For a long time before I was actually diagnosed, I had terrible fatigue. My children were heading to their teens, had loads of extra curricular activities and needed ferrying around. It’s just a blurr now when I look back, I feel guilty for being a ‘wet blanket’ most of the time. But, I didn’t know what was wrong with me. Now, I realise that not all Ataxias follow the same path with symptoms, some symptoms may be regarded as insignificant by a family doctor, and it’s almost a crisis point before a Neurologist gets involved.
Exercise within caperbility, that’s supposed to be everyone’s mantra. Personally, I loath prescribed exercise, I always have since being at school, I never was athletic in any sense of the word Although when you have babies and young children to run around after, that must come under the heading of exercise, and I was always active
In more recent years, I had a phase when ‘going to the gym’ was popular, mind you I only liked certain equipment, and didn’t like to reach the point where I ‘glowed’ ( ladies don’t sweat ) Then we moved house, and took on the responsibility of an enormous garden That itself has been a real workout At first I could pull my weight, and it was mainly done for pleasure anyway But now, potting a plant can be an achievement
So, to ward off stiffness, flabby underarms (ladies) and keep muscles flexible, I’d encourage anybody with ataxia to make the most of any opportunity to move around more. Nobody needs to be an Olympic athlete, just don’t be a couch potato xB