# Giving up work **URL:** \ **Category:** General\ **Created:** [March 7, 2012, 4:16pm UTC](https://forum.livingwithataxia.org/t/giving-up-work/965 "2012-03-07T16:16:37Z")\ **Posts on this page:** 3\ **Page:** 2
**Author:** ![loz](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/loz/32/5055_2.png) [@loz](https://forum.livingwithataxia.org/u/loz)\ **Post date:** [June 20, 2012, 2:52pm UTC](https://forum.livingwithataxia.org/t/giving-up-work/965/21 "2012-06-20T14:52:29Z")
i am having a hard time after giving up work as a teacher days seem endless at min trying hard to be positive would love to make friends with you because you seem to relate ---
**Author:** ![Mary1](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/mary1/32/710_2.png) [@Mary1](https://forum.livingwithataxia.org/u/Mary1)\ **Post date:** [June 20, 2012, 3:40pm UTC](https://forum.livingwithataxia.org/t/giving-up-work/965/22 "2012-06-20T15:40:54Z")
I have also had to give up my job as a teacher. My last day of work was 31 May - my principal worked hard to help me finish the school year. I also sat on the evaluation team responsible for hiring my replacement... a somewhat odd feeling! The realiy and uncertainty of being unemployed is just beginning to hit me. One of my retirement benefit plans has come through, but Social Security and the other half of my retirement plans are butting heads. The teacher retirement system will not pay benefits until the Social Security Admin. certifies my disability, and the SS people rejected my first application (made in March - when it became apparent that this would be my last school year) on the grounds that I was still working... I have reapplied to SS - but since my 2011/2012 school year contract pays me through 15 Aug. on the prorated salary system - SS says I am still working full time until then! I am really concerned about paying bills this Fall until all that gets sorted out - I am only 48 years old, so I need to try to find something I can still do at least part time. I am looking into Vocational Rehab. through my state and thinking about medical transcription as I am still able to type. I may also be able to substitute at my school part time - as long as I don't have to carry around glassware (I was a science teacher, and setting up the laboratory was getting kinda hairy - nothing like a fall when carrying a box of test tubes or beakers!) and can use my wheelchair to minimize fatigue. I am doing my best to use this time to take the best care of myself as possible - eating carefully, doing physical therapy, and anything else I can do to improve my overall health. I am trying to be positive too! Mary ---
**Author:** ![Jeannie\_B](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/jeannie_b/32/520_2.png) [@Jeannie\_B](https://forum.livingwithataxia.org/u/Jeannie_B)\ **Post date:** [June 20, 2012, 4:44pm UTC](https://forum.livingwithataxia.org/t/giving-up-work/965/23 "2012-06-20T16:44:08Z")
I'm just curious, have you checked into this yet? I have been told to print it out and bring it with you (the Compassion Allowance) for SSDI becaue not all workers know about this. They should but all don't. I not sure I know where you live if that makes a diffrence or not but it might be worth a try and see anyway! Check out # 16. Good luck! | | | | | | | Social Security Disability Representation Medicare Plan Selection Service | | | | | | | | | | | | | | | | | | [click here for a Free SSDI Evaluation](http://www.allsup.com/About-SSDI/Free-SSDI-Evaluation.aspx) | | | | | | | | | Visit Allsup Place | | Register | Login | | | | | | - [Home](http://www.allsup.com/) - - [About