# Diagnosis of idiopathic cerebellar ataxia and now MSA type C **URL:** \ **Category:** General\ **Created:** [June 22, 2013, 2:03pm UTC](https://forum.livingwithataxia.org/t/diagnosis-of-idiopathic-cerebellar-ataxia-and-now-msa-type-c/1666 "2013-06-22T14:03:15Z")\ **Posts on this page:** 14\ **Page:** 1
**Author:** ![joehamed](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/joehamed/32/602_2.png) [@joehamed](https://forum.livingwithataxia.org/u/joehamed)\ **Post date:** [June 22, 2013, 2:03pm UTC](https://forum.livingwithataxia.org/t/diagnosis-of-idiopathic-cerebellar-ataxia-and-now-msa-type-c/1666/1 "2013-06-22T14:03:15Z")
Ii was diagnosed with idiopathic cerebellar ataxia and now MSA type C. Also referred for Botox for dystonia of neck. .any views or comments. ---
**Author:** ![Donnybluewayne](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/donnybluewayne/32/809_2.png) [@Donnybluewayne](https://forum.livingwithataxia.org/u/Donnybluewayne)\ **Post date:** [June 22, 2013, 6:34pm UTC](https://forum.livingwithataxia.org/t/diagnosis-of-idiopathic-cerebellar-ataxia-and-now-msa-type-c/1666/2 "2013-06-22T18:34:18Z")
'idiopathic' what is that ? I have CA, caused by MSA type C, they think, lots of maybes and ifs but no definates yet, doctors don't seem to give straight forward answers it seems, whatever it is it aint good is it, can hardly talk right, walk right, or seemingly do anything right except imitate a drunkard ! haha ---
**Author:** ![Marie\_T1](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/marie_t1/32/355_2.png) [@Marie\_T1](https://forum.livingwithataxia.org/u/Marie_T1)\ **Post date:** [June 22, 2013, 6:47pm UTC](https://forum.livingwithataxia.org/t/diagnosis-of-idiopathic-cerebellar-ataxia-and-now-msa-type-c/1666/3 "2013-06-22T18:47:29Z")
Seems like a craze.I also was diagnosed with CA.Last two times it was MSA with a cerebellar link .! I also cannot walk anymore or talk or eat or drink anything without intention tremors. ---
**Author:** ![joehamed](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/joehamed/32/602_2.png) [@joehamed](https://forum.livingwithataxia.org/u/joehamed)\ **Post date:** [June 22, 2013, 7:30pm UTC](https://forum.livingwithataxia.org/t/diagnosis-of-idiopathic-cerebellar-ataxia-and-now-msa-type-c/1666/4 "2013-06-22T19:30:31Z")
I am also wheelchair bound…choke a lot. , can’t write, slurred speech, wish they could find a cure…we must raise awareness…I am I london,uk. ---
**Author:** ![Marie\_T1](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/marie_t1/32/355_2.png) [@Marie\_T1](https://forum.livingwithataxia.org/u/Marie_T1)\ **Post date:** [June 22, 2013, 7:33pm UTC](https://forum.livingwithataxia.org/t/diagnosis-of-idiopathic-cerebellar-ataxia-and-now-msa-type-c/1666/5 "2013-06-22T19:33:22Z")
A cure would be nice but I am cynical. ---
**Author:** ![Kathy\_G](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/kathy_g/32/891_2.png) [@Kathy\_G](https://forum.livingwithataxia.org/u/Kathy_G)\ **Post date:** [June 23, 2013, 12:07pm UTC](https://forum.livingwithataxia.org/t/diagnosis-of-idiopathic-cerebellar-ataxia-and-now-msa-type-c/1666/6 "2013-06-23T12:07:33Z")
Idiopathic just means of unknown origin, not hereditary. The way it was explained to me by neurologist at Mass General is that 25% of non-hereditary ataxia’s turn into MSA, as is the case with me. Hope that helps. Kathy ---
**Author:** ![Jenny1](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/jenny1/32/941_2.png) [@Jenny1](https://forum.livingwithataxia.org/u/Jenny1)\ **Post date:** [June 23, 2013, 6:26pm UTC](https://forum.livingwithataxia.org/t/diagnosis-of-idiopathic-cerebellar-ataxia-and-now-msa-type-c/1666/7 "2013-06-23T18:26:05Z")
Kathy, What is MSA? Kathy G said: > Idiopathic just means of unknown origin, not hereditary. The way it was explained to me by neurologist at Mass General is that 25% of non-hereditary ataxia's turn into MSA, as is the case with me. Hope that helps. > > Kathy ---
