetyl-L-carnitine by mouth for improving memory and thinking skills, alcohol use disorder, bipolar disorder, nerve pain, fibromyalgia, infertility, and many other conditions, but there is no good scientific evidence to support these uses. Copied from [www.webmd.com](http://www.webmd.com) ---
**Author:** ![Julia](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/julia/32/5701_2.png) [@Julia](https://forum.livingwithataxia.org/u/Julia)\ **Post date:** [October 4, 2020, 5:44pm UTC](https://forum.livingwithataxia.org/t/de-interes/8116/5 "2020-10-04T17:44:39Z")
This page is interesting > **[Manufacturer of dietary supplements - Wisepowder Product Catalog](https://www.wisepowder.com/product-catalog/)** > > Best nootropics bulk powders, Antiaging material, Manufacturers & Suppliers - Factory ... ---
**Author:** ![Beryl\_Park](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/beryl_park/32/5716_2.png) [@Beryl\_Park](https://forum.livingwithataxia.org/u/Beryl_Park)\ **Post date:** [October 5, 2020, 8:49am UTC](https://forum.livingwithataxia.org/t/de-interes/8116/6 "2020-10-05T08:49:53Z")
🙂 Yes, interesting. But even dietary supplements need to be viewed with caution, there’s the possibility they could interact adversely with prescribed medication. ---
**Author:** ![Julia](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/julia/32/5701_2.png) [@Julia](https://forum.livingwithataxia.org/u/Julia)\ **Post date:** [October 5, 2020, 1:04pm UTC](https://forum.livingwithataxia.org/t/de-interes/8116/7 "2020-10-05T13:04:51Z")
Yes but no problem. Consulted with neurologist the taking of PQQ, CoQ10, Vitamin B, Magnesium threonate, Selenium. Thank you ---
**Author:** ![Julia](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/julia/32/5701_2.png) [@Julia](https://forum.livingwithataxia.org/u/Julia)\ **Post date:** [November 8, 2020, 12:47pm UTC](https://forum.livingwithataxia.org/t/de-interes/8116/8 "2020-11-08T12:47:10Z")
> **[Suplemento de ácidos grasos Omega-3 puede ayudar a los pacientes con SCA 38 -...](https://fedaes.org/suplemento-acidos-grasos-omega-3-puede-ayudar-los-pacientes-sca-38/)** > > "El suplemento de DHA es un tratamiento seguro y eficaz en la mejora de los síntomas clínicos y el metabolismo cerebelar en pacientes con SCA 38" > **[\#IARC2017 – Omega-3 Fatty Acid Supplement May Help Patients with SCA38](https://friedreichsataxianews.com/news-posts/2017/09/30/iarc2017-omega-3-fatty-acid-docosahexaenoic-acid-dha-supplement-may-help-spinocerebellar-ataxia-38-sca38-patients/)** > > Patients with spinocerebellar ataxia 38 (SCA38) showed improved scores in two different scales — SARA (Scale for the Assessment and Rating of Ataxia) and ICARS (International Cooperative Ataxia Rating Scale) — after about 24 weeks of using... ---
**Author:** ![Julia](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/julia/32/5701_2.png) [@Julia](https://forum.livingwithataxia.org/u/Julia)\ **Post date:** [November 12, 2020, 4:15pm UTC](https://forum.livingwithataxia.org/t/de-interes/8116/9 "2020-11-12T16:15:57Z")
[https://www.nature.com/articles/nrneurol.2017.154](https://www.nature.com/articles/nrneurol.2017.154) ---
**Author:** ![Saboath](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/saboath/32/5038_2.png) [@Saboath](https://forum.livingwithataxia.org/u/Saboath)\ **Post date:** [February 5, 2024, 10:58pm UTC](https://forum.livingwithataxia.org/t/de-interes/8116/10 "2024-02-05T22:58:27Z")
Hola Julia ! Yo le puedo ayudar a traducir? > **[Jorge](https://www.youtube.com/@Jorge-wr8mj)** > > Ataxic daily living ---
**Author:** ![Julia](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/julia/32/5701_2.png) [@Julia](https://forum.livingwithataxia.org/u/Julia)\ **Post date:** [February 9, 2024, 12:15pm UTC](https://forum.livingwithataxia.org/t/de-interes/8116/11 "2024-02-09T12:15:28Z")
Muchas gracias 😊😊 Saboath ---
**Author:** ![Julia](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/julia/32/5701_2.png) [@Julia](https://forum.livingwithataxia.org/u/Julia)\ **Post date:** [February 9, 2024, 12:15pm UTC](https://forum.livingwithataxia.org/t/de-interes/8116/12 "2024-02-09T12:15:43Z")
> **[Nuevo ensayo clínico en España para el tratamiento de la ataxia telangiectasia](https://genotipia.com/genetica_medica_news/tratamiento-ataxia-telangiectasia/)** > > Un ensayo en Fase II evaluará los efectos positivos de la N-acetil-L-leucina (IB1001) en los afectados por ataxia telangiectasia ---
**Author:** ![Beryl\_Park](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/beryl_park/32/5716_2.png) [@Beryl\_Park](https://forum.livingwithataxia.org/u/Beryl_Park)\ **Post date:** [February 10, 2024, 12:49pm UTC](https://forum.livingwithataxia.org/t/de-interes/8116/13 "2024-02-10T12:49:21Z")
🙂Links to studies and trials re Ataxia…in various Countries. [https://clinicaltrials.gov/search?cond=Ataxia](https://clinicaltrials.gov/search?cond=Ataxia)