# Gene study received from NAF today

**URL:** https://forum.livingwithataxia.org/t/gene-study-received-from-naf-today/7155
**Category:** News, Research, and Clinical Trials
**Created:** [December 26, 2018, 8:41pm UTC](https://forum.livingwithataxia.org/t/gene-study-received-from-naf-today/7155 "2018-12-26T20:41:39Z")
**Posts on this page:** 3
**Page:** 1

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### Author: ![Chas521](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/chas521/32/5683_2.png) [@Chas521](https://forum.livingwithataxia.org/u/Chas521)
#### Post date: [December 26, 2018, 8:41pm UTC](https://forum.livingwithataxia.org/t/gene-study-received-from-naf-today/7155/1 "2018-12-26T20:41:39Z")

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I have never been genetically tested so I can’t take part. Maybe you can.

> **[GeneDx\_SCA-request-to-patients-NAF\_2.pdf](https://ataxia.org/wp-content/uploads/2018/12/GeneDx_SCA-request-to-patients-NAF_2.pdf)**
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> 323.36 KB

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### Author: ![Shoaib](https://avatars.discourse-cdn.com/v4/letter/s/c5a1d2/32.png) [@Shoaib](https://forum.livingwithataxia.org/u/Shoaib)
#### Post date: [December 26, 2018, 8:54pm UTC](https://forum.livingwithataxia.org/t/gene-study-received-from-naf-today/7155/2 "2018-12-26T20:54:30Z")

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This appears for testing purpose only. I am going to Johns Hopkins for Biohaven expanded study with BHV-4157 (Trigriluzole) in January 2019.

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### Author: ![Chas521](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/chas521/32/5683_2.png) [@Chas521](https://forum.livingwithataxia.org/u/Chas521)
#### Post date: [December 26, 2018, 9:11pm UTC](https://forum.livingwithataxia.org/t/gene-study-received-from-naf-today/7155/3 "2018-12-26T21:11:08Z")

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I guess that you have to start somewhere.