Ii was diagnosed with idiopathic cerebellar ataxia and now MSA type C. Also referred for Botox for dystonia of neck. .any views or comments.
'idiopathic' what is that ? I have CA, caused by MSA type C, they think, lots of maybes and ifs but no definates yet, doctors don't seem to give straight forward answers it seems, whatever it is it aint good is it, can hardly talk right, walk right, or seemingly do anything right except imitate a drunkard ! haha
Seems like a craze.I also was diagnosed with CA.Last two times it was MSA with a cerebellar link .!
I also cannot walk anymore or talk or eat or drink anything without intention tremors.
I am also wheelchair bound…choke a lot. , can’t write, slurred speech, wish they could find a cure…we must raise awareness…I am I london,uk.
A cure would be nice but I am cynical.
Idiopathic just means of unknown origin, not hereditary. The way it was explained to me by neurologist at Mass General is that 25% of non-hereditary ataxia’s turn into MSA, as is the case with me. Hope that helps.
Kathy
Kathy, What is MSA?
Kathy G said:
Idiopathic just means of unknown origin, not hereditary. The way it was explained to me by neurologist at Mass General is that 25% of non-hereditary ataxia's turn into MSA, as is the case with me. Hope that helps.
Kathy
Multiple System Atrophy. More areas of the brain are affected and it usually has a rapid progression rate compared with other types of ataxia, with a shorter life expectancy.
My neurologist says the MSA 'is' the cause of CA, not the other way around.
Does anyone out there have pains in their shoulders/upper arms? The MSA nurse says it is the 'norm' with MSA
:(....
Kathy G said:
Multiple System Atrophy. More areas of the brain are affected and it usually has a rapid progression rate compared with other types of ataxia, with a shorter life expectancy.
pains in left shoulder and radiating down arm is awful, assessing me then better pain relief hopofully
Life exp from diagnosis/showing is 7.5 years in the UK apparently, great eh ? Maybe I should emigrate !
Donnybluewayne said:
pains in left shoulder and radiating down arm is awful, assessing me then better pain relief hopofully
Life exp from diagnosis/showing is 7.5 years in the UK apparently, great eh ? Maybe I should emigrate !
Kathy G said:
Donnybluewayne said:pains in left shoulder and radiating down arm is awful, assessing me then better pain relief hopofully
Life exp from diagnosis/showing is 7.5 years in the UK apparently, great eh ? Maybe I should emigrate !
Maybe I am lucky..dunno. I just have trouble walking, and try to multi task, and that doesn't go well.The neurologist said that I had peripheral neuropathy, but I have no numbness or anything. I just to want to keep walking! I have a Trike that brings me anywhere I want to go...ie: grocery shopping, fast food for my mother. I am a caretaker of my mother who is 83, and I take care of her, along with dealing with this. It is not easy.. I've had CA since 2006.