Has any one been treated with Rituxan? My nerologist is considering changing my meds from ivig ( I’m becoming immune) to rituxan . I’d love your feedback , I am currently researching this drug, Thanks!
Do you have ataxia?
Why yes, look up my profile for all the details …
Miguel, to check a member’s profile, click on the picture or butterfly located left of the post and then scroll down to read the profile…
Dear Displaymom, I read your profile and see you have Cerebellar Ataxia. I was diagnosed with Sporadic (idiopathic) Cerebellar Ataxia (unknown cause) eleven hears ago, although I had small symptoms starting about eight years before diagnosis. I'm 60 years young and have my ataxia symptoms 24/7. No one in my family, as far back as we know, has/had ataxia except me. My ataxia has progressed. If you don't mind my asking, why do you have ivig therapy, as my neuro has never suggested it? No, I've never been offered Rituxan. ;o)
Ivig reduces my symtoms temporarily , I recieve a treatment every 2 weeks intervinisly.
Dear Displaymom, Thank you for answering my question...,;o)
I haven’t used either of those treatments, but I am very interested in hearing your experience with them. My cerebellar ataxia also seems to be immune system related, and one possibility they were looking at was Paraneoplastic syndrome, which ivig is used for frequently, and I test positive for rheumatoid arthritis markers ( as well as having symptoms ). I’m sorry I can’t be of more help.
My daughter was prescribed ivigs however they had little effect. One of her inflammatory markers are always raised therefore the neurologist and the immunologist got together and considered rituxan, however it was felt to invasive and my daughter only has very acute episodes twice a year or so. It was therefore felt more appropriate to commence her on CellCept (Mycophenolate monetize, this is also an immnosuppressant). It’s hope this will prevent her immune system going into over drive when she has an infection. She has only been on this drug for a month so its hard to tell if there is any results. Good luck to you in your research.
Dear Displaymom, Please correct me if I'm wrong, but I thought ivig treatment was used for someone with ataxia and auto-immune disease. If this is true, ivig treatment would be of no help to me, as I don't have an auto-immune disease. If you don't mind my asking, do you have an auto-immune disease and cerebellar ataxia, as I read your profile and if so, you don't mention it. I'm not being nosey, just trying to get answers that may help my ataxia. Of course, if I'm asking for too much information and your uncomfortable, please forgive me..., ;o)
The auto immune disorder. Causes my ataxia, hope this gives you a clearer picture ( I make to many antibodies.
Dear Displaymom, Thank you! Now I understand and appreciate the information! ;o)
Please keep us posted if you go on the Rituxan. It sounds like we have some similarities and I am always looking for anything that might help. Good luck!