Welcome to Living With Ataxia, a Ben’s Friends Patient Support Community.

This community provides a forum where patients and caregivers can freely and independently share their thoughts and experiences with regards to their treatment and care. We believe that you can be empowered by connecting with fellow patients just like you.

We value your health and well-being and we look forward to helping you on your journey to a fuller life.

Now are you ready to connect with others here? There are some simple things you can do to get started. Complete your profiles so we know a little bit about you. Better yet, start a thread and introduce yourself so that we can all welcome you.Add a photo or avatar to reflect your personality. Check out the forums and add your two cents. You are not alone anymore. Ask for help, and help others.


What is LivingWithAtaxia.org?

LivingWithAtaxia.org is a dedicated patient-to-patient support community for patients, caregivers, families and friends affected by Ataxia. LivingWithAtaxia.org is powered by BensFriends.org, a network of online patient support communities for rare diseases, and is run by volunteer moderators who have been affected with Ataxia.

Who can join LivingWithAtaxia.org?

If your family has been affected by Ataxia, consider LivingWithAtaxia.org your second home. LivingWithAtaxia.org, as well as the rest of BensFriends.org’s patient communities, is free for members to join.

What is BensFriends.org?

In 2007, Ben Muñoz suffered a rare form of stroke caused by an AVM. He was unable to find the support he needed during the most difficult time, so he created an online support community AVMSurvivors.org to connect with others like him. AVMSurvivors.org led to the founding of BensFriends.org, driven to provide online patient support communities for people living with rare diseases.

BensFriends.org is a network of patient communities for people living with rare diseases. Launched in November 2007, BensFriends.org provides valuable patient support by creating and running compassionate, responsive communities. BensFriends.org maintains dozens of patient communities and has changed thousands of lives.

You can learn more about BensFriends.org at http://www.bensfriends.org, or watch one of our videos at