***A longitudinal, remote assessment of motor, speech, cognitive, and mood function in spinocerebellar ataxia
Participants from around the world are welcome to join!
A new remote study from the Harding Lab at Monash University aims to better understand how different brain and body functions (movement, speech, thinking skills, & mood) are affected in spinocerebellar Ataxias, and how these functions change over the short-term and long-term. If you have SCA1, SCA2, SCA3, or SCA6 and are interested in participating, you can find more information here: Spinocerebellar ataxias remote assessment study - Department of Neuroscience
In Harding is working in Australia. I was an early adopter and have been doing this survey for 23 months now. I have SCA2. The online tests give you a measure of how you are doing over a period of time.
Best part, it is fun to do as well
Have ago and help the Monash Team with this important work
Good day Beryl, I have not participated due to my deteriorating Cerebellar Ataxia,
what a struggle to type this message to you. Since my diagnosis in 2020 I have progressed from a walking stick to a wheelchair, I struggle to do many things like brushing my hair and teeth
pulling up my pants, blurry vision, spinning head, a trembling body etcetra the list goes on.
Is this the kind of deterioration one can expect.
I am 68 years old.
Hi Tahira I’m sorry to say…yes what you are having to cope with is generally par for the course. Do you happen to know which type of Spinocerebellar Ataxia you’re diagnosed with Does it have a number, or name
I don’t drive because of eye problems. It’s been several years for me, and it took a long time before I stopped thinking about it. Losing independence is one of the hardest things to come to terms with…