I have been diagnosed with cerebellar & cerebellum ataxia. the brain mri is showing the cerebellar shrinking. ive had blood work done [not back yet] . what can I expect from this? will it get better? will I be able to work again? I don't go back to my dr. till 10/2/15. will my symptoms go away? what causes the shrinkage in the brain? things aren't getting better. I'm new to all this. haven't asked my dr. these questions yet. just started going to here
thanks
refinisher
Really feel for you starting out on this journey. I am 72 years old and still walking with aid of rollator but in good general health so I hope that encourages you to stay positive.
It is unlikely that the shrinkage of your cerebellum can be attributed to anything in particular but there are a few types that can be treated.
The main thing is to live healthy lifestyle with good diet and exercise and talk to others in similar position for support and understanding.
xxx
hi there
Patsy knows what she is talking about. Exercise is sooooooooooo important so don't put it off :) And keep in touch with this website. If you're on Facebook look for Ataxia there. There are some lovely people around. And yes ask for a referral to an Ataxia Clinic. Good luck and please let us know how you are getting on
love and light
Sarah-Jane
Patsy said:
Really feel for you starting out on this journey. I am 72 years old and still walking with aid of rollator but in good general health so I hope that encourages you to stay positive.
It is unlikely that the shrinkage of your cerebellum can be attributed to anything in particular but there are a few types that can be treated.
The main thing is to live healthy lifestyle with good diet and exercise and talk to others in similar position for support and understanding.
xxx
thanks patsy
Patsy said:
Really feel for you starting out on this journey. I am 72 years old and still walking with aid of rollator but in good general health so I hope that encourages you to stay positive.
It is unlikely that the shrinkage of your cerebellum can be attributed to anything in particular but there are a few types that can be treated.
The main thing is to live healthy lifestyle with good diet and exercise and talk to others in similar position for support and understanding.
xxx
thanks sarah. I don't use facebook.i wont go back to dr. till 10/2/15
Sarah-Jane Squire said:
hi there
Patsy knows what she is talking about. Exercise is sooooooooooo important so don't put it off :) And keep in touch with this website. If you're on Facebook look for Ataxia there. There are some lovely people around. And yes ask for a referral to an Ataxia Clinic. Good luck and please let us know how you are getting on
love and light
Sarah-Jane
Patsy said:Really feel for you starting out on this journey. I am 72 years old and still walking with aid of rollator but in good general health so I hope that encourages you to stay positive.
It is unlikely that the shrinkage of your cerebellum can be attributed to anything in particular but there are a few types that can be treated.
The main thing is to live healthy lifestyle with good diet and exercise and talk to others in similar position for support and understanding.
xxx
Ataxia is ..... incurable, gives you whatever symptoms it wants and progresses at whatever rate it wants. It can affect your gait, speech/swallowing, vision. and fine motor. Even within the same type symptoms can vary. There are about 18 different types and still counting. It can be hereditary or ideopathic. Sometimes symptoms can be treated.
Exercise is extremely important. There is no "standard of treatment" for people with ataxia but PT seems to help. Go to physical therapy and occupational therapy and they can help you, just make sure the physical therapist deals with neurological conditions not orthopedic..
Some people think that you should go to an ataxic clinic. I don't know why? My family doctor does everything and works with me. If he can't do something he refers me elsewhere.
This website is great just to vent or get info.
There is a lack of information available about Ataxia, both from the internet, and specialists, I too have suffered cerabellar atrophy, which specialists say is "Ideopathic" (no known cause) That can apparently happen, though it could be the specialists way out of spending money (your guess is as good as mine on that one) Manual work (which is what I`ve always done) is out of the question. According to all accounts, it will just get steadily worse, but don`t just listen to all the doom `n` gloom, fight against it, experiment, and find what works best for you. (weight training and regular excercies kept me out of a wheelchair, when it threatened to put me in one) There is no known cure, but research done by Ataxia U.K. is reckoning to find one by 2020, I hope they do. If you`re new to all this, it can seem a bit scary, but you`ve come to the right place for support. Good luck, and keep fighting, you`re not alone.
bloodaxe said:
There is a lack of information available about Ataxia, both from the internet, and specialists, I too have suffered cerabellar atrophy, which specialists say is "Ideopathic" (no known cause) That can apparently happen, though it could be the specialists way out of spending money (your guess is as good as mine on that one) Manual work (which is what I`ve always done) is out of the question. According to all accounts, it will just get steadily worse, but don`t just listen to all the doom `n` gloom, fight against it, experiment, and find what works best for you. (weight training and regular excercies kept me out of a wheelchair, when it threatened to put me in one) There is no known cure, but research done by Ataxia U.K. is reckoning to find one by 2020, I hope they do. If you`re new to all this, it can seem a bit scary, but you`ve come to the right place for support. Good luck, and keep fighting, you`re not alone.
yes im al;l new to this. i am finding out that your right about finding info on this site. it is a good place to come to.im in the early stages of it [i guess] . will fing out more in oct. from my dr. thanks