# Information from Rare Disease UK

**URL:** <https://forum.livingwithataxia.org/t/information-from-rare-disease-uk/2503>\
**Category:** General\
**Created:** [November 26, 2014, 7:08pm UTC](https://forum.livingwithataxia.org/t/information-from-rare-disease-uk/2503 "2014-11-26T19:08:21Z")\
**Posts on this page:** 1\
**Page:** 1

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**Author:** ![Alan\_T](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/alan_t/32/31_2.png) [@Alan\_T](https://forum.livingwithataxia.org/u/Alan_T)\
**Post date:** [November 26, 2014, 7:08pm UTC](https://forum.livingwithataxia.org/t/information-from-rare-disease-uk/2503/1 "2014-11-26T19:08:21Z")

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Pls support [~~@~~ **rarediseaseuk**](https://twitter.com/rarediseaseuk) [~~#~~ **campaign**](https://twitter.com/hashtag/campaign?src=hash) to MPs 2 ensure a commitment to [~~#~~ **UK**](https://twitter.com/hashtag/UK?src=hash) Strategy 4 [~~#~~ **RareDiseases**](https://twitter.com/hashtag/RareDiseases?src=hash):

[http://www.raredisease.org.uk/rare-disease-open-letter-.htm …](http://t.co/Abc6AFKKRQ "http://www.raredisease.org.uk/rare-disease-open-letter-.htm")

[http://www.raredisease.org.uk/rare-disease-open-letter-.htm](http://www.raredisease.org.uk/rare-disease-open-letter-.htm)