I'm Manja with non genetic CA, cause undetermined

Hi Manja :slightly_smiling_face: Happy Birthday for next week :partying_face: :bouquet:

Yes…it isn’t easy we do need a lot of patience…especially when mobility is severely challenged. My muscles are becoming weaker…it’s taken along time but I expect this is also age-related, I’m 74.
After I fractured my ankle it was 5wks before I could safely put weight on it…I can’t imagine how difficult it’s been with a broken hip.
Like you..I find my ataxia is progressing to the extent that I’m unable to manage outdoors without a rollator. I’ve used a lightweight type for several years, but now find a heavier model is much safer..I’m trying to stay mobile for as long as practical.

Weights added to the bag on my lightweight rollator have helped with it’s stability. And I also have a ā€˜Trionic Veloped’..which has been very useful.

Hello Beryl,

It feels as if we are twins! Same age and I also have a Veloped Trionic. Plus an ultra light-weight carbon walker (Acre). They both have their advantages. Yes, the Trionic is more stable, but far more difficult to manoeuvre in a car, shops and public transport. However, like you, I can’t go out anymore, not further than a 2 minute walk. The Acre is easy to take along with me, but less stable. It works however, when taking things slowly and concentrating.
I’m sorry to hear about your ankle. I guess we all get worse and worse, slowly but surely.
I’ve pretty much accepted the limitations that Ataxia brings me: Balance and movement issues, fine motor skills, bad writing and typing, slurred speech, choking on fluids, constipation, sleeping problems and hot flushes etc. However, what I am struggling with most is brain fog. I’m worried about losing my cognitive abilities! They are the main thing I have left….

Take care,
Manja

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:slightly_smiling_face:I sent you a friend request on Facebook

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