Rare Disease UK newsletter

[Alan_T]

Dear Alan,

Today's newsletter includes: Launch of patient experiences report “The rare reality – an insight into the patient and family experience of rare disease” Rare Disease Day Parliamentary Receptions Genetic Alliance UK are helping patients form support networks Your views on specialist home-care rare disease nursing Congratulations and thank you to Philippe who climbed Mount Kilimanjaro to fundraise for us! Genomics England Patient Participant Panel Do you know your rights when it comes to outpatient appointments? ‘Drug repurposing explained’ - Webinar Online webinars on genetics for primary care professionals: general practitioners, practice nurses, health visitors and midwives. The genomics era: the future of genomics in medicine EURORDIS: member consultation on the future of orphan medicines - Webinar http://us8.campaign-archive1.com/?u=144770e74471b2695c19422dc&id=fe312c92e6&e=c6b0a85c82 http://www.raredisease.org.uk/index.htm

[sunny8088]

Thank you for info.