I have epileptic ataxia 2 and I have been reading about others and find it hlpful to know that some of my problems I have been having is due to my ataxia and others can understand me I’m not alone anymore
My name start am dealing with ataxia 2 as well. Living with ataxia really helpful. I know longer feel alone as well. Reading new helpful ideas of others. How to deal with ataxia . Am so grateful I have a community I can reach out to. We all can share and help one another. Awesome
Although my diagnosis remains as Idiopathic, I have begun to wonder if Episodic might be more ‘on the mark’
I began to realise there was a pattern of sorts. To me, basic ataxia symptoms would be there 24/7, but there would always be a period of time when I felt decidedly worse, and was virtually confined to a sofa Then for whatever reason, the light would come on again, and I was back to being the ‘new me’ for an undefined period of time
My Neurologist acted on this, and requested specific testing. It seems I test negative for current types of Episodic Ataxia, and there are several. But, I remain convinced that I have a link, however tenuous xB
Hi. Do you mean ataxia with epilepsy? My daughter has cerebellum atrophy and she it’s epilepsy seizures also started…
It is documented that some types of ataxia are linked to Epilepsy. xB
Yes, I’ve read about it… about sca2 type… let’s see… sca2 with children it’s only 20 cases documented in the world… would be strange to be 21st