Hello

General
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Hello All

I am Jacob from Singapore. I was diagnose with Cerebellar Ataxia and my neurologist said after seeing my scan is because my cell in my cerebellar is degenerating This was beginning of 2011 All I was given to take was i Tablet which consist of viamin B1, B6 and B12. and was told could get better or worst In 2012 I worked in India but in Sep 2013 I resigned and came back to SingMain Roomapore as my talking and walking was affected. I was referred to a physiotherapist and speech therapist. Earlier I could walked but over time balance, walking and talking gets worst. At first I use a walking stick in Sep 201Main Room3, In Dec 2013 it was changed to a quarderpret waling stick where the base have 4 stand to enable stabitlity. In March 2014 they suggested a wheel chair when I go out as I do not walk stably even with the quardrepret walking stick and get tired easily. Luckily my wife and chilren have to help Main Roompush my wheelchair or help me stand up and guide me when i sit down. At home now I have to use the walking frame so I won't fall. I have to walk slowly even with the frame Sometimes not stable especially if sitting in sofa and getteng p after a long while. Sometimes i fall back on sofa when standing up because of balance I have to stand slowly holing soaf and pushing myself up and quiclkly holding the frame.

I am also seeing a Urologist now since 2 years ago because of enlarge bladder. But I think it is because of CE that i also have enlarge badder. I get up at night in the past 5 times for urination and my sleep neurologist has prescibed medication where I must take at night so I do not get my sleep disturbed. Now I only go twice at night. I have also been given Clonazapam which I must take at night as I used to act out my dreams in the past or talk and laugh in my sleep when I was working. Perhaps because becuse of stress I think but now that i retired or stopped working and I am onlly 56 years old All the act out in my dream or falling off from bed has stopped

However I have to take Senna tablets every day and Lactolose to help me pass motion as I was a daily person in the past. Otherwise can't pass. This year I feel have to force abit and even if I pass motion Still feel like it again sometimes 5 mins, immediately half an hr etc. My neurologist says it maybe because if the muscles. And I have to sit in toilet half an hr to 45 mins Sometimes nothing sometimes abit happens even if the urge to pass is felt the 2 time I have to go few times a day and it is not same time of the day. Sometimes later in morning At times in late afternoon. Somtimes I get headaches and have to take panadol extra . Now more frequent. Somtimes I have to take 2 days than slight headache goes. Not sure if it is because of passing motion or CE. Even if I eat abit I feel full and can't eat alot now. So eat in smaller portions and drink water or eat slower as tend to choke more as I notice

On the passing motion side, does anyone faced the same issue that I have and what do you do?

Brgds

Jacob

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I've never heard of bladder issues. Ataxia usually affects balance, eyes, hands, tremors, speech.

I would recommend physical therapy (ask for the type that works with neurological patients not orthopedic). I have exercises to strengthen my core (your neck to your butt), I also take a swimming class for people with health issues. Exercise, whatever you can do, seems to help.

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Thnks Kay. What abt passing motion. I have to take medication because of muscle

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Hi Jacob, I have the same problem. Senna very day or so. I agree, those muscles have stopped working. I also eat less.

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Thanks Linda. I have to take senna n lactalose everyday. Only after taking that I can pass motion the next day but still have urge whole day. Sometimes try again later can. Sometimes cannot. But have to sit in toilet 30 mins or 45 mins. Do you have this or take anything else. Rgds jacob

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Hi Jacob. No I do not have any of the other problems. It does appear that for some of us, along with legs and arms not working, we have other bodily functions that no longer work. Senna works but I have to use it. I plan to speak to my doctor about this. I will post if I learn anything useful. Good Luck.

Jacob Nicholas said:

Thanks Linda. I have to take senna n lactalose everyday. Only after taking that I can pass motion the next day but still have urge whole day. Sometimes try again later can. Sometimes cannot. But have to sit in toilet 30 mins or 45 mins. Do you have this or take anything else. Rgds jacob
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Have urge of passing bit both are laxatives bit helps abit. The feelinig is still there

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Thanks linda. Let me know if your doctor suggest anything. How long already have u been taking senna now. It is 2 tablets every night right. My endoscopy doctor told me to take forlax after taking senna n lactalose once I pass n still have urge. But both lactalose n forlax r laxatives… I have taken. See reply above