# Navigating ataxia

**URL:** <https://forum.livingwithataxia.org/t/navigating-ataxia/9377>\
**Category:** Support\
**Tags:** stories\
**Created:** [July 27, 2026, 10:35pm UTC](https://forum.livingwithataxia.org/t/navigating-ataxia/9377 "2026-07-27T22:35:29Z")\
**Posts on this page:** 3\
**Page:** 1

<div class="post-metadata">

**Author:** ![KrazyKat](https://avatars.discourse-cdn.com/v4/letter/k/da6949/32.png) [@KrazyKat](https://forum.livingwithataxia.org/u/KrazyKat)\
**Post date:** [July 27, 2026, 10:35pm UTC](https://forum.livingwithataxia.org/t/navigating-ataxia/9377/1 "2026-07-27T22:35:29Z")

</div>

Hi,you can call me Charlie! Not my real name but keeping private info anynomous. I was born a micro preemie at 24 weeks but my parents never told me anything. Now,I’m out of the house and after calling a genetics program,learned I have a lot of stuff going on,including ataxia. Can’t wait to meet you all!

---

<div class="post-metadata">

**Author:** ![henry.n](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/henry.n/32/3544_2.png) [@henry.n](https://forum.livingwithataxia.org/u/henry.n)\
**Post date:** [July 28, 2026, 1:48pm UTC](https://forum.livingwithataxia.org/t/navigating-ataxia/9377/2 "2026-07-28T13:48:39Z")

</div>

Hi Charlie, welcome to the club. You’ll find a lot of information here. Do a search for the topic most interested and ask any questions to the group. We are here for you!

---

<div class="post-metadata">

**Author:** ![Martin\_O](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/martin_o/32/5668_2.png) [@Martin\_O](https://forum.livingwithataxia.org/u/Martin_O)\
**Post date:** [July 31, 2026, 6:15pm UTC](https://forum.livingwithataxia.org/t/navigating-ataxia/9377/3 "2026-07-31T18:15:56Z")

</div>

Hi Charlie welcome to the group, you’ll find out this site is a mine of useful information. I have been living with ataxia for over 20 years. Did your genetic testing tell you which type you have? I discovered mine is sca 48.