# Your thoughts **URL:** \ **Category:** Support\ **Created:** [March 19, 2024, 11:50pm UTC](https://forum.livingwithataxia.org/t/your-thoughts/9047 "2024-03-19T23:50:04Z")\ **Posts on this page:** 20\ **Page:** 2
**Author:** ![Chas521](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/chas521/32/5683_2.png) [@Chas521](https://forum.livingwithataxia.org/u/Chas521)\ **Post date:** [May 27, 2024, 10:18pm UTC](https://forum.livingwithataxia.org/t/your-thoughts/9047/21 "2024-05-27T22:18:46Z")
Please forgive my rant but Ataxia really sucks! 👎 ---
**Author:** ![ModSupport](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/modsupport/32/3527_2.png) [@ModSupport](https://forum.livingwithataxia.org/u/ModSupport)\ **Post date:** [May 28, 2024, 12:41pm UTC](https://forum.livingwithataxia.org/t/your-thoughts/9047/22 "2024-05-28T12:41:48Z")
Personally, I don’t think you’ve got anything to be apologising for myself. And if you need a safe space to rant, then why not here? Who better to rant to than others having to deal with and manage it all too. People with a lived experience. As I say to many members ‘None of us are here by choice…’ and yea, it sucks. You’ve got no argument from me. Merl from the Modsupport Team ---
**Author:** ![Beryl\_Park](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/beryl_park/32/5716_2.png) [@Beryl\_Park](https://forum.livingwithataxia.org/u/Beryl_Park)\ **Post date:** [May 29, 2024, 7:41am UTC](https://forum.livingwithataxia.org/t/your-thoughts/9047/23 "2024-05-29T07:41:14Z")
🙂 Ok…just to carry on ranting due to frustration… I can no longer drive, my husband can’t …he broke a finger…he has a hospital appointment in the City…our daughter can take him but can’t pick up…a taxi is extortionate…he may have to catch a bus back. I want to go with him but…I don’t manage well with my rollator in the City…and I dread the thought of getting on a bus 🥴 ---
**Author:** ![Issy](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/issy/32/5905_2.png) [@Issy](https://forum.livingwithataxia.org/u/Issy)\ **Post date:** [May 29, 2024, 9:36am UTC](https://forum.livingwithataxia.org/t/your-thoughts/9047/24 "2024-05-29T09:36:05Z")
Hi I can certainly sympathise! Due to epilepsy I have never driven and my husband was diagnosed with alzheimer’s a year ago and had to give up. I’m fine around the village on my mobility scooter but getting to appointments is so difficult. We are very lucky however as a local village car scheme is brilliant and will take us for appointments for the cost of the fuel in the local town there is a Dial a ride scheme which will also transport my powerchair ---
**Author:** ![Issy](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/issy/32/5905_2.png) [@Issy](https://forum.livingwithataxia.org/u/Issy)\ **Post date:** [May 29, 2024, 12:31pm UTC](https://forum.livingwithataxia.org/t/your-thoughts/9047/25 "2024-05-29T12:31:36Z")
Just a thought Beryl. Hospital transport may be available We have used rhe service on several occasions. Sometimes you have to wait a while for the return journey but its worked fine for us - and they will carry rollator! ---
**Author:** ![Chas521](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/chas521/32/5683_2.png) [@Chas521](https://forum.livingwithataxia.org/u/Chas521)\ **Post date:** [May 29, 2024, 4:24pm UTC](https://forum.livingwithataxia.org/t/your-thoughts/9047/26 "2024-05-29T16:24:30Z")
OUCH. Issy may have a suggestion ---
**Author:** ![Beryl\_Park](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/beryl_park/32/5716_2.png) [@Beryl\_Park](https://forum.livingwithataxia.org/u/Beryl_Park)\ **Post date:** [May 29, 2024, 5:46pm UTC](https://forum.livingwithataxia.org/t/your-thoughts/9047/27 "2024-05-29T17:46:51Z")
🙂 Hospital transport …is something to bear in mind. As it turned out, our daughter dropped us off…and managed to return later to pick us up…very kind of her🙂 Then we went for lunch…I was distracted by my young granddaughter…and managed to leave my sunvisor in the restaurant 🙄 ---
**Author:** ![Issy](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/issy/32/5905_2.png) [@Issy](https://forum.livingwithataxia.org/u/Issy)\ **Post date:** [May 30, 2024, 3:23pm UTC](https://forum.livingwithataxia.org/t/your-thoughts/9047/28 "2024-05-30T15:23:35Z")
Hòpe ypu managed to retrieve your visor. I always thought hospital transport only served your local hospitals but not so , its nationwide Scotland to London. Might come in useful for my annual trip upto Liverpool if no family are available ---
**Author:** ![Beryl\_Park](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/beryl_park/32/5716_2.png) [@Beryl\_Park](https://forum.livingwithataxia.org/u/Beryl_Park)\ **Post date:** [May 30, 2024, 3:57pm UTC](https://forum.livingwithataxia.org/t/your-thoughts/9047/29 "2024-05-30T15:57:28Z")
🙂I rang John Lewis last night, and I had a call this morning to say they’d found it 🥳 🤔I wasn’t aware hospital transport could be used ‘out of area’…that’s interesting…or was that a joke 🙂 I know someone here who uses it regularly…and she’s very complimentary about them 🙂 ---