SSDI](http://www.allsup.com/about-ssdi/ssdi-overview.aspx) - - [Allsup Representation](http://www.allsup.com/allsup-representation/why-allsup.aspx) - - [Veterans Disability](http://www.allsup.com/veterans-disability/overview.aspx) - - [Personal Finance](http://www.allsup.com/personal-finance.aspx) - - [Medicare Advisor](http://www.allsup.com/medicare-advisor.aspx) - - [Disability Life Planning Service](http://www.allsup.com/disability-life-planning-service.aspx) - - [About Us](http://www.allsup.com/about-us.aspx) - - [Allsup Place](http://www.allsup.com/allsup-place.aspx) - - [Español](http://www.allsup.com/espanol.aspx) | | | | | | | About SSDI | | | | | | | - [SSDI Overview](http://www.allsup.com/about-ssdi/ssdi-overview.aspx) - [Why You Want SSDI](http://www.allsup.com/about-ssdi/why-you-want-ssdi.aspx) - [SSDI Process](http://www.allsup.com/about-ssdi/ssdi-process.aspx) - [Choosing Representation](http://www.allsup.com/about-ssdi/choosing-representation.aspx) - [SSDI Guidelines by Disability](http://www.allsup.com/about-ssdi/ssdi-guidelines-by-disability.aspx) - [Free SSDI Evaluation](http://www.allsup.com/about-ssdi/free-ssdi-evaluation.aspx) - [FAQs](http://www.allsup.com/about-ssdi/faqs.aspx) - [Compare SSDI Representatives](http://www.allsup.com/about-ssdi/compare-ssdi-representatives.aspx) - [About SSI](http://www.allsup.com/about-ssdi/about-ssi.aspx) - [Refer Someone to Allsup](http://www.allsup.com/refer-a-friend.aspx) - [Social Security Benefits Calculator](http://www.allsup.com/personal-finance/financial-planning-calculators/social-security-benefits-estimate.aspx) | | | | | | | | | | | | | | | | | | | | | | | | | | | [About SSDI](http://www.allsup.com/about-ssdi/ssdi-overview.aspx) \> [SSDI Guidelines by Disability](http://www.allsup.com/about-ssdi/ssdi-guidelines-by-disability.aspx) \> [Compassionate Allowances](http://www.allsup.com/about-ssdi/ssdi-guidelines-by-disability/compassionate-allowances.aspx) | [![Bookmark and Share](https://canada1.discourse-cdn.com/flex027/uploads/ben_ataxia/original/2X/f/fe746a101d6ce2e2add84f99b3ff972375e4590a.gif)](https://www.addthis.com/bookmark.php?v=250) TEXT SIZE + | - | | | | | | | # Compassionate Allowances | | Faced with the reality of an unprecedented backlog of 3.2 million claims in 2011, and longer wait times for applicants, the Social Security Administration (SSA) utilizes its Compassionate Allowances program in an effort to provide benefits quickly to applicants whose medical conditions are so serious that their conditions obviously meet [disability standards](http://www.allsup.com/about-ssdi/ssdi-guidelines-by-disability/general-guidelines.aspx). Here is the SSA's complete list of compassionate allowances - 165 conditions total: | 1. Acute Leukemia 2. Adrenal Cancer - with distant metastases or inoperable, unresectable or recurrent 3. Aicardi-Goutieres Syndrome 4. Alexander Disease (ALX) - neonatal and infantile 5. Alobar Holoprosencephaly 6. Alpers Disease 7. Alpha Mannosidosis 8. Alstrom Syndrome 9. ALS/Parkinsonism Dementia Complex 10. Amegakaryocytic Thrombocytopenia 11. Amyotrophic Lateral Sclerosis (ALS) 12. Anaplastic Adrenal Cancer - with distant metastases or inoperable, unresectable or recurrent 13. Angelman Syndrome 14. Aortic Atresia 15. Astrocytoma - grade III and IV 16. Ataxia Spinocerebellar 17. Ataxia Telangiectasia 18. Batten Disease 19. Bilateral Retinoblastoma 20. Bladder Cancer - with distant metastases or inoperable or unresectable 21. Bone Cancer - with distant metastases or inoperable or unresectable 22. Breast Cancer - with distant metastases or inoperable or unresectable 23. Canavan Disease (CD) 24. Carcinoma of Unknown Primary Site 25. Cerebro Oculo