Make your voice heard in the consultation on the Welsh RareDisease Implementation Plan

Make your voice heard in the consultation on the Welsh RareDisease Implementation Plan -

Welsh Implementation Plan for Rare Diseases

We have issued our draft Implementation Plan for consultation for Rare Diseases.
Start of consultation:28/02/2014
End of consultation:23/05/2014
This sets out our response to the commitments in the UK Strategy for Rare Diseases published in November 2013.
That Strategy was agreed by the governments of the four countries of the UK. It set out 51 commitments to improve information, services and research in relation to people with rare diseases.
The draft Implementation Plan has been prepared by a Task Group. That brought together the NHS in Wales, the Welsh Government, the third sector and the research community. The Task Group has also worked with those preparing plans in the other UK countries.

The Welsh Implementation Plan is out for consultation, open until 23 May 2014. It’s an opportunity for patients and patient organisation representatives to have their voice heard by the Welsh Government so please do take this opportunity to respond. Further details about how to do this can be found here.

The Welsh Government in collaboration with Rare Disease UK is hosting a consultation event to canvass the views of patients, families and patient organisation representatives with an interest in the Welsh Draft Implementation Plan for Rare Diseases.

The event will take place on 14th May between 1.00pm -3.30pm in the Heath Hospital Campus, Cardiff. Lunch will be provided for delegates from 1.00pm and the event will start promptly at 1.30pm. Please email Emma, our Development Officer in Wales,
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Thanks, Alan!