Drug Repurposing for Rare Diseases 2018 (via Findacure #DrugRepo )

As an events organiser, my advice is this – expect the unexpected, and prepare for it. In my almost-two years here at Findacure, this has included everything from broken down printers, last-minute venue changes, and forgetting the infamous Findacure bell. But there’s one thing that even a supreme organiser (self-proclaimed title) like myself can’t prepare for. And that’s snow!

With the “Beast from the East” looming upon us, threatening to bring much of the UK to a halt, myself and the Findacure team found ourselves immensely worried about how this would affect our biggest event of the year – the Drug Repurposing for Rare Diseases conference. As always however, the rare disease community is not to be underestimated! Despite the difficulties, 100 delegates joined us to discuss advancements in drug repurposing, share progress and ideas, and, importantly, celebrate Rare Disease Day 2018!

Excitingly, for the first time, I had the pleasure of opening the conference, and following a brief welcome from me, our CEO Rick Thompson took to the stage.As an events organiser, my advice is this – expect the unexpected, and prepare for it. In my almost-two years here at Findacure, this has included everything from broken down printers, last-minute venue changes, and forgetting the infamous Findacure bell. But there’s one thing that even a supreme organiser (self-proclaimed title) like myself can’t prepare for. And that’s snow!

With the “Beast from the East” looming upon us, threatening to bring much of the UK to a halt, myself and the Findacure team found ourselves immensely worried about how this would affect our biggest event of the year – the Drug Repurposing for Rare Diseases conference. As always however, the rare disease community is not to be underestimated! Despite the difficulties, 100 delegates joined us to discuss advancements in drug repurposing, share progress and ideas, and, importantly, celebrate Rare Disease Day 2018!

Excitingly, for the first time, I had the pleasure of opening the conference, and following a brief welcome from me, our CEO Rick Thompson took to the stage.

See more at the Findacure blog (text and photos from the day))

http://www.findacure.org.uk/conference-review-18/

:thinking: Drug Repurposing may well be the best way forward. Having previously been prescribed Sodium Valproate, and Carbamazaphine, it’s interesting to learn about their Repurposing :slightly_smiling_face: xB

please checkout the Findacure case studies
http://www.findacure.org.uk/drug-repurposing-case-studies/

Findacure also has a youtube channel which is helpful and the patient portal.
yes its a very popular way forward, with alot of interest from Pharma etc.

** apologies for the blatant plug for Findacure - after all I am part of their patient empowerment committee

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