# \#symptoms **URL:** https://forum.livingwithataxia.org/tag/symptoms/3.md [Latest](https://forum.livingwithataxia.org/latest.md) · [Categories](https://forum.livingwithataxia.org/categories.md) · [Tags](https://forum.livingwithataxia.org/tags.md) --- ## [My Ataxia Double Vision Nearly eliminated](https://forum.livingwithataxia.org/t/my-ataxia-double-vision-nearly-eliminated/9016)
**Author:** [@maryseas](https://forum.livingwithataxia.org/u/maryseas)\ **Replies:** 4\ **Last updated:** [December 7, 2023, 9:55am UTC](https://forum.livingwithataxia.org/t/my-ataxia-double-vision-nearly-eliminated/9016 "2023-12-07T09:55:14Z")
This is a big deal! I’ve had Ataxia (SCA unknown) for 23 yrs. One of my first symptoms was double vision after walking the beach for 2 miles. The symptom continued while I was being diagnosed and then for some reason… --- ## [Diet anyone?](https://forum.livingwithataxia.org/t/diet-anyone/8873)
**Author:** [@Lindyluwho23](https://forum.livingwithataxia.org/u/Lindyluwho23)\ **Replies:** 8\ **Last updated:** [January 30, 2023, 12:29pm UTC](https://forum.livingwithataxia.org/t/diet-anyone/8873 "2023-01-30T12:29:53Z")
Has anyone tried something new to try and help with everything? I have been plant based completely for 7 years and gluten free for 6 years I heard that gluten can bring on early symptoms has anyone else heard that? Besid… --- ## [I love Ataxia](https://forum.livingwithataxia.org/t/i-love-ataxia/6652)
**Author:** [@Chas521](https://forum.livingwithataxia.org/u/Chas521)\ **Replies:** 67\ **Last updated:** [February 4, 2021, 8:59pm UTC](https://forum.livingwithataxia.org/t/i-love-ataxia/6652 "2021-02-04T20:59:56Z")
Wow, there are so many things that I love about Ataxia. I love when it snows and especially when it turns to ice. I love possibly falling and not being able to get up because of balance problems. I love trying to sque… --- ## [Swallowing difficulties](https://forum.livingwithataxia.org/t/swallowing-difficulties/8086)
**Author:** [@cross\_eyes](https://forum.livingwithataxia.org/u/cross_eyes)\ **Replies:** 2\ **Last updated:** [September 4, 2020, 6:56pm UTC](https://forum.livingwithataxia.org/t/swallowing-difficulties/8086 "2020-09-04T18:56:54Z")
I saw someone about swallowing recently. They told me some interesting facts that may help others. a) a drink is better than a cough as it reduces build-up of mucus, which causes swallowing difficulties b) drink in sip… --- ## [Has your family adjusted?](https://forum.livingwithataxia.org/t/has-your-family-adjusted/8031)
**Author:** [@Scamom](https://forum.livingwithataxia.org/u/Scamom)\ **Replies:** 6\ **Last updated:** [September 3, 2020, 4:31pm UTC](https://forum.livingwithataxia.org/t/has-your-family-adjusted/8031 "2020-09-03T16:31:21Z")
I am in my early forties, as is my husband, and we have one six year old. I was diagnosed 16 years ago. I recently had to make a paper schedule so my husband and son are doing some chores. So today I’m laying on my couc… --- ## [Am I crazy?](https://forum.livingwithataxia.org/t/am-i-crazy/8019)
**Author:** [@Chas521](https://forum.livingwithataxia.org/u/Chas521)\ **Replies:** 9\ **Last updated:** [July 28, 2020, 1:46pm UTC](https://forum.livingwithataxia.org/t/am-i-crazy/8019 "2020-07-28T13:46:40Z")
When I’m alone and being mobile, my balance and equilibrium is not so good but when I’m with other healthy folks and being mobile, I’m not “normal” but my balance and equilibrium is not too bad. Last night I had dinner … --- ## [Hi i'm Beth, an 27 year old](https://forum.livingwithataxia.org/t/hi-im-beth-an-27-year-old/8001)
**Author:** [@Footymad1](https://forum.livingwithataxia.org/u/Footymad1)\ **Replies:** 18\ **Last updated:** [July 21, 2020, 8:51am UTC](https://forum.livingwithataxia.org/t/hi-im-beth-an-27-year-old/8001 "2020-07-21T08:51:43Z")
Hi my name is Beth, it has taken me a long time to do something like this. I am an 27- year-old living with ataxia with isn’t inherited, mine is that the cerebellum hadn’t developed properly at birth so they call it (cer… --- ## [Muscles in my leg hurts](https://forum.livingwithataxia.org/t/muscles-in-my-leg-hurts/1640)