**Author:** ![Kathy\_G](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/kathy_g/32/891_2.png) [@Kathy\_G](https://forum.livingwithataxia.org/u/Kathy_G)\ **Post date:** [June 24, 2013, 1:22am UTC](https://forum.livingwithataxia.org/t/diagnosis-of-idiopathic-cerebellar-ataxia-and-now-msa-type-c/1666/8 "2013-06-24T01:22:35Z")
Multiple System Atrophy. More areas of the brain are affected and it usually has a rapid progression rate compared with other types of ataxia, with a shorter life expectancy. ---
**Author:** ![Donnybluewayne](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/donnybluewayne/32/809_2.png) [@Donnybluewayne](https://forum.livingwithataxia.org/u/Donnybluewayne)\ **Post date:** [June 24, 2013, 9:08am UTC](https://forum.livingwithataxia.org/t/diagnosis-of-idiopathic-cerebellar-ataxia-and-now-msa-type-c/1666/9 "2013-06-24T09:08:53Z")
My neurologist says the MSA 'is' the cause of CA, not the other way around. Does anyone out there have pains in their shoulders/upper arms? The MSA nurse says it is the 'norm' with MSA ---
**Author:** ![Jenny1](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/jenny1/32/941_2.png) [@Jenny1](https://forum.livingwithataxia.org/u/Jenny1)\ **Post date:** [June 24, 2013, 7:21pm UTC](https://forum.livingwithataxia.org/t/diagnosis-of-idiopathic-cerebellar-ataxia-and-now-msa-type-c/1666/10 "2013-06-24T19:21:12Z")
:(.... Kathy G said: > Multiple System Atrophy. More areas of the brain are affected and it usually has a rapid progression rate compared with other types of ataxia, with a shorter life expectancy. ---
**Author:** ![Donnybluewayne](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/donnybluewayne/32/809_2.png) [@Donnybluewayne](https://forum.livingwithataxia.org/u/Donnybluewayne)\ **Post date:** [June 25, 2013, 9:09am UTC](https://forum.livingwithataxia.org/t/diagnosis-of-idiopathic-cerebellar-ataxia-and-now-msa-type-c/1666/11 "2013-06-25T09:09:28Z")
pains in left shoulder and radiating down arm is awful, assessing me then better pain relief hopofully Life exp from diagnosis/showing is 7.5 years in the UK apparently, great eh ? Maybe I should emigrate ! ---
**Author:** ![Kathy\_G](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/kathy_g/32/891_2.png) [@Kathy\_G](https://forum.livingwithataxia.org/u/Kathy_G)\ **Post date:** [June 25, 2013, 12:11pm UTC](https://forum.livingwithataxia.org/t/diagnosis-of-idiopathic-cerebellar-ataxia-and-now-msa-type-c/1666/12 "2013-06-25T12:11:30Z")
Donnybluewayne said: > pains in left shoulder and radiating down arm is awful, assessing me then better pain relief hopofully > > Life exp from diagnosis/showing is 7.5 years in the UK apparently, great eh ? Maybe I should emigrate ! ---
**Author:** ![Jenny1](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/jenny1/32/941_2.png) [@Jenny1](https://forum.livingwithataxia.org/u/Jenny1)\ **Post date:** [June 26, 2013, 7:19pm UTC](https://forum.livingwithataxia.org/t/diagnosis-of-idiopathic-cerebellar-ataxia-and-now-msa-type-c/1666/13 "2013-06-26T19:19:23Z")
Kathy G said: > Donnybluewayne said: > > > pains in left shoulder and radiating down arm is awful, assessing me then better pain relief hopofully > > > > Life exp from diagnosis/showing is 7.5 years in the UK apparently, great eh ? Maybe I should emigrate ! ---
**Author:** ![Jenny1](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/jenny1/32/941_2.png) [@Jenny1](https://forum.livingwithataxia.org/u/Jenny1)\ **Post date:** [June 26, 2013, 7:24pm UTC](https://forum.livingwithataxia.org/t/diagnosis-of-idiopathic-cerebellar-ataxia-and-now-msa-type-c/1666/14 "2013-06-26T19:24:36Z")
Maybe I am lucky..dunno. I just have trouble walking, and try to multi task, and that doesn't go well.The neurologist said that I had peripheral neuropathy, but I have no numbness or anything. I just to want to keep walking! I have a Trike that brings me anywhere I want to go...ie: grocery shopping, fast food for my mother. I am a caretaker of my mother who is 83, and I take care of her, along with dealing with this. It is not easy.. I've had CA since 2006.