Hi Lilios
I know what you mean I sound perfectly fine in my head but I can’t say that I’ve found anyone not willing to listen, my family and friend’s know they have to listen carefully and face me as I also wear hearing aid in left ear. So between speech problems and half deaf they no to tune in lol…
As for passing this on to our children I try not to think about, both my children are well a wear and at the moment they are all about supporting me so as your daughter says what will be will be!
My younger sister also has ataxia and it seems heredity from my mother undiagnosed, fairly certain my brother has it also undiagnosed they both have the speech problems and the gait mum also very unbalanced. So not much we can do but support each other and hope for a cure.
Staying strong and healthy for yourself and your family is the best you can do and live your best life. Knowing you have friend’s here is also a wonderful comfort. XO
you are right…I experience choking these days…losen muscle in the neck, when a healthy person eats, the body automatically shuts one system down
and opens up another…Crumbs, dry food like bread,remnants of a coffee…send me flying, IT IS PARTIALLY BREATHING. One has to concentrate,powder like chocolate drink… what I am doing, eating soup and bread I have to eat wet…NEVER EAT AND SPEAK, dodgy breathing in the mix, bot sure if salvable, by neck exercise…will investigate solution.
I’ll be interested in the result if your investigations. I’ve assumed there is no solution so I’ve never looked for one. I’m not as bad as you - yet - (crumbs, I’ve got something to look forward to) but my voice is terrible - so I’m told - I have mild trouble swallowing and I get very short of breath but one by lovely one, they’re all going so I’ve got some exciting times ahead of me. That’s on top of walking into lamp-posts. Sorry for the humour, I try to look at things light heartedly.
Two men looked from prison bars
One saw mud, the other stars
https://www.christart.com/IMAGES-art9ab/clipart/2710/perception.png
I try to be a star sort of person
good on you, as one wld crack if taken seriously…my husband has Hodkin lymphoma, that’s what I call serious, 2 weeks at home tired, shattered after a good night sleep, then went to hospital, took another 2 weeks get to a type of cancer as the medics had to wait for a solid type shown only in the biopsy…He is improving…still in hospital, but WILL CONTINUE TREATMENT at home.
you are right, lately quite stressed out, short of breath panting after minimal physical effort, staircase.But I suffer from dormant asthma…no inhalators…no meds…so I know it is ataxia, can work myself to a panic attack did it 2x and my breathing certainly affected. It is all psychological…so NO SHALLOW BREATHING…SPEECH IS SLURRED, BUT AGAIN psychological…The English language VERY KIND TO ME, but caught myself on answerphone, and sounded like a demented woman, slower speech, but good is, must annunciate properly,my native SLOVAK worse, quite demanding on a lot of letter 'R" rolling tongue… and 4 consonants words, so switch to Italian, plenty of vowels…
Welcome Lilios 
I also am shocked that my voice has changed not only do I stutter at times, which I control by talking slow, I have also developed accents to my voice that makes it sound like I come from a different country or continent. I find humor helps because even though my voice is changing and my mind still works most of the time😊