# My first post

**URL:** <https://forum.livingwithataxia.org/t/my-first-post/2819>\
**Category:** General\
**Created:** [July 24, 2015, 12:46am UTC](https://forum.livingwithataxia.org/t/my-first-post/2819 "2015-07-24T00:46:12Z")\
**Posts on this page:** 4\
**Page:** 1

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**Author:** ![bob3](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/bob3/32/1703_2.png) [@bob3](https://forum.livingwithataxia.org/u/bob3)\
**Post date:** [July 24, 2015, 12:46am UTC](https://forum.livingwithataxia.org/t/my-first-post/2819/1 "2015-07-24T00:46:12Z")

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My first post.. so here it goes: I am currently 33 years old, born and raised in a town called Kenora, Ontario, Canada (the sticks). I was after many years of being poked, scanned, and tested I was diagnosed with a rare genetic condition known as Ataxia Telangiectasia (I try to avoid doctors now). When I was younger it did not seem to affect me to badly as my only problems seemed to be that I was always bad at sports and had difficulty with stairs and such. As I got older problems seem to have progressed significantly as I am no longer able to walk, and I seem to feel my muscles slowly melting away. Doctors have tried to give me medications, but they would make things worse. So I gave up on them. I do however seem to respond very well to physical therapy.

But enough about me and my whining. I was hoping to find others that have been diagnosed with A-T to share experiences and hopefully provide each other with tips or ways of dealing with this condition.

I am also here you social reasons and would love to hear from others to share stories, or just to talk J

[http://ghr.nlm.nih.gov/condition/ataxia-telangiectasia](http://ghr.nlm.nih.gov/condition/ataxia-telangiectasia)

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**Author:** ![Ozzy](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/ozzy/32/1518_2.png) [@Ozzy](https://forum.livingwithataxia.org/u/Ozzy)\
**Post date:** [July 24, 2015, 5:13am UTC](https://forum.livingwithataxia.org/t/my-first-post/2819/2 "2015-07-24T05:13:08Z")

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Pleased to greet you,Bob! Hope some-one with your type of Ataxia responds..Any cause or brand name ( lol ) don't bother me,now! You'll get some useful info' here, so navigate around the site and we shall LiveWithAtaxia,together..

Take care, **Ozzy ![](https://canada1.discourse-cdn.com/flex027/uploads/ben_ataxia/original/2X/7/7a6ce85a21d360f5dda1ae89a0d8891778e21bc6.gif)**

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**Author:** ![Patsy](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/patsy/32/3_2.png) [@Patsy](https://forum.livingwithataxia.org/u/Patsy)\
**Post date:** [July 24, 2015, 10:38am UTC](https://forum.livingwithataxia.org/t/my-first-post/2819/3 "2015-07-24T10:38:20Z")

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Hi Bob, pleased to meet you ... I am from UK, 72 years old and have CA. Good advice from Ozzy.. I hope someone with A-T comes by soon. x

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**Author:** ![Alan\_T](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/alan_t/32/31_2.png) [@Alan\_T](https://forum.livingwithataxia.org/u/Alan_T)\
**Post date:** [July 24, 2015, 1:24pm UTC](https://forum.livingwithataxia.org/t/my-first-post/2819/4 "2015-07-24T13:24:42Z")

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I hope someone with AT can "appear" that you can connect with.

the UK AT society [http://www.atsociety.org.uk/](http://www.atsociety.org.uk/) is a good resource.

as there is no support group in Wales, I offer as much General Ataxia support my group, can (we have a few members with AT in our Welsh area.

Alan Thomas (confusingly, AT !)