I had surgery 6 weeks ago. My balance is much worse than before. I wonder if general anesthetic makes ataxia worsen?
Is there a way for us to talk directly? Maybe on IM or on the phone?
Hi Catherine,I use face timeā¦would that work? or skype (judith4153) jd
I have yet to use IM, but if you clue me in Iād be happy to try it. 
ļø jd
Sure -how can I get your number?!
Is it my phone number you need? (Edited by ModSupport Sept.5)
Didnāt realize you gave m you skype number. Iāll try you Tuesday. Thanks!
I doubt doctors will admit the effects of anesthesia on a patient. I think Iāve had experiences that maybe contributed to the ataxia. Iāve had a few hits on the head. I come out of anesthesia very slowly. Who knows. The encouraging part, for me anyway, has been the path of discovering how to improve my condition. First, I read a lengthy textbook and discovered no, I donāt msā¦no, I donāt have pdā¦and I havenāt had a strokeā¦but my symptoms fit to a t with the text reviewing cerebellar ataxia. That was an encouraging first step in knowing what I DONāT have.
Second, I ordered a book that I saw the title of when I purchased the first textbook. It was written by Heinrich S. Frenkel ~1889 and translated into English in 1902. The title, and it is a mouthful, is: āThe Treatment of Tabetic Ataxia by Means of Systematic Exercise: An Exposition of the Principals and Practices of Compensatory Movement Treatmentā~~like I said, a mouthful!
Perhaps the most encouraging statement in Frenkelās text is: āIt is a well-known fact that courageous people remain masters of their movements much longer than anxious or weakly people, because they fight against the manifestations of the disease with all their might.ā
And thatās what Iām doing! JD
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Was finally diagnosed at 49 (58 now) and cause from cancer but started having symptoms a yr. before. Now since they waited to long Iām in a wheelchair, shake when upset or stressed so set on hands, hard to write so typing is better, squint eyes-dry eyes, now with glasses & miss driving to see my grandkids!!! When cancer was out of control my head shaking was really bad and no longer have prism on my eye to see (for eye shaking) can see better, with cancer was wall walked to walker to wheelchair.
My Mom is my caregiver. We found a Progressive Retirement center that took both of us so nice since Iām consider too young. With this being progressive this is good,
Exercise is GOOD! Easy ones help! We can be slow so pick senior exercises.
I hope you both settle happily in the new communityš
Finding somewhere suitable for progressive longterm needs may be frustrating for many of us, I recall more than one person pondering about this dilemma.
Recently Iāve looked at Care Homes on behalf of an elderly relative with Dementia. Considering weāre virtually awash with Care Homes (here in the UK) I thought it would be straight forward. But because heās also Diabetic, the home needed to provide specific care.
Reading your post set me off on Google If anyone needs information relating to longterm care, I found Continuing Care Retirement Communities (CCRC) encompass a number of aging care needs in the US.
Any further information relating to long term care is always welcome 
xB
I went from the walls to a walker to electric wheelchair, but have a joy stick and doesnāt work for me. I turn to far one way then when I correct I go to far the other way. Like a drunken sailor. haha I am trying to get into a scooter and have the two bars to control me. Was hard going from each step, but am getting use to the Ataxia taking over, and when get down I just think of all the people that are so much worse than me.
I had to finally email in U.S. āA Place for Momā to find right place since Iām so young yet but has 3 stages: Active Retirement, Assisted Care & Memory Care. My son has learning disabilities too so it would be a challenge!!
I love my scooter because itās small & makes tight-turns but on shaky days itās tough to hit the paddles so Iād talk to maker of ur chair first, Iāve realize Iād purfer a chair but I use a Wheelchair in apartment & scooter for longer distance. My scooter is a travel one so comes apart but āPrideā has a chair that comes apart too. I do a lot of equipment searches 
If you donāt mind me asking who made you scooter. I need one that makes small turns to get out of my bedroom. After my husband died I moved in with my niece and her family and I need something to get out of my room, to the bathroom, and to the kitchen. I see it was made by Pride. I have a mobility van for my Jazzi wheelchair, but the joy stick is just to temperamental for me and thought the handlebars would be better. Thanks
Awesome u have a van!
I have a Pride Go Go Ultra X traveler up to 300 pounds, 3 wheels but they have the 4 wheel thatās bigger (more foot room), takes more weigh & more adjustments but nice for doors or small rooms & more stable but still small!
Does anyone know if a 3 wheel is as sturdy as a 4 wheel scooter. I am afraid with my balance so badit will tip when I turn. Does yours tip at all Jenova.
It never tips!!! I was thinking foot room, Iām a size 9 shoe now. It Only bothers me when I exercise because Iād like more room for my feet-itās just me! But donāt worry about tipping, itās actually fun! U can beaned over safely and put feet on floor.
Thanks. Iāll let you know what I get.
I got a Roadster Delux by Spinlife(?) Model 05731 I think that is right. I will get itin 2 to 3 weeks. I went on the Pride sight after you said you got yours their. I got a three wheel.
Awesome so excited for you!!! Iād love a pic if possible. Spinlife is a great shop and good prices! Very dependable!