Rare Disease UK (Survey) Thoughts on Centres of Excellence

Industry/patient organisation representative?Clinician/researcher? Share your thoughts on Centres of Excellence here: http://svy.mk/12AHgqW

Hi Alan,

A specialist Ataxia Centre is now open in Newcastle. Along with two others I've been accepted as a Volunteer. I hope to be

able to offer support, and if asked will pass on my personal experience of the condition.


Keep us posted

We have a NHS run centre in Cardiff