# Stories from Rare Disease Patients and Families via Rare Disease UK

**URL:** https://forum.livingwithataxia.org/t/stories-from-rare-disease-patients-and-families-via-rare-disease-uk/2507
**Category:** General
**Created:** [November 29, 2014, 12:55pm UTC](https://forum.livingwithataxia.org/t/stories-from-rare-disease-patients-and-families-via-rare-disease-uk/2507 "2014-11-29T12:55:06Z")
**Posts on this page:** 1
**Page:** 1

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### Author: ![Alan\_T](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/alan_t/32/31_2.png) [@Alan\_T](https://forum.livingwithataxia.org/u/Alan_T)
#### Post date: [November 29, 2014, 12:55pm UTC](https://forum.livingwithataxia.org/t/stories-from-rare-disease-patients-and-families-via-rare-disease-uk/2507/1 "2014-11-29T12:55:06Z")

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Stories from Rare Disease Patients and Families via Rare Disease UK

In this section you can find out more about what it is like to live with, or care for someone with, a rare disease. The stories featured are real experiences and will give you an insight into some of the issues these patients face on a daily basis.

Please follow the links below for more information:

- [Patient videos](http://www.raredisease.org.uk/rare_disease_videos.htm)
- [Stories from patients and family members](http://www.raredisease.org.uk/stories-and-experiences.htm)

[http://www.raredisease.org.uk/patient-family-stories.htm](http://www.raredisease.org.uk/patient-family-stories.htm)