You will wish to be aware that the Minister for Health and Social Services has issued a Written Statement: Individual Patient Funding Request (IPFR) Process - Next Steps.
Written response can be read here
http://www.assembly.wales/Ministerial%20Statements%20Documents/Individual%20Patient%20Funding%20Request%20%20(IPFR)%20Process%20–%20Next%20Steps/dat20141105-s.pdf#search=ipfr
http://forum.livingwithataxia.org/photo/14661130665-19912527c4-c?context=latest