**Author:** [@randy](https://forum.livingwithataxia.org/u/randy)\ **Replies:** 37\ **Last updated:** [July 19, 2020, 6:56pm UTC](https://forum.livingwithataxia.org/t/muscles-in-my-leg-hurts/1640 "2020-07-19T18:56:44Z")
hi I want to ask, would Ataxia affect the muscles in the legs? I noticed when I'm out walking the muscles In my legs hurt, is it time for me to get a cane to help with stability? --- ## [Steadymouse use](https://forum.livingwithataxia.org/t/steadymouse-use/2522)
**Author:** [@Jan1](https://forum.livingwithataxia.org/u/Jan1)\ **Replies:** 2\ **Last updated:** [July 11, 2020, 7:14am UTC](https://forum.livingwithataxia.org/t/steadymouse-use/2522 "2020-07-11T07:14:51Z")
Hello, I am right-handed and I have tremor in my right hand. Well I work with PC doing some reports In my left hand I do not have tremor so I use this hand for holding a mouse. But nowadays I start to have pains in my l… --- ## [I'm Jakob, an 18 year-old](https://forum.livingwithataxia.org/t/im-jakob-an-18-year-old/7213)
**Author:** [@Jeggert](https://forum.livingwithataxia.org/u/Jeggert)\ **Replies:** 19\ **Last updated:** [July 7, 2020, 12:45pm UTC](https://forum.livingwithataxia.org/t/im-jakob-an-18-year-old/7213 "2020-07-07T12:45:57Z")
Hi, my name is Jakob. It has taken me a bit to actually decide to post anything. I am an 18-year-old living with “Ataxia”. I put that in quotes because rather than inheriting ataxia, mine comes from a fibrillary Astrocy… --- ## [What a time for this to happen](https://forum.livingwithataxia.org/t/what-a-time-for-this-to-happen/7883)
**Author:** [@Chas521](https://forum.livingwithataxia.org/u/Chas521)\ **Replies:** 22\ **Last updated:** [June 28, 2020, 12:03am UTC](https://forum.livingwithataxia.org/t/what-a-time-for-this-to-happen/7883 "2020-06-28T00:03:03Z")
Even though I have SCA I have been fortunate to be able to walk of sorts. The other week I took a fall and I was able to get up not feeling bad except for some feeling of embarrassment. Fortunately no one else was aroun… --- ## [Explaining Foot Drop](https://forum.livingwithataxia.org/t/explaining-foot-drop/7791)
**Author:** [@Beryl\_Park](https://forum.livingwithataxia.org/u/Beryl_Park)\ **Replies:** 0\ **Last updated:** [January 16, 2020, 11:00am UTC](https://forum.livingwithataxia.org/t/explaining-foot-drop/7791 "2020-01-16T11:00:39Z")
--- ## [Possible causes of Ataxia](https://forum.livingwithataxia.org/t/possible-causes-of-ataxia/7811)
**Author:** [@Beryl\_Park](https://forum.livingwithataxia.org/u/Beryl_Park)\ **Replies:** 0\ **Last updated:** [January 26, 2020, 12:15pm UTC](https://forum.livingwithataxia.org/t/possible-causes-of-ataxia/7811 "2020-01-26T12:15:16Z")
What processes can cause ataxia? The pathophysiology of cerebellar ataxias is as diverse as the various neurological and systemic diseases affecting the cerebellum. Broadly classifying ataxias into genetic and non-geneti… --- ## [Breathing problems](https://forum.livingwithataxia.org/t/breathing-problems/2464)
**Author:** [@Koosa44](https://forum.livingwithataxia.org/u/Koosa44)\ **Replies:** 12\ **Last updated:** [June 9, 2020, 4:18pm UTC](https://forum.livingwithataxia.org/t/breathing-problems/2464 "2020-06-09T16:18:10Z")
Hi Everyone~ The Dr. says my Ataxia has affected my diaphragm muscles and I only have 40% of my lung capacity. I use a ventilator machine (called a trilogy machine) and oxygen at night when I sleep. Does anyone h… --- ## [Dizziness..or 'Proprioception'](https://forum.livingwithataxia.org/t/dizziness-or-proprioception/7750)
**Author:** [@JenC](https://forum.livingwithataxia.org/u/JenC)\ **Replies:** 11\ **Last updated:** [June 3, 2020, 9:17am UTC](https://forum.livingwithataxia.org/t/dizziness-or-proprioception/7750 "2020-06-03T09:17:01Z")
Hi everyone. I have ataxia with my multiple sclerosis and wonder if any of you have what I call ‘dizziness’. It’s called a lack of ‘proprioception’ , where the brain doesn’t automatically know where the rest of the bod… --- ## [Types of Neuropathy](https://forum.livingwithataxia.org/t/types-of-neuropathy/7927)
