To see current research news log onto ataxia.org.uk
click on research. click on research news
Can you give a recap, Beryl? What's new and interesting?
Re Research News
A new study reveals the likely cause of unexplained late-onset Ataxia is a mutation in the gene SP47, known to cause hereditary spastic paraplegia.
The University of Oxford announces Friedreichs Ataxia drug discovery project.
Researchers in Newcastle upon Tyne are urgently seeking people diagnosed with Friedreichs Ataxia within the last 8yrs, to take part in a research study.
Collaboration between Pzizer, AtaxiaUK and three Academic Institutions to find new drug therapy for Friedreichs Ataxia.
Horizon Pharma PLC begins Phase3 trial of Actimmune for Friedreichs Ataxia.
And more…
I have just been tested positive for SPG7 /HSP
FA has been tested with a negative result
It is unsure if this as well as idiopathic Ataxia or an additional condition
As far as I know the test was carried out in the lab in Newcastle
Thanks for the information, Beryl! ;o)
I see many of these companies looking for patients to test their drugs
But for many of us its a geographical distance makes it difficult or impossible to take part in these studies. In these modern times where we live in Global economy , can this issue be address or resolved !!
Sunny, this will probably interest you:-)
The National Ataxia Foundation are looking for participants, trials are being conducted into various Ataxias including several into Friedreichs Ataxia.
For further information see www.ataxia.org click on research