# Does anyone live in the tri-state area of n.j.?

**URL:** <https://forum.livingwithataxia.org/t/does-anyone-live-in-the-tri-state-area-of-n-j/5664>\
**Category:** General\
**Created:** [March 3, 2017, 12:49am UTC](https://forum.livingwithataxia.org/t/does-anyone-live-in-the-tri-state-area-of-n-j/5664 "2017-03-03T00:49:07Z")\
**Posts on this page:** 20\
**Page:** 1

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**Author:** ![bobby](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/bobby/32/3502_2.png) [@bobby](https://forum.livingwithataxia.org/u/bobby)\
**Post date:** [March 3, 2017, 12:49am UTC](https://forum.livingwithataxia.org/t/does-anyone-live-in-the-tri-state-area-of-n-j/5664/1 "2017-03-03T00:49:07Z")

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the reason why im asking is ive noticed a change in my condtion [  
cerebellar atatia] and dont know if its the weather. its been every day since feb. ive had 1 good day. the weather has been crazy here in n.j.been dizzy, have wide gait, headaches here and there,  
feel drawn out, tired,dont feel like doing anything.

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                                      thanks
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**Author:** ![senior48](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/senior48/32/3524_2.png) [@senior48](https://forum.livingwithataxia.org/u/senior48)\
**Post date:** [March 3, 2017, 3:46am UTC](https://forum.livingwithataxia.org/t/does-anyone-live-in-the-tri-state-area-of-n-j/5664/2 "2017-03-03T03:46:18Z")

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May you and your support team have wisdom knowing what’s going on…j

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**Author:** ![lin-da](https://avatars.discourse-cdn.com/v4/letter/l/3da27b/32.png) [@lin-da](https://forum.livingwithataxia.org/u/lin-da)\
**Post date:** [March 3, 2017, 9:39am UTC](https://forum.livingwithataxia.org/t/does-anyone-live-in-the-tri-state-area-of-n-j/5664/3 "2017-03-03T09:39:00Z")

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I do, NYC. I have CA too. Don’t now if its related to the weather but lately its been worse.I’m sorry you’re going through this. Lucky its been a pretty warm winter-not much ice.

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**Author:** ![bobby](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/bobby/32/3502_2.png) [@bobby](https://forum.livingwithataxia.org/u/bobby)\
**Post date:** [March 3, 2017, 12:31pm UTC](https://forum.livingwithataxia.org/t/does-anyone-live-in-the-tri-state-area-of-n-j/5664/4 "2017-03-03T12:31:05Z")

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it isnt from taking dilantin is it?

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**Author:** ![Geri](https://avatars.discourse-cdn.com/v4/letter/g/43a26b/32.png) [@Geri](https://forum.livingwithataxia.org/u/Geri)\
**Post date:** [March 3, 2017, 1:24pm UTC](https://forum.livingwithataxia.org/t/does-anyone-live-in-the-tri-state-area-of-n-j/5664/5 "2017-03-03T13:24:20Z")

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I’m near Allentown, PA. My condition used to change with the weather but now I believe it’s just getting worse in general. I need to speak with the doctor about possible change in medication . My therapy starts next week which should greatly help. Hang in there bud. It’s a tough fight but we are here to help support you.

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**Author:** ![bobby](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/bobby/32/3502_2.png) [@bobby](https://forum.livingwithataxia.org/u/bobby)\
**Post date:** [March 3, 2017, 1:34pm UTC](https://forum.livingwithataxia.org/t/does-anyone-live-in-the-tri-state-area-of-n-j/5664/6 "2017-03-03T13:34:02Z")

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dont be surprised if p.t. doesnt help. some times it does and some times it doesnt. for me it didnt. its a fact p.t. might help.