**Author:** [@Beryl\_Park](https://forum.livingwithataxia.org/u/Beryl_Park)\ **Replies:** 6\ **Last updated:** [May 27, 2020, 11:24am UTC](https://forum.livingwithataxia.org/t/types-of-neuropathy/7927 "2020-05-27T11:24:57Z")
https://www.healthdirect.gov.au/neuropathy --- ## [Denied Neuro Appt due to Covid19 Sx](https://forum.livingwithataxia.org/t/denied-neuro-appt-due-to-covid19-sx/7915)
**Author:** [@Scamom](https://forum.livingwithataxia.org/u/Scamom)\ **Replies:** 2\ **Last updated:** [May 14, 2020, 9:48am UTC](https://forum.livingwithataxia.org/t/denied-neuro-appt-due-to-covid19-sx/7915 "2020-05-14T09:48:28Z")
My neurologist’s office called me yesterday to remind me of a regular appointment. The receptionist ran off a long list of symptoms and asked if I had any of them. Yes, I’ve had a fever randomly for months, shortness o… --- ## [Multiple System Atropy](https://forum.livingwithataxia.org/t/multiple-system-atropy/7881)
**Author:** [@cross\_eyes](https://forum.livingwithataxia.org/u/cross_eyes)\ **Replies:** 9\ **Last updated:** [April 2, 2020, 7:35am UTC](https://forum.livingwithataxia.org/t/multiple-system-atropy/7881 "2020-04-02T07:35:34Z")
Just discovered something called Multiple System Atrophy or MSA. Some of the symptoms are familiar in addition to the ataxia symptoms which is mentioned under “Problems with co-ordination, balance and speech”. Does anyon… --- ## [Which nerve](https://forum.livingwithataxia.org/t/which-nerve/7882)
**Author:** [@cross\_eyes](https://forum.livingwithataxia.org/u/cross_eyes)\ **Replies:** 1\ **Last updated:** [March 25, 2020, 6:31pm UTC](https://forum.livingwithataxia.org/t/which-nerve/7882 "2020-03-25T18:31:54Z")
I’m wondering if anyone knows the name of the nerve which gives me an ‘Ataxian Voice’. I tried to find out from internet but as it kept shifting from one website to another, it seemed a bit ambiguous. --- ## [Intro & Question](https://forum.livingwithataxia.org/t/intro-question/7847)
**Author:** [@Jenova](https://forum.livingwithataxia.org/u/Jenova)\ **Replies:** 4\ **Last updated:** [February 29, 2020, 12:29am UTC](https://forum.livingwithataxia.org/t/intro-question/7847 "2020-02-29T00:29:07Z")
I have Cerebellar Ataxia caused by cancer (very rare), been in wheelchair for 15 years. I was real bad couldn’t even talk but got much better after cancer treatment. I still have shakes, strength problems and slur. I ha… --- ## [Massage Chair](https://forum.livingwithataxia.org/t/massage-chair/7840)
**Author:** [@henry.n](https://forum.livingwithataxia.org/u/henry.n)\ **Replies:** 3\ **Last updated:** [February 14, 2020, 9:50pm UTC](https://forum.livingwithataxia.org/t/massage-chair/7840 "2020-02-14T21:50:13Z")
Hi everyone, does anyone have experience in using a message chair? Since I am sitting all day and not being able to due ANY exercises. I know everyone says that you have to keep active and to move but when I try to do le… --- ## [Newly diagnosed](https://forum.livingwithataxia.org/t/newly-diagnosed/7829)
**Author:** [@Jingle1967](https://forum.livingwithataxia.org/u/Jingle1967)\ **Replies:** 14\ **Last updated:** [February 13, 2020, 4:57pm UTC](https://forum.livingwithataxia.org/t/newly-diagnosed/7829 "2020-02-13T16:57:27Z")
As this is my first post, I’d like to apologise in advance if I can’t work out how to respond correctly. Recently diagnosed in December 2019, I’m still trying to get my head around what this truly means in terms of my p… --- ## [Handwriting problems](https://forum.livingwithataxia.org/t/handwriting-problems/1271)
**Author:** [@granny\_h](https://forum.livingwithataxia.org/u/granny_h)\ **Replies:** 59\ **Last updated:** [January 31, 2020, 11:49pm UTC](https://forum.livingwithataxia.org/t/handwriting-problems/1271 "2020-01-31T23:49:36Z")
Does anyone else have problems with handwriting? My problem is not with motor skills as I can still crochet and do other things as I always have, but about the time my balance got really bad I realized I couldn't write.… --- ## [Problems urinating](https://forum.livingwithataxia.org/t/problems-urinating/1538)
**Author:** [@jason\_spencer](https://forum.livingwithataxia.org/u/jason_spencer)\ **Replies:** 12\ **Last updated:** [January 30, 2020, 3:42pm UTC](https://forum.livingwithataxia.org/t/problems-urinating/1538 "2020-01-30T15:42:00Z")
Just recently i've been having problems urinating, sometimes I need to go to the toilet upto 4 times a night.I have an almost constant sensation of neediong to urinate. I often go to the toilet and feel that I have not f… --- ## [Going blind](https://forum.livingwithataxia.org/t/going-blind/7808)
**Author:** [@cross\_eyes](https://forum.livingwithataxia.org/u/cross_eyes)\ **Replies:** 9\ **Last updated:** [January 28, 2020, 6:17pm UTC](https://forum.livingwithataxia.org/t/going-blind/7808 "2020-01-28T18:17:02Z")
Great news guys. I seem to be going blind. Don’t know why, but I’ve got a dry eye too - well maybe two actually. Is this our ever faithful friend ataxia? Yes I’m going to an eye specialist in March (as well as for my toe… --- ## [Incontenence](https://forum.livingwithataxia.org/t/incontenence/7706)
**Author:** [@Muryb](https://forum.livingwithataxia.org/u/Muryb)\ **Replies:** 20\ **Last updated:** [January 19, 2020, 4:46pm UTC](https://forum.livingwithataxia.org/t/incontenence/7706 "2020-01-19T16:46:23Z")
Does anyone else have problems with urinary incontenence and how are you handling it? Drugs for overactive bladder are partially effective but I can’t rely on them. I’m seeing an urologist to see if he has any new trick… --- ## [Develop any pain from Ataxia?](https://forum.livingwithataxia.org/t/develop-any-pain-from-ataxia/7776)
**Author:** [@Chas521](https://forum.livingwithataxia.org/u/Chas521)\ **Replies:** 17\ **Last updated:** [January 8, 2020, 12:36am UTC](https://forum.livingwithataxia.org/t/develop-any-pain-from-ataxia/7776 "2020-01-08T00:36:52Z")
I have - at least I think. My gait has really changed since I developed Ataxia. My right leg swings around when I walk \[instead of going straight\] and now I have sciatica that runs from my butt to the knee. It’s most… --- ## [Gluten ataxia - gluten symptoms after going GF](https://forum.livingwithataxia.org/t/gluten-ataxia-gluten-symptoms-after-going-gf/1294)
**Author:** [@Poppy](https://forum.livingwithataxia.org/u/Poppy)\ **Replies:** 8\ **Last updated:** [December 20, 2019, 6:01pm UTC](https://forum.livingwithataxia.org/t/gluten-ataxia-gluten-symptoms-after-going-gf/1294 "2019-12-20T18:01:25Z")
Hi Can anybody tell me what to expect symptom wise with gluten exposure after going gluten free? I've been GF for about four months now and have had a huge improvement in my ataxia. If I'm exposed to gluten now though,… --- ## [Disastrous 24 hour bug](https://forum.livingwithataxia.org/t/disastrous-24-hour-bug/7757)
**Author:** [@Scamom](https://forum.livingwithataxia.org/u/Scamom)\ **Replies:** 3\ **Last updated:** [December 10, 2019, 2:49pm UTC](https://forum.livingwithataxia.org/t/disastrous-24-hour-bug/7757 "2019-12-10T14:49:02Z")
A few days ago, my five year old got a stomach illness. Throwing up for about a day, and then sporadic diarrhea since then. He dealt with it pretty well. The day after he got it, I started feeling a little gross. One ho… --- ## [Psychological issue](https://forum.livingwithataxia.org/t/psychological-issue/7658)
**Author:** [@Chas521](https://forum.livingwithataxia.org/u/Chas521)\ **Replies:** 6\ **Last updated:** [November 19, 2019, 8:55pm UTC](https://forum.livingwithataxia.org/t/psychological-issue/7658 "2019-11-19T20:55:50Z")
It’s my opinion. I think that the psychological problems arising from Ataxia are more devastating than the physical part. Healthy folks can see the physical part but are just unaware of the other side. You may not be … [Next page](https://forum.livingwithataxia.org/tag/symptoms/3.md?match_all_tags=true&page=1&tags%5B%5D=symptoms)