# I'll be honest

**URL:** <https://forum.livingwithataxia.org/t/ill-be-honest/6580>\
**Category:** General\
**Tags:** stories\
**Created:** [February 13, 2018, 3:32pm UTC](https://forum.livingwithataxia.org/t/ill-be-honest/6580 "2018-02-13T15:32:50Z")\
**Posts on this page:** 8\
**Page:** 4

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**Author:** ![Beryl\_Park](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/beryl_park/32/5716_2.png) [@Beryl\_Park](https://forum.livingwithataxia.org/u/Beryl_Park)\
**Post date:** [October 3, 2019, 5:13pm UTC](https://forum.livingwithataxia.org/t/ill-be-honest/6580/62 "2019-10-03T17:13:17Z")

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🥴 Currently, my daughter has had her first baby, it was difficult she and needs support. And, we move house within the next few weeks, but not to our final destination 😑 Probably 2 short term moves will be involved first, and as yet nothing is finalised 😱  
I’m finding it very difficult not to get stressed due to the fact that I just can’t participate and help much with either situation.  
The pressure is on, and I can’t see anything happening to ease it.

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**Author:** ![John\_D](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/john_d/32/608_2.png) [@John\_D](https://forum.livingwithataxia.org/u/John_D)\
**Post date:** [October 13, 2019, 2:07pm UTC](https://forum.livingwithataxia.org/t/ill-be-honest/6580/63 "2019-10-13T14:07:32Z")

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I was diagnosed in my early 20s…told that I’d be wheelchair-bound by 30 and most likely wouldn’t live to see 40…I’m 46 now and still walking (with a cane, of course) so keep in mind that this disorder, in itself, **won’t** kill you. The odds of making it to “elderly” status are better than you think.

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**Author:** ![JoyfulOne](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/joyfulone/32/5563_2.png) [@JoyfulOne](https://forum.livingwithataxia.org/u/JoyfulOne)\
**Post date:** [October 20, 2019, 7:13pm UTC](https://forum.livingwithataxia.org/t/ill-be-honest/6580/64 "2019-10-20T19:13:37Z")

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```
 Where to begin... I'm almost 61 years old. I used to be a teacher. I was minding my own business when this hit me back in 2015. It's completely random. 

 I live in Pennsylvania. I moved a few hours away back in June. I had a three floor townhouse, which I was very proud of - then I fell. After two LONG weeks in rehab (showers only twice a week), I was told that I couldn't live alone anymore. So I sold my house and bought a rancher near one of my sisters and my mom.

 My friends say they're impressed that I'm handling all of this so well. For the most part, I am. But I do have my bad days.

```

I finally gave in and got a cleaning lady. I’m totally wiped out after changing the bed! Forget anything else!

```
 My sister now says I need to find new friends. It has to happen organically. I don't drive. My speech is REALLY bad. I'm very self-conscious. She just doesn't get it. People always say they don't mind, but I do.

 I'm so glad I found all of you. I never pictured my retirement this way! I thought I'd volunteer. I can't. I thought I'd maybe work part-time to break up the time. I can't. I can't do anything. I have balance issues, so I have to use a walker. I have speech problems, so my sister has to make all of my calls for me. A couple of years ago when it wasn't even as bad, I was on hold for almost fifteen minutes. When the customer service lady FINALLY picked up, she said "We must heave a bad connection" and she hung up! I was angry at the time, but now I have to laugh at it. I can't write very easily. Everything makes me tired. If I go without a nap on any day, I can't function very well.

 I basically can't do anything. That's a cruel joke. People just don't get it.

```

CAN ANYONE TELL ME WHY MY TYPING LOOKS LIKE THIS?

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**Author:** ![Chatkat](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/chatkat/32/5530_2.png) [@Chatkat](https://forum.livingwithataxia.org/u/Chatkat)\
**Post date:** [October 20, 2019, 8:10pm UTC](https://forum.livingwithataxia.org/t/ill-be-honest/6580/65 "2019-10-20T20:10:30Z")

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Do you mean the spacing?? You’ve probably set that as the parameter.

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**Author:** ![JoyfulOne](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/joyfulone/32/5563_2.png) [@JoyfulOne](https://forum.livingwithataxia.org/u/JoyfulOne)\
**Post date:** [October 20, 2019, 8:13pm UTC](https://forum.livingwithataxia.org/t/ill-be-honest/6580/66 "2019-10-20T20:13:45Z")

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Chatkat - No, everything just looks strange! I didn’t change anything.

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**Author:** ![ModSupport](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/modsupport/32/3527_2.png) [@ModSupport](https://forum.livingwithataxia.org/u/ModSupport)\
**Post date:** [October 21, 2019, 1:17pm UTC](https://forum.livingwithataxia.org/t/ill-be-honest/6580/67 "2019-10-21T13:17:35Z")

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Hey Joyfulone,  
Yes, I can tell you why.

```
            <= When you've written your text you've left a space on the top margin, where the arrow is at the beginning of this line. The system pics this up as a quote and automatically places it in a greyed box
                To avoid this...

```

…  
Start your text at the edge of the textbox this should solve the issue.

Hope it helps  
Merl from the Moderator Support Team

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**Author:** ![JoyfulOne](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/joyfulone/32/5563_2.png) [@JoyfulOne](https://forum.livingwithataxia.org/u/JoyfulOne)\
**Post date:** [October 22, 2019, 12:58pm UTC](https://forum.livingwithataxia.org/t/ill-be-honest/6580/68 "2019-10-22T12:58:43Z")

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Thank you. I can’t edit this now, but now I know.

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**Author:** ![iblong2](https://avatars.discourse-cdn.com/v4/letter/i/e19adc/32.png) [@iblong2](https://forum.livingwithataxia.org/u/iblong2)\
**Post date:** [October 30, 2019, 9:17pm UTC](https://forum.livingwithataxia.org/t/ill-be-honest/6580/69 "2019-10-30T21:17:59Z")

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It all started about 2.5 to 3 years ago for me. I noticed a was walking a little off balance and my handwriting was changing. Fast forward to now - I have been diagnosed with MSA with Ataxia about a year ago, I’m 64 now. I’ve been athletic my whole life (triathlons, bike racing, etc.) now I stumble walking, need a cane. I’m with all of you, of us, it is so freakin frustrating, hard, exhausting. But, the thing that keeps me going is my family, their support, my wife, and a positive thoughts about a life lived the best I could live it, bumps and all. And this one saying from my mother, “IT COULD BE WORSE.” S\*&t happens let’s deal with it positively fellow, ATAXIANS!!

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