I’m a caregiver, not an Ataxian, but my restless leg syndrome drives me crazy. At different times I’ve tried Tylenol, support hose, and liniment Nothing works for long. Has anyone found relief through exercise, more calcium or anything like that? Does it have anything to do with varicose veins? Why does it strike when you’re in a sleepy state (and not just in bed)? BTW does the term “Ataxian” remind anyone else of the Star Trek species “Cardassian”. A somewhat rhythming name is definitely the only common feature, since I just spent a few moments in research.
My neurologist prescribed Mirapex to help with RLS. The most annoying symptoms, (tingling, "creepy-crawlies"), have calmed down with time, and just the leg/foot jerk remains when I lie down. My problems with restless leg was diagnosed first before I started complaining of Ataxia symptoms.
Yeah.my right leg a mind of its own. Pownes. I need a gal who can sit on my legs. And bounce.
it’s like a deep that your leg keeps on hurting all the time. and you just want somebody who could sit on your legs. I would do that for my girl. But you need somebody who could sit on your legs and navy kinda like, bounce on your legs. Or something like go up and down it is a pain that is an aching kind of thing. That new you want somebody who could just sort of go up and down I love you and tell you that is but you don’t just go up and down.
Put me on the list - yes.
Oh, yes, I have restless leg syndrome. It actually was diagnosed before the diagnosis of Ataxia was made. I am taking Mirapex to help calm it. The worst symptoms are gone now. No more creepy crawlies, just a constant movement of one leg when ever I get into bed.
My neurologist says I don't have SCA, but simply Cerebellar Ataxia. The tests are too expensive for me to go further into investigating more about this.
I have cerebellum ataxia and restless legs. I wondered if there was a connection, but guess there is. I also take pramipexole.
I have Cerebellar Ataxia and Restless Leg Syndrome. I take Gabapentin which seems to be working.