# Unsteady

**URL:** <https://forum.livingwithataxia.org/t/unsteady/2956>\
**Category:** General\
**Created:** [November 28, 2015, 8:44pm UTC](https://forum.livingwithataxia.org/t/unsteady/2956 "2015-11-28T20:44:51Z")\
**Posts on this page:** 16\
**Page:** 1

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**Author:** ![Teresa](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/teresa/32/1795_2.png) [@Teresa](https://forum.livingwithataxia.org/u/Teresa)\
**Post date:** [November 28, 2015, 8:44pm UTC](https://forum.livingwithataxia.org/t/unsteady/2956/1 "2015-11-28T20:44:51Z")

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Does anyone notice when they get out of a warm or hot shower, that their symptoms are worse? I find that I stagger more and my balance and speech are worse

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**Author:** ![refinisher](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/refinisher/32/1755_2.png) [@refinisher](https://forum.livingwithataxia.org/u/refinisher)\
**Post date:** [November 28, 2015, 10:43pm UTC](https://forum.livingwithataxia.org/t/unsteady/2956/2 "2015-11-28T22:43:23Z")

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i dont. i have cerebellar ataxia

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**Author:** ![Teresa](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/teresa/32/1795_2.png) [@Teresa](https://forum.livingwithataxia.org/u/Teresa)\
**Post date:** [November 28, 2015, 11:04pm UTC](https://forum.livingwithataxia.org/t/unsteady/2956/3 "2015-11-28T23:04:30Z")

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So, are there certain symptoms for different ataxia's?

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**Author:** ![refinisher](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/refinisher/32/1755_2.png) [@refinisher](https://forum.livingwithataxia.org/u/refinisher)\
**Post date:** [November 28, 2015, 11:33pm UTC](https://forum.livingwithataxia.org/t/unsteady/2956/4 "2015-11-28T23:33:22Z")

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yes. i dont want to bore you with mine but there are ppl in wheelchairs cause of it. some ppl cant use there hands. it has a lot to do with your motor skills. some ppl cant use there fingers. there gait is off . they get dizzy

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**Author:** ![Teresa](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/teresa/32/1795_2.png) [@Teresa](https://forum.livingwithataxia.org/u/Teresa)\
**Post date:** [November 29, 2015, 1:03am UTC](https://forum.livingwithataxia.org/t/unsteady/2956/5 "2015-11-29T01:03:08Z")

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I have about 5 different symptoms, but yes if you would like to describe yours, I am truly interested in what different ataxia symptoms are beside the one I have, well the symptoms I have

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**Author:** ![refinisher](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/refinisher/32/1755_2.png) [@refinisher](https://forum.livingwithataxia.org/u/refinisher)\
**Post date:** [November 29, 2015, 1:39am UTC](https://forum.livingwithataxia.org/t/unsteady/2956/6 "2015-11-29T01:39:50Z")

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i have cerebellar ataxia . my symptoms are dizziness, wide gait,headaches 85% of time ,squating throws me off balance,cocking head side to side i get dizzy,bending over i get dizzy, turning too fast i get too dizzy,just getting dizzy out of nowhere. from what ive read it all depends how much damage is done to the brain . in my case i took medication for 56 years but it was a side effect but it took that long to show up.hope that helps

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**Author:** ![Teresa](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/teresa/32/1795_2.png) [@Teresa](https://forum.livingwithataxia.org/u/Teresa)\
**Post date:** [November 29, 2015, 4:55am UTC](https://forum.livingwithataxia.org/t/unsteady/2956/7 "2015-11-29T04:55:27Z")

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I too have headaches and get dizzy often. My speech becomes impaired at times, I have an intention tremor, and tremor in my right leg when lifting my leg or pointing my toe. I also have a postural tremor. My gait is slightly wide and staggered most of the time. Its almost like FA ataxia. I can not look up, down or side to side wo getting dizzy and off balance.

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**Author:** ![refinisher](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/refinisher/32/1755_2.png) [@refinisher](https://forum.livingwithataxia.org/u/refinisher)\
**Post date:** [November 29, 2015, 11:47am UTC](https://forum.livingwithataxia.org/t/unsteady/2956/8 "2015-11-29T11:47:01Z")

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motor skills affects a lot of things. its just a matter of how bad they are and what they affect. not every body is is going to have the same symptoms. but they can can worse in time.

