# Rare Disease UK (Survey) Thoughts on Centres of Excellence **URL:** \ **Category:** General\ **Created:** [April 8, 2013, 7:48pm UTC](https://forum.livingwithataxia.org/t/rare-disease-uk-survey-thoughts-on-centres-of-excellence/1520 "2013-04-08T19:48:16Z")\ **Posts on this page:** 3\ **Page:** 1
**Author:** ![Alan\_T](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/alan_t/32/31_2.png) [@Alan\_T](https://forum.livingwithataxia.org/u/Alan_T)\ **Post date:** [April 8, 2013, 7:48pm UTC](https://forum.livingwithataxia.org/t/rare-disease-uk-survey-thoughts-on-centres-of-excellence/1520/1 "2013-04-08T19:48:16Z")
Industry/patient organisation representative?Clinician/researcher? Share your thoughts on Centres of Excellence here: [http://svy.mk/12AHgqW](http://t.co/EkTpBfeVAD "http://svy.mk/12AHgqW") ---
**Author:** ![Beryl\_Park](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/beryl_park/32/5716_2.png) [@Beryl\_Park](https://forum.livingwithataxia.org/u/Beryl_Park)\ **Post date:** [April 10, 2013, 12:48pm UTC](https://forum.livingwithataxia.org/t/rare-disease-uk-survey-thoughts-on-centres-of-excellence/1520/2 "2013-04-10T12:48:21Z")
Hi Alan, A specialist Ataxia Centre is now open in Newcastle. Along with two others I've been accepted as a Volunteer. I hope to be able to offer support, and if asked will pass on my personal experience of the condition. ---
**Author:** ![Alan\_T](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/alan_t/32/31_2.png) [@Alan\_T](https://forum.livingwithataxia.org/u/Alan_T)\ **Post date:** [April 10, 2013, 1:06pm UTC](https://forum.livingwithataxia.org/t/rare-disease-uk-survey-thoughts-on-centres-of-excellence/1520/3 "2013-04-10T13:06:13Z")
GREAT Keep us posted We have a NHS run centre in Cardiff Alan