Facio Skeletal (COFS) Syndrome 26. Cerebrotendinous Xanthomatosis 27. Child Neuroblastoma 28. Child Non-Hodgkin Lymphoma 29. Chondrosarcoma with multimodal therapy 30. Chronic Myelogenous Leukemia (CML) - blast phase 31. Cornelia de Lange Syndrome-Classic Form 32. Corticobasal Degeneration 33. Creutzfeldt-Jakob Disease (CJD) – adult 34. Cri du Chat Syndrome 35. Degos Disease 36. Early-Onset Alzheimer’s Disease 37. Edwards Syndrome 38. Eisenmenger Syndrome 39. Endomyocardial Fibrosis 40. Ependymoblastoma (child brain tumor) 41. Esophageal Cancer 42. Ewings Sarcoma 43. Farber's Disease (FD) – infantile 44. Fibrodysplasia Ossificans Progressiva 45. Friedreichs Ataxia (FRDA) 46. Follicular Dendritic Cell Sarcoma with metastases 47. Frontotemporal Dementia (FTD), Picks Disease -Type A – adult 48. Fucosidosis - Type 1 49. Fukuyama Congenital Muscular Dystrophy 50. Galactosialidosis - Early Infantile Type 51. Gallbladder Cancer 52. Gaucher Disease (GD) - Type 2 53. Glioblastoma Multiforme (brain tumor) 54. Glioma Grade III and IV 55. Glutaric Acidemia Type II 56. Hallervorden-Spatz Disease 57. Head and Neck Cancers - with distant metastasis or inoperable or uresectable 58. Heart Transplant Graft Failure 59. Heart Transplant Wait List - 1A/1B 60. Hemophagocytic Lymphohistiocytosis (HLH), familial type 61. Hepatoblastoma 62. Histiocytosis 63. Hurler Syndrome, Type IH 64. Hunter Syndrome, Type II 65. Hutchinson-Gilford Progeria Syndrome 66. Hydranencephaly 67. Hypocomplementemic Urticarial Vasculitis 68. Hypophosphatasia Perinatal lethal Form 69. Hypoplastic Left Heart Syndrome 70. I Cell disease 71. Idiopathic Pulmonary Fibrosis 72. Infantile Free Sialic Acid Storage Disease 73. Infantile Neuroaxonal Dystrophy (INAD) 74. Inflammatory Breast Cancer (IBC) 75. Junctional Epidermolysis Bullosa, Lethal Type 76. Juvenile Onset Huntington Disease 77. Kidney Cancer - inoperable or unresectable 78. Krabbe Disease (KD) – infantile | 1. Kufs Disease Type A and B 2. Large Intestine Cancer - with distant metastasis or inoperable, unresectable or recurrent 3. Late Infantile Neuronal Ceroid Lipofuscinoses 4. Left Ventricular Assist Device (LVAD) Recipient 5. Leigh’s Disease 6. Lesch-Nyhan Syndrome (LNS) 7. Lewy Body Dementia 8. Lissencephaly 9. Liver Cancer 10. Lowe Syndrome 11. Lymphomatoid Granulomatosis Grade III 12. Malignant Brain Stem Gliomas - Childhood 13. Malignant Melanoma with metastases 14. Malignant Multiple Sclerosis 15. Mantle Cell Lymphoma (MCL) 16. Maple Syrup Urine Disease 17. Mastocytosis Type IV 18. Medulloblastoma with metastasis 19. Merkel Cell Carcinoma with metastases 20. Merosin Deficient Congenital Muscular Dystrophy 21. Metachromatic Leukodystrophy (MLD) - late infantile 22. Mitral Valve Atresia 23. Mixed Dementia 24. Mucosal Malignant Melanoma 25. Multicentric Castleman Disease 26. Multiple System Atrophy 27. Myocolonic Epilepsy and Ragged Red Fibers Syndrome 28. Neonatal Adrenoleukodystrophy 29. Nephrogenic Systemic Fibrosis 30. Neuronal Ceroid Lipofuscinoses, infantile type 31. Niemann-Pick Disease (NPD) - Type A 32. Niemann-Pick Type C 33. Non-Small Cell Lung Cancer - with metastases to or beyond the hilar nodes or inoperable, unresectable or recurrent 34. Obliterative Bronchiolitis 35. Ohtahara Syndrome 36. Ornithine Transcarbamylase (OTC) Deficiency 37. Orthochromatic Leukodystrophy with Pigmented Glia 38. Osteogenesis Imperfecta (OI) - Type II 39. Ovarian Cancer - with distant metastases or inoperable or unresectable 40. Pancreatic Cancer 41. Paraneoplastic Pemphigus 42. Patau Syndrome 43. Pearson Syndrome 44. Pelizaeus-Merzbacher Disease-Classic Form 45. Pelizaeus-Merzbacher Disease-Connatal