It was very interesting reading about genetic testing ,but is mostly in the US and Canada. I think it is quite a bit different over here in the UK, so I thought I would post a similar topic for this side the pond.
Thank you for that perspective. I live in the US, but am interested in hearing what others think about having the genetic testing (I posted the question about it here). I appreciate what you have to say.
Thank you so much Lit. I appreciate your sharing and perspectives.
I have CA of no known cause. My mother had symptoms but these were not apparent as she also had severe rheumatoid arthritis. It is only on reflection that I realise that she walked liked I do now.
I am glad I didnt know I had ataxia as a child - I was energetic and as a middle child, swept along with the enthusiasm of life. My mother died at 57 [she overdosed] my sister died of ovarian cancer at 67 and my brother has no signs at 66. I shall be 70 this year.
I have one child, a son of 40 who has 3 children and he doesnt want to know if any of them will develop ataxia.
My trigger was an operation to straighten my right foot when I was 59. I am still walkilg with aid of two Fischer sticks and my speech is unaffected.
I attend Dr Giunti's clinic in London every 2 years but my genetic testing was done at Ipswich. My muscle biopsy at Cambridge. I was originally diagnosed in Chelmsford, Essex. We are due to move to Colchester next month so I am spreading the knowledge!
sorry about text changes!!