**Author:** ![Issy](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/issy/32/5905_2.png) [@Issy](https://forum.livingwithataxia.org/u/Issy)\ **Post date:** [May 30, 2024, 6:35pm UTC](https://forum.livingwithataxia.org/t/your-thoughts/9047/30 "2024-05-30T18:35:00Z")
Hi Beryl No - no joke. I met a member of the Hospital Transport team whilst waiting outside our local hospital for a friend to pick me up and asked which hospitals were covered in Shropshire. I was told it was nationwide and she often took people to Scotland, London and all areas inbetween. When you get appointment letters from hospitals it usually gives a phone number for transport. Glad you got visor back ok. Take care Issy 🌺 ---
**Author:** ![Chas521](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/chas521/32/5683_2.png) [@Chas521](https://forum.livingwithataxia.org/u/Chas521)\ **Post date:** [July 30, 2024, 4:42pm UTC](https://forum.livingwithataxia.org/t/your-thoughts/9047/31 "2024-07-30T16:42:02Z")
Hope you’re feeling better Beryl. ---
**Author:** ![Beryl\_Park](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/beryl_park/32/5716_2.png) [@Beryl\_Park](https://forum.livingwithataxia.org/u/Beryl_Park)\ **Post date:** [August 1, 2024, 4:41pm UTC](https://forum.livingwithataxia.org/t/your-thoughts/9047/32 "2024-08-01T16:41:08Z")
🙂 I’m good thank you I’ve made progress re having Cataract Surgery…it may be done within 4wks 🤔How are things with you ---
**Author:** ![Chas521](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/chas521/32/5683_2.png) [@Chas521](https://forum.livingwithataxia.org/u/Chas521)\ **Post date:** [August 1, 2024, 9:12pm UTC](https://forum.livingwithataxia.org/t/your-thoughts/9047/33 "2024-08-01T21:12:48Z")
BEST OF LUCK! This Ataxia thing has screwed up my life but I’m doing the best I can. I’m sure we all are. ---
**Author:** ![Chas521](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/chas521/32/5683_2.png) [@Chas521](https://forum.livingwithataxia.org/u/Chas521)\ **Post date:** [September 12, 2024, 3:31pm UTC](https://forum.livingwithataxia.org/t/your-thoughts/9047/34 "2024-09-12T15:31:31Z")
Ataxia does get old at times! 😟 ---
**Author:** ![Beryl\_Park](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/beryl_park/32/5716_2.png) [@Beryl\_Park](https://forum.livingwithataxia.org/u/Beryl_Park)\ **Post date:** [September 13, 2024, 9:10am UTC](https://forum.livingwithataxia.org/t/your-thoughts/9047/35 "2024-09-13T09:10:32Z")
🙂 It is…’same old same old’ on a daily basis but….I’m determined to be ‘upbeat today’… We’re heading into Autumn and the weather here has been very disappointing, but today the sky is a clear blue and the sun shines brightly 🙂 ---
**Author:** ![Issy](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/issy/32/5905_2.png) [@Issy](https://forum.livingwithataxia.org/u/Issy)\ **Post date:** [December 16, 2024, 4:02pm UTC](https://forum.livingwithataxia.org/t/your-thoughts/9047/36 "2024-12-16T16:02:04Z")
Well here it is- nearly Christmas. Year after year we have sent cards to people we haven’t seen for years BUT not any more! I have made a decision to phone many ‘old’ friends for a chat and give extra support to favourite charities - Alzheimers as my husband is a sufferer and of course Ataxia UK. Everyone benefits I enjoy catching up on everyones news and the calls are much appreciated and many promises to keep in touch. Plus its easier to chat than write! In Britain an organisation called the Big Give doubles all contributions for a week and Ataxia UK benefited by over £50,000 from 313 donations - some people are obviously mmch ---
**Author:** ![Issy](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/issy/32/5905_2.png) [@Issy](https://forum.livingwithataxia.org/u/Issy)\ **Post date:** [December 16, 2024, 4:06pm UTC](https://forum.livingwithataxia.org/t/your-thoughts/9047/37 "2024-12-16T16:06:09Z")
Sorry caught 😅 wrong button Much wealthier than us! For all who celebrate Christmas enjoy and all Best Wishes for 2025 to all. Take care ---
**Author:** ![Beryl\_Park](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/beryl_park/32/5716_2.png) [@Beryl\_Park](https://forum.livingwithataxia.org/u/Beryl_Park)\ **Post date:** [December 16, 2024, 7:28pm UTC](https://forum.livingwithataxia.org/t/your-thoughts/9047/38 "2024-12-16T19:28:21Z")
😂 It’s so easily done Merry Christmas 🎄 ---
**Author:** ![Issy](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/issy/32/5905_2.png) [@Issy](https://forum.livingwithataxia.org/u/Issy)\ **Post date:** [December 16, 2024, 7:43pm UTC](https://forum.livingwithataxia.org/t/your-thoughts/9047/39 "2024-12-16T19:43:50Z")
Thanks Beryl 😊 and to you​:sparkles: ---
**Author:** ![Issy](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithataxia.org/issy/32/5905_2.png) [@Issy](https://forum.livingwithataxia.org/u/Issy)\ **Post date:** [December 22, 2024, 12:08pm UTC](https://forum.livingwithataxia.org/t/your-thoughts/9047/40 "2024-12-22T12:08:59Z")
CAN DO AND CAN’T DO We all know that Ataxia changes our lives and personally: I CAN’T dash around the country visiting friends but I CAN speak - or message them on phone more often, I CAN’T go snorkeling on holiday but I COULD go to water aerobics if I could get transport! I CAN’T go out walking but I CAN cover quite a distance on my mobility scooter. I CAN’T ride a bike but I CAN use my reclining exercise bike. I CAN’T do a lot of vigorous activities but I CAN enjoy my knitting etc. And so the list goes on - - - How about everyone elses list? Take care 🌺 🙂 [Previous page](https://forum.livingwithataxia.org/t/your-thoughts/9047.md?page=1) [Next page](https://forum.livingwithataxia.org/t/your-thoughts/9047.md?page=3)