My past couple of days has had me so upset. I don’t understand why I totally mixed up appointments. I gave out wrong dates of information to a couple of people. Also told a couple people the wrong dates to a function that is not for until next month. What in the world is happening to me lately To make things worse I now have my balance pulling me back. It would be a bad fall back. I am getting to be afraid this will happen soon. The only choice for my safety is to get and use a wheelchair. Then I show up for my yearly mammogram. I felt she was mangling me so bad with pain I burst out sobbing telling her to stop. I couldn’t put up with the pain any longer. I have never ,never sobbed so hard over a mammogram before. I did n not overreact in no way. Pain is Pain. I requested another person to finish. Oh my gosh. I didn’t feel no pain what so ever.
So I am sorry but I am overwhelmed and down which is not me. I just had a really bad day. Not at all looking for pity just venting is all. Thanks for listening. I am done now time for bed. Have a great nght!
Vickie, it’s far better to give voice to this sort of thing, rather than have vicious thoughts go round and round in your mind. I for one have experienced similar ‘irrational’ times:smirk: It doesn’t seem strange to me hearing about this.
With SCA, it seems emotions and logic can be just as much affected, it’s not always physical.
Although my particular path with SCA has been slow, it has been challenging, I seem to have experienced quite a variety of symptoms associated with ataxia😏
For a while now, it’s crossed my mind that I would function better sat in a wheelchair🤔 But it’s a big decision to take when you are fortunate enough to still walk. When I’m on my feet, so much multitasking is involved, decision making is exhausting. Sitting down, I can concentrate much more easily, I almost feel relaxed🙂
This site exists to give support:slightly_smiling_face: I hope you enjoyed a good night’s sleep xB
Beryl…Thanks for your reply it was just that within the month so far I have learned of to much problems with my stability plus the fact that every time I cook I am always flipping things so much due to the numb hands. seems to be such a mess to bother anymore. It is nothing to think I should be able to get an egg out of my fridg. but no I usually drop it because it slides out and I can’t feel it is sliding. Within 11/2 months my feeling in my fingers and hands has dwindled away. I am between you and I getting nervous that things are happening a bit to fast. my time for having to use a wheel chair is coming to fast. I am not feeling good about that. Even when I type I have to go back over it and correct many mistakes. I never use to. Then the other day I had called my house to leave a message for my husband and I couldn’t believe how I could not understand half of what I spoke. I wondered why I was repeating things to people. I just kept thinking people must have hearing problems. But I guess it is me. I’m so sorry to dumb my situation on you Beryl. I am such a positive type that I am surprised at how I am reacting. I feel so overwhelmed with everything, I feel scared inside that I will end up a complete vegetable really soon. The thought is racing through my mind of how much of a burden I will be to loved ones. I keep telling myself to forget it as not one person can help me or any of us. I still keep saying it is what it is. I have the need to talk to my daughter about what I feel and what I want done if something were to happen to me. But, then decide not to so as not to upset her life. She is so buy with her 5 boys at this time. I want her boys to have a normal stable life. I guess I have revealed how life is hitting me hard right now and I feel like it’s waking up my thoughts a lot and there are no answers to what I have to deal with. Then my thoughts are having a concern for many others facing the same problems. So many questions with really no answers to them.
Well Beryl thanks for listening and I do understand you cannot help me but it is good to write how I feel about what’s going on. Thanks so much for the listening to me.
I sure hope you enjoy your day.
Vicki, I think you would benefit from actually meeting and talking to other people who experience ataxia themselves. No-one understands as well as another ataxian😏
If you’ve never considered it, think about joining a ‘local’ ataxia support group🙂 You may very well be put in contact with another person who lives near you and is very keen to exchange experiences, face to face🙂
Click on the following link, if the location isn’t suitable, log onto www.ataxia.org and look along the headings on the home page for Support Groups🙂
Hey, we all have bad times and feel like things are things are awful. Having a good rant like this is necessary and it can help to vent your feelings - maybe you feel better for having done so? Take time out and give yourself a break.