Form 46. Peripheral Nerve Cancer - metastatic or recurrent 47. Peritoneal Mesothelioma 48. Perry Syndrome 49. Pleural Mesothelioma 50. Primary Cardiac Amyloidosis 51. Primary Effusion Lymphoma 52. Primary Progressive Aphasia 53. Progressive Multifocal Leukoencephalopathy 54. Progressive Supranuclear Palsy 55. Pompe Disease – infantile 56. Primary Central Nervous System Lymphoma 57. Pulmonary Atresia 58. Pulmonary Kaposi Sarcoma 59. Rett (RTT) Syndrome 60. Rhabdomyosarcoma 61. Rhizomelic Chondrodysplasia Punctata 62. Salivary Tumors 63. Sanfilippo Syndrome 64. Sandhoff Disease 65. Schindler Disease Type 1 66. Single Ventricle 67. Small Cell Cancer (of the large intestine, ovary, prostate, or uterus) 68. Small Cell Lung Cancer 69. Small Intestine Cancer - with distant metastases or inoperable, unresectable or recurrent 70. Smith Lemli Opitz Syndrome 71. Spinal Muscular Atrophy (SMA) - Types 0 And 1 72. Spinal Nerve Root Cancer- metastatic or recurrent 73. Stiff Person Syndrome 74. Stomach Cancer - with distant metastases or inoperable, unresectable or recurrent 75. Subacute Sclerosis Panencephalitis 76. Tabes Dorsalis 77. Tay Sachs Disease 78. Thanatophoric Dysplasia, Type 1 79. Thyroid Cancer 80. Tricuspid Atresia 81. Ullrich Congenital Muscular Dystrophy 82. Ureter Cancer - with distant metastases or inoperable, unresectable or recurrent 83. Walker Warburg Syndrome 84. Wolf-Hirschhorn Syndrome 85. Wolman Disease 86. Xeroderma Pigmentosum 87. Zellweger Syndrome | Even if your condition is on this list, SSDI representation is essential due to the complex nature of the SSDI process. Request a no-cost, no obligation [disability evaluation](http://www.allsup.com/about-ssdi/free-ssdi-evaluation.aspx) to determine your eligibility for Social Security disability. Source: Social Security Administration, 2012 | | | | | | Mary said: > I have also had to give up my job as a teacher. My last day of work was 31 May - my principal worked hard to help me finish the school year. I also sat on the evaluation team responsible for hiring my replacement... a somewhat odd feeling! The realiy and uncertainty of being unemployed is just beginning to hit me. One of my retirement benefit plans has come through, but Social Security and the other half of my retirement plans are butting heads. The teacher retirement system will not pay benefits until the Social Security Admin. certifies my disability, and the SS people rejected my first application (made in March - when it became apparent that this would be my last school year) on the grounds that I was still working... I have reapplied to SS - but since my 2011/2012 school year contract pays me through 15 Aug. on the prorated salary system - SS says I am still working full time until then! I am really concerned about paying bills this Fall until all that gets sorted out - I am only 48 years old, so I need to try to find something I can still do at least part time. I am looking into Vocational Rehab. through my state and thinking about medical transcription as I am still able to type. I may also be able to substitute at my school part time - as long as I don't have to carry around glassware (I was a science teacher, and setting up the laboratory was getting kinda hairy - nothing like a fall when carrying a box of test tubes or beakers!) and can use my wheelchair to minimize fatigue. I am doing my best to use this time to take the best care of myself as possible - eating carefully, doing physical therapy, and anything else I can do to improve my overall health. I am trying to be positive too! > > Mary [Previous page](https://forum.livingwithataxia.org/t/giving-up-work/965.md?page=1)