I have been looking through the site. I really don't know if I am at the right place or not.
I have been looking for some similar experiences and I think I just need to describe a little and ask.
For the last decade or so, I have been having migraines, and in the last 3 years, they have become chronic, about 2-3 a week. When I don't have a migraine, I have head pain, on the left side. My migraines are accompanied by vertigo, dizziness, nausea, left ankle,leg, hip, back, shoulder, neck pain.I have been going to a migraine specialist, but no drugs he has suggested have helped, leading me to wonder if there is a different answer. 4 years ago, I also discovered I have cerebellar atrophy. Over these years, I noticed I have to balance when I carry things, or I fall. Where I live it can be very windy, even wind can blow me off balance. I tend to list when I walk, especially to the left. When I stand, or get out of the car, or turn, I have to do it slowly, or lose balance. I cannot walk heel to toe without someone near to catch me.Lately, in the last year I have noticed I can't swallow sometimes. And other times I choke on my saliva.
My neuro doc suggested it could be genetic, I talked to my siblings, I found out some of them have been having balance problems, to the point of injury. I was tested, and am waiting results.
Do you think I am looking in the right place?
I saw an interesting discussion about ataxia being a symptom not a diagnosis