I was diagnosed with SCA 35 last year after testing positive for the condition and am only 29. I don’t know anything about this one as my specialist has told me that it’s a rare case for someone like me. I would like to know more and what am going to experience. He has said it is more than likely its inherited so he’s asked me to speak to my relatives and see if they could have a blood test done to see if it is genetic. could anyone give me any advice?
Found this: Orphanet: Spinocerebellar ataxia type 35
FYI: Each case is individual so what you read may not be yours.
Sometimes people can go years with a diagnosis of Idiopathic Cerebellar Ataxia, and as research progresses they’re suddenly given an exact diagnosis… Neurologists are renowned for ‘withholding’ information about symptoms and progression, possibly because it can be difficult to predict it exactly… So, bear in mind that most information about ataxia is ‘general’…there will always be exceptions, and not everybody follows the exact same progression.
Generally speaking, the most important advice with any of the ataxias is to keep going with any exercise you enjoy, just keep moving your muscles
And, your Neurologist may recommend trying the following diet…
Gluten-free diet improves symptoms in a SCA35 patient, suggesting SCA35 is potentially treatable with dietary modifications. The finding highlights that mechanisms of SCA35 and gluten ataxia converge at TG6-gluten interaction, providing a convincing intersection between genetic and autoimmune ataxias.
Copied from https://n.neurology.org