Deterioration

Hi all

I enjoyed myself at our local support group but I couldn't help noticing the variety of us all.

Most are in wheelchairs and have FA.

When I started with the group I only had a few balance issues.That was four years ago.

Now I struggle to talk and write and my mobility is virtually non existent.

The others seem to have stayed the same whereasI seem to have deteriorated rapidly.I have been tested twice for MSA but the tests were negative.

Have others on this site gone downhill rapidly. I feel quite discouraged.I have been doing exercises but it just gets more difficult.When I go on this site I do recognise symptoms and don't feel so alone.

I haven't yet had any serious falls but I always stiffen up as if I am going to fall.

Marie