Watch live stream: Global Gathering for Rare Diseases
The inauguration of the NGO Committee for Rare Diseases will take place on 11 November at the United Nations Headquarters in New York. This Global Gathering will represent the first time that rare diseases will receive proper consideration as a global public health priority for action within the United Nations, as part of the 2030 Sustainable Development Agenda and Goals.
This special event will bring together knowledge, experts and also testimonials from affected individuals on the ground to promote greater recognition of rare diseases as a priority in global health, research and medical care. Please consult the official programme for information about the speakers and topics throughout the day.