If It were possible to return to normal for the next 24hrs and be Ataxia free, would you take it…
I’ve often thought about this…and my immediate thought is YES OF COURSE…it’s what I’ve always hoped for, so why not…
But, on the one hand it, although it would boost me psychologically, would returning to my ‘adjusted state’ be too much to handle…
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I’ve thought somewhat similar. In our situation it’s only normal. I’ve gone a little further in my thoughts though. When some idiot gives me a second look, I would love to be able to switch our “health” for an hour so he can actually feel how I have to cope and appreciate his good health.
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****Yes, and once my ataxia went away for an evening after a surgical procedure where I was anesthestatised. When I woke up my Ataxia was gone and I went jogging in San Francisco. After sleeping I woke-up with ataxia again. Mother’s milk, part of my anesthesia, was presumed as my ataxia’s off switch but no research was ever done and I did notify several doctors. Mother’s milk had recently killed Michael Jackson. I take great pleasure knowing
there’s an off switch somewhere down the line.
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It must have been disorientating realising ataxia had disappeared…but then to have symptoms reappear…
So…is your diagnosis definitely genetic…SCA6/15
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Hi, NOT genetic and the event occurred prior to my Ataxia diagnosis. The surgery was done by a doctor in the ENT dept who referred to my balance problems vaguely as my “vestibular issues” and later diagnosed in
neurology as ataxia. No mention of ataxia at the time but I was having modest balance issues far more modest than now… I loved my short break from ataxia but it was more an event where I walked and ran gracefully for a short time. My doctor in ENT did contact doctors in various specialties but nothing came from this event. I thought it was medical info that was important but it didn’t go anywhere.
Gee, wouldn’t it be great if we could take a vacation from Ataxia like we do from work 
?
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Vestibular issues are so poorly understood…and so little can be done, this being in addition to balance problems because of Cerebellar Atrophy…
In the past I have actually experienced some return to normality myself…it was so fleeting I sometimes wonder if I imagined it 
I’d had the Epley Manoeuvre done to try and realign crystals in my ears…and for a few seconds afterwards I experienced the most amazing clarity in thought and vision…I felt completely present and vision was normal…Sadly it didn’t last, and current symptoms quickly resumed…Despite further sessions no progress was made…
Sitting still is my most comfortable position, but it’s far from being practical 
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I would definitely take the opportunity! It’s really difficult having balance issues or not being able to speak. My motor skills are affected as well! The fatigue is somewhat overwhelming! I have to plan on what to do! And forget about mornings! My days are really short. I can’t do a lot. don’t think people understand!
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I know I couldn’t handle going back.
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I don’t think I could cope with a temporary transition either…it would have to be permanent or not at all.