Rare Disease UK receives high commendation at the Communiqué Awards

Rare Disease UK receives high commendation at the Communiqué Awards

Genetic Alliance UK's initiative Rare Disease UK (RDUK) has secured the Highly Commended award in the Payers/Policymakers category at the Communiqué Awards 2014.

The high commendation was received for RDUK's successful campaign to secure a UK Strategy for Rare Diseases for the 3.5 million affected by rare diseases in the UK who need health services that deliver better health outcomes.

Since Genetic Alliance UK launched RDUK in 2008, the campaign has brought together and mobilised the rare disease community through RDUK's membership. We have sought to empower the rare disease community to secure political support to increase the quality, content and the development of the UK Rare Diseases Strategy. Oyur policy and public affairs work prompted the four UK governments to work together to produce a single comprehensive UK Rare Diseases Strategy launched in November 2013.

This is what the judges had to say:

"This campaign had some highly impressive achievements, at a time when everything would seem to have been working against them. To have engagement and traction with 250 patient groups and all four jurisdictions of the NHS is an indication that they've got it right and are doing all the right things. 2013 saw the culmination of outstanding work over a number of years. They thoroughly deserve this high commendation."

read more at http://www.geneticalliance.org.uk/communique.htm


Bravo to our friends in the UK for such great accomplishment. Hopefully, other countries will follow their example to bring help to rare disease sufferers.
Thank you Alan for letting us know.