Spinocerebellar Ataxia

Hi Bron,

If you take the Calcium supplement as directed. No need to worry about anything. Its a vitamin. If that's the issue it will help in days. Oxycotin wont help cramps. You will know its working by being able to stretch without cramping. I can not stretch without my Calcium.

bron said:

Hi Lori, my Neuro hasn't put me on any Meds but I will start taking Vit D and Calcium. I hope it works for me. My local Dr has me on Oxycotin but that is not really helping much.Stay safe.

I have too take vitamin D and calcium for cramps. When I don't take it I have cramps. When I do NO cramps.

Hey - You might want to look up when to take - it’s either calcium or Vitamin D. Mine are combined in the same pill, but one is ineffective if you take with a multi-vitamin; I hold off until after breakfast or like an hour to take it while I take the others before.



Regarding OxyContin, I was put on that after a lung drain/surgery, and I don’t know if it was the wrong dosage or what, but it was a super-hugely-bad trip…I thought that me and everyone else in our recovery “cubes” we’re awaiting to be moved onto a conveyor belt to be produced into clown toys. I’m staying away from that stuff…of course, unless I want to think that I will be made into a clown toy.



Lori said:

Hi Bron,

If you take the Calcium supplement as directed. No need to worry about anything. Its a vitamin. If that’s the issue it will help in days. Oxycotin wont help cramps. You will know its working by being able to stretch without cramping. I can not stretch without my Calcium.

bron said:

Hi Lori, my Neuro hasn’t put me on any Meds but I will start taking Vit D and Calcium. I hope it works for me. My local Dr has me on Oxycotin but that is not really helping much.Stay safe.

I have too take vitamin D and calcium for cramps. When I don’t take it I have cramps. When I do NO cramps.

Hi Lori, I take Oxycotin because I also have CIDP. My GP put me on a pill for nerve pain but I had a bad reaction so he took me off them.

Yea I cant take oxicotin either. To strong for me! Hope the Calcium works for the cramps.

I also have Spinocerebellar Ataxia. I always need potassium, I now take two prescription pills a dat and eat a banana. I still bad cramps. Also, my legs often get icy cold I become cold. If I'm asleep, I wake up cold. Do you experience either problems?

Hi, have you had your heart checked?

I experienced the same long road to get a diagnosis. Days when you have a vicious circle of thoughts do drag you down.

I have a treadmill, which is currently only gathering dust! My short term memory comes and goes regarding reliability.

The support group near me is run by someone next to useless, and as far as I know doesn't actually function at all. These

groups are a lifeline and keep my spirits up!

Onwards and upwards Beryl!
Regards
Barney

Yes, united we stand!

BERNARD PURCE said:

Onwards and upwards Beryl!
Regards
Barney