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**Author:** ![henry.n](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/henry.n/32/3544_2.png) [@henry.n](https://forum.livingwithataxia.org/u/henry.n)\
**Post date:** [March 3, 2017, 4:02pm UTC](https://forum.livingwithataxia.org/t/does-anyone-live-in-the-tri-state-area-of-n-j/5664/7 "2017-03-03T16:02:00Z")

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Hi Bobby,

I am also in NJ but like Geri said “My condition used to change with the weather but now I believe it’s just getting worse in general” and you are absolutely correct in saying PT SHOULD help but it does not for me. In fact I get worse no matter how many times I do it. Hang in there!

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**Author:** ![Kay2](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/kay2/32/1429_2.png) [@Kay2](https://forum.livingwithataxia.org/u/Kay2)\
**Post date:** [March 3, 2017, 9:34pm UTC](https://forum.livingwithataxia.org/t/does-anyone-live-in-the-tri-state-area-of-n-j/5664/8 "2017-03-03T21:34:16Z")

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FYI - PT changed my life, but make sure your therapist specializes in neurological conditions not orthopedic. I’m walking better, falling less. They may not be able to improve your condition but they can give you tools to use.

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**Author:** ![bobby](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/bobby/32/3502_2.png) [@bobby](https://forum.livingwithataxia.org/u/bobby)\
**Post date:** [March 4, 2017, 12:06pm UTC](https://forum.livingwithataxia.org/t/does-anyone-live-in-the-tri-state-area-of-n-j/5664/9 "2017-03-04T12:06:30Z")

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1 thing they did for me was to be more aware when i do about to fall witch does help a lot. but in some patients it is a proven fact that sometime times it helps at times

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**Author:** ![lin-da](https://avatars.discourse-cdn.com/v4/letter/l/3da27b/32.png) [@lin-da](https://forum.livingwithataxia.org/u/lin-da)\
**Post date:** [March 4, 2017, 1:00pm UTC](https://forum.livingwithataxia.org/t/does-anyone-live-in-the-tri-state-area-of-n-j/5664/10 "2017-03-04T13:00:59Z")

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Bobby,  
Yes, CA from about 15 years Dilatin use.  
is that what yours in from? I don’t find PT helpful either. It’s frustrating.

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**Author:** ![bobby](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/bobby/32/3502_2.png) [@bobby](https://forum.livingwithataxia.org/u/bobby)\
**Post date:** [March 4, 2017, 10:35pm UTC](https://forum.livingwithataxia.org/t/does-anyone-live-in-the-tri-state-area-of-n-j/5664/11 "2017-03-04T22:35:30Z")

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linda, get off of it now. that what caused my CB. if you want get a hold of me and i can give you details. [■■■■■■■■■■■■■■■■■■■■■■](mailto:camper1211@comcast.net)

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**Author:** ![lin-da](https://avatars.discourse-cdn.com/v4/letter/l/3da27b/32.png) [@lin-da](https://forum.livingwithataxia.org/u/lin-da)\
**Post date:** [March 5, 2017, 3:26am UTC](https://forum.livingwithataxia.org/t/does-anyone-live-in-the-tri-state-area-of-n-j/5664/12 "2017-03-05T03:26:14Z")

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> [@bobby](#):
>
> [camper1211@comcast.net](mailto:camper1211@comcast.net)

Hi Bobby, thanks for your message! I sent you an email-I hope you get it. I’m off Dilantin now but too late. Have been diagnosed with severe CA a few years ago. I just recently started dealing with this-the first year I was in shock and didn’t do anything about it.

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**Author:** ![mibadge](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/mibadge/32/1775_2.png) [@mibadge](https://forum.livingwithataxia.org/u/mibadge)\
**Post date:** [March 6, 2017, 6:16pm UTC](https://forum.livingwithataxia.org/t/does-anyone-live-in-the-tri-state-area-of-n-j/5664/13 "2017-03-06T18:16:39Z")

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Hi;Ron from Michigan,like many,I feel that weather greatly affects my Ataxia.A lot has to do with my fear of slipping in the snow & ice.