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**Author:** ![Beryl\_Park](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/beryl_park/32/5716_2.png) [@Beryl\_Park](https://forum.livingwithataxia.org/u/Beryl_Park)\
**Post date:** [November 29, 2015, 4:00pm UTC](https://forum.livingwithataxia.org/t/unsteady/2956/9 "2015-11-29T16:00:33Z")

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Hi Both:-)  
[www.ataxia.org](http://www.ataxia.org) has various fact sheets about Ataxia and there are answers to common questions 🙂 xB

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**Author:** ![runner](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/runner/32/1513_2.png) [@runner](https://forum.livingwithataxia.org/u/runner)\
**Post date:** [November 29, 2015, 6:52pm UTC](https://forum.livingwithataxia.org/t/unsteady/2956/10 "2015-11-29T18:52:26Z")

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Heat makes my symptoms worse. Maybe try to end your shower with a minute of cold water. That's what I do. It also helps to wake me up too :)

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**Author:** ![Teresa](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/teresa/32/1795_2.png) [@Teresa](https://forum.livingwithataxia.org/u/Teresa)\
**Post date:** [November 29, 2015, 9:19pm UTC](https://forum.livingwithataxia.org/t/unsteady/2956/11 "2015-11-29T21:19:35Z")

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Good idea!

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**Author:** ![sunny8088](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/sunny8088/32/1698_2.png) [@sunny8088](https://forum.livingwithataxia.org/u/sunny8088)\
**Post date:** [November 29, 2015, 11:37pm UTC](https://forum.livingwithataxia.org/t/unsteady/2956/12 "2015-11-29T23:37:20Z")

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Also wet surface & patterned tile in bath room will make it worse

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**Author:** ![Chuckles](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/chuckles/32/1825_2.png) [@Chuckles](https://forum.livingwithataxia.org/u/Chuckles)\
**Post date:** [January 17, 2016, 3:40pm UTC](https://forum.livingwithataxia.org/t/unsteady/2956/13 "2016-01-17T15:40:15Z")

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Hi Teresa, I’m new to this site but have dealt with ataxia for 10 years and have the same trouble. Some days I have just enough energy to have a shower and the get back to bed it’s extremely frustrating.

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**Author:** ![oblidioblida](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/oblidioblida/32/862_2.png) [@oblidioblida](https://forum.livingwithataxia.org/u/oblidioblida)\
**Post date:** [January 23, 2016, 4:46am UTC](https://forum.livingwithataxia.org/t/unsteady/2956/14 "2016-01-23T04:46:45Z")

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I have cerebellar ataxia and yes, showers definitely make my symptoms worse. Now I’m at the point where I need help to bathe, but falling a lot , increased tremors, complete exhaustion, feeling like I was going to pass out ( and actually passing out a couple times ) when showering were some of my first signs of a serious problem.

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**Author:** ![beachbaby12](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/beachbaby12/32/1798_2.png) [@beachbaby12](https://forum.livingwithataxia.org/u/beachbaby12)\
**Post date:** [January 30, 2016, 7:42pm UTC](https://forum.livingwithataxia.org/t/unsteady/2956/15 "2016-01-30T19:42:23Z")

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Some days are better then others! I have trouble walking and am off balance a lot, always falling, some headaches and some dizzy days, when I look down ~~not good or side to side! I have been dealing with it since 2013, all of a sudden could not walk anymore, worked the day before~~ no problem! I want my old life back~~I do go on cruises solo with my cane!

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**Author:** ![Beryl\_Park](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/beryl_park/32/5716_2.png) [@Beryl\_Park](https://forum.livingwithataxia.org/u/Beryl_Park)\
**Post date:** [January 31, 2016, 4:43pm UTC](https://forum.livingwithataxia.org/t/unsteady/2956/16 "2016-01-31T16:43:19Z")

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Some days are definitely better than others! I totally agree:-). Looking up/down specifically worsens things for me too. My symptoms crept on, over a period of years, having this happen abruptly must be particularly disorienting.

But, you’re an inspiration, holidaying solo, enjoy 🙂 xB
