Do you complete everyday tasks
Or do you have the inclination to leave them
To somebody else?
Regards
Barney
hi, no i don't and yes i rely on some one else
its annoying / frustrating, but if you have support they know you can't manage so don't feel you are putting pressure on them.
i have this condition for the last 8 yrs and my nearest and dearest have helped , so do not feel uncompromised
hope this helps
paul
My daughter has CA and although I would love to complete most tasks for her as I can see her struggling with them. However I don't think this would "help" her in the long run. I feel I should support her as much as possible and give her time to complete tasks as the more I do the more she will become dependant on others.
Take care and be positive on what you can do.
I do what I can and leave what I can't. I am still quite mobile and my daughter is wheelchair bound. Contrasting the two lives causes me to want to do as much as I can for as long as I can.
Best
Paul
i agree with this to a point, but also i don't like other people see me trying to do things myself, they feel just as bad as the patient, the way i look at it, is to go with flow, this disease is continuous and progressive.
paul
Pauline Brotherton said:
My daughter has CA and although I would love to complete most tasks for her as I can see her struggling with them. However I don't think this would "help" her in the long run. I feel I should support her as much as possible and give her time to complete tasks asthe more I do the more she will become deprndant on others.
Take care and be positive on what you can do.
yes , i totally agree
paul
breddersboy said:
I do what I can and leave what I can't. I am still quite mobile and my daughter is wheelchair bound. Contrasting the two lives causes me to want to do as much as I can for as long as I can.
Best
Paul
I make the evening meal.Husband washes up.Have to start earlier and earlier as have to propel the walker with me everywhere and it surprising how much you need balance when you are cooking especially moving around.
Have to rely on myself for most of the day and have to pick up things I have dropped,not an easy task without falling over with the walker on top of me.Have learnt to laugh at myself.
I do complete as much as possible and my husband encourages me to keep going.
However, if time is an issue, I let him do it.
Exercise is the thing that I find most difficult to find time for and always making excuses to myself!!
It would be easy to give up trying especially when fatigued but something clicks in my brain and tells me not to give in.
Patsy
Marie, I also do the cooking for the most part and the cleaning up. It is no problem to stand at the counter and wash dishes as we don't have a dish washer, but I am more and more dependent on myh walker (rollator) to get around and move things back and forth. Husband is doing more and more of the routine stuff because he hates to see me struggle to do things. I still want to do what I can but have resigned myself to letting somethings go undone and letting others do somethings for me.
You need a grabber to pick things up with. I have 2 different kinds, but don't use them like I should. So far if I can reach something to lean on I can bend over to pick up whatever. so far... I can even get down in the floor if I make sure I have something to pull up on. It seems the key is to plan ahead for every move.
Marie Turner said:
I make the evening meal.Husband washes up.Have to start earlier and earlier as have to propel the walker with me everywhere and it surprising how much you need balance when you are cooking especially moving around.
Have to rely on myself for most of the day and have to pick up things I have dropped,not an easy task without falling over with the walker on top of me.Have learnt to laugh at myself.
I was diagnosed with ataxia 10 years ago. Although my symptoms have progressed, I continue to do all I can, although it takes me forever and tires me out. If I have to rest between tasks, I do. Guess I’m determined that way…,ha! I’m trying to jeep my abilities for as long as I can. I figure If I don’t use it, I’ll lose it! ;o)
Hi Bernard - I try to do most things on my own, and ask for help when I need it.
In some situations - most, actually - I despise asking for help; but I know that I need to do so in certain situations; however, in other situations, it seems self-worth, confidence, and self-esteem can suffer when not trying to do something on your own. It’s a fine line sometimes. I try to weigh what’s more important: getting it done or being happy with myself? If both can be accomplished, that’s really the best-case scenario for me.
I try to switch my perspective from that of self-imposed “needy” to being like a team-captain in building a team of experts or specialists - with a dash of hippiness - the idea that “we are all connected through the breath and experience”, and this shift seems to make it easier to swallow what-sometimes-feels-like that pill of asking for help, when I rarely need it, right now, anyway.
For me, part of it is building that team and part of it is knowing, or expecting, for example, myself to take longer in my “new” life and have more patience with myself; however, always keeping the “upside” in mind that I’m more mindful and intentional now vs. being on auto-pilot and just going through the motions. And, another part includes learning to laugh at things that either you or others find annoying.
Like Today we had a lot of shoveling of snow today. I can walk a big snow blower better then shoveling. Really I cant shovel. There are a lot of things other people have to do for me. But I do cook for at least 8 people almost every night. And clean up. Its not easy. There are so many things I cant do. That I force myself to do the things I can do!
brilliant verse,
paul
Judely said:
Hi Bernard - I try to do most things on my own, and ask for help when I need it.
In some situations - most, actually - I despise asking for help; but I know that I need to do so in certain situations; however, in other situations, it seems self-worth, confidence, and self-esteem can suffer when not trying to do something on your own. It's a fine line sometimes. I try to weigh what's more important: getting it done or being happy with myself? If both can be accomplished, that's really the best-case scenario for me.
I try to switch my perspective from that of self-imposed "needy" to being like a team-captain in building a team of experts or specialists - with a dash of hippiness - the idea that "we are all connected through the breath and experience", and this shift seems to make it easier to swallow what-sometimes-feels-like that pill of asking for help, when I rarely need it, right now, anyway.
For me, part of it is building that team and part of it is knowing, or expecting, for example, myself to take longer in my "new" life and have more patience with myself; however, always keeping the "upside" in mind that I'm more mindful and intentional now vs. being on auto-pilot and just going through the motions. And, another part includes learning to laugh at things that either you or others find annoying.
Hi no I don't, I usually have a few tasks I know I can do and really try to accomplish those and the rest I know I can't do I leave because I feel overwhelmed, tired, or I just don't push the limits. I feel like a burden sometimes for the things I can't do that I used to be able to do.
Hi,
I am unable to complete tasks as I used to do a year back. On account of poor balance and knee buckling I find it very tiresome to cook, clean etc. I some how manage to,exercise and as I live in India, getting food is easy. I have accepted my incapacity but do feel terrible to remember the hay days which is a dream now. Stress causes more problems than good, so given up the idea of completing tasks now.
I very seldom complete tasks, I could have 8 tasks on the go. I try to stay with one but my mind constantly has me off to another one.
Result a lot of frustration !!! My tasks aren't left for someone else. I do them or they don't get done.
I have a Occupational therapist who has me keeping a journal and stick to it.
It's great in planning, but I am having a tough time , staying with one.job.
Mary Elena