I just heard about my final round of tests at the geneticist. They are all negative or normal. I am pretty disappointed because I wanted an ataxia type to learn about.
And I am not good at waiting. They did say that definately I have ataxia I just need to wait for a year and see if there is more tests. I have had several problems with my eyes,and my sight is rapidly getting worse, I am worried about the next year. I am having problems see this and am making alot of mistakes, I hope I am fixing them. I have Dragon Naturally Speaking, I just have not loaded it. I guess its denial.
All of my symptoms support hereditary, as well as the placement of the atrophy in my cerebellum. That I don't understand, so maybe someone here can explain a bit.
I did get SSI disability, but I also got a job pretty recently that I love, and is in a supportive environment, I it just that I am exhausted, mentally and physically at the end of the day. I used to think I was tired when I was younger, I had no idea what tired is!
I have an interview in a few days, to talk about trying to work for a few years, and them reinstating my SSI if needed.
One more thing I am wondering, possibly some one here knows, is Ataxia always degenerative? I have not had enough MRIs to see if there is degeneration yet.
Or do I have to just wait more and see?