Ataxia (rare disease warrior / #AlanEveryWhere )

UK = Findacure >Empowerment Advisory Committee

http://www.findacure.org.uk/about-us/#empowermentcommittee

Europe = PSR Orphan Experts Launches Patient Organization Advisory Board

http://www.orphandrugexperts.com/site/news-detail/37-psr-orphan-experts-launches-patient-organization-advisory-board.html

Brilliant Alan, you are my main source for information. In my dark days thinking about Cassie, your input gives me real hope and that’s all I am looking for. Thanks again