NORD eNews January 2015

Rare Disease Day is February 28, 2015

With one month to go until the biggest day of the year in the rare disease community, there are many ways to get involved. Visit the Rare Disease Day US website to find out what is being planned in each state and to list your events.

Read about the more than 30 State House events currently being planned. View proclamations and resolutions that advocates working with NORD have obtained. Download resources that will help you plan and publicize your activities, including logos, customizable press releases, photos, infographics, videos, and more.

NORD Awards New Grants for Rare Disease Research

The latest grants continue NORD’s 26-year tradition of promoting life sciences research in rare diseases to advance safe, new treatment options for rare disease patients and their families. Throughout its history, NORD’s research program has administered more than 150 grants. Grants are made possible by allies of the rare diseases community that have generously supported research in rare diseases by donating to a NORD research fund. More.

full article