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**Author:** ![neta](https://avatars.discourse-cdn.com/v4/letter/n/91b2a8/32.png) [@neta](https://forum.livingwithataxia.org/u/neta)\
**Post date:** [March 7, 2017, 8:07am UTC](https://forum.livingwithataxia.org/t/does-anyone-live-in-the-tri-state-area-of-n-j/5664/14 "2017-03-07T08:07:44Z")

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I live in NYC and find CA annoying and frustrating. PT’s really don’t help much. In fact, nothing helps. I agree that PTs make you more aware of your movements. I don’t buy all the talk re philosophy snd/or psychology bull. Right now I am in Jerusalem, Israel. I am trying to assess whether vertigo and dizzinessss r the same, N

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**Author:** ![lin-da](https://avatars.discourse-cdn.com/v4/letter/l/3da27b/32.png) [@lin-da](https://forum.livingwithataxia.org/u/lin-da)\
**Post date:** [March 7, 2017, 10:03am UTC](https://forum.livingwithataxia.org/t/does-anyone-live-in-the-tri-state-area-of-n-j/5664/15 "2017-03-07T10:03:20Z")

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Neta, for me, vertigo was much, much more severe-whenever I turned around I almost lost consciousness and had no control over my legs. I don’t find PT helpful either. I haven’t been to Jerusalem in so long-I’m jealous!

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**Author:** ![bobby](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/bobby/32/3502_2.png) [@bobby](https://forum.livingwithataxia.org/u/bobby)\
**Post date:** [March 7, 2017, 11:51am UTC](https://forum.livingwithataxia.org/t/does-anyone-live-in-the-tri-state-area-of-n-j/5664/16 "2017-03-07T11:51:31Z")

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neta, vertigo can be worse than dizziness depending on how bad it is.

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**Author:** ![neta](https://avatars.discourse-cdn.com/v4/letter/n/91b2a8/32.png) [@neta](https://forum.livingwithataxia.org/u/neta)\
**Post date:** [March 7, 2017, 1:27pm UTC](https://forum.livingwithataxia.org/t/does-anyone-live-in-the-tri-state-area-of-n-j/5664/17 "2017-03-07T13:27:15Z")

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Hey Linda, Don’t be jealous. I also found/find the vertigo different and worse

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**Author:** ![neta](https://avatars.discourse-cdn.com/v4/letter/n/91b2a8/32.png) [@neta](https://forum.livingwithataxia.org/u/neta)\
**Post date:** [March 7, 2017, 1:29pm UTC](https://forum.livingwithataxia.org/t/does-anyone-live-in-the-tri-state-area-of-n-j/5664/18 "2017-03-07T13:29:48Z")

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Thanks Bobby. But how does one get rid of it??

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**Author:** ![bobby](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/bobby/32/3502_2.png) [@bobby](https://forum.livingwithataxia.org/u/bobby)\
**Post date:** [March 7, 2017, 2:37pm UTC](https://forum.livingwithataxia.org/t/does-anyone-live-in-the-tri-state-area-of-n-j/5664/19 "2017-03-07T14:37:42Z")

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vertigo comes and goes. ataxia is 24/7. with vertigo there is p.t. that can help. i went through it but it didnt help me cause they found out i had ataxia.with ataxia dizziness you wont get rid of it

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**Author:** ![neta](https://avatars.discourse-cdn.com/v4/letter/n/91b2a8/32.png) [@neta](https://forum.livingwithataxia.org/u/neta)\
**Post date:** [March 7, 2017, 3:56pm UTC](https://forum.livingwithataxia.org/t/does-anyone-live-in-the-tri-state-area-of-n-j/5664/20 "2017-03-07T15:56:59Z")

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Bobby,

I know that ataxia dizziness is here to stay. But the vertigo comes from a  
head fall, I think. Who can deal with this???